My LINX journal

New Topic Locked Topic Printable Version
263 posts in this thread.
Viewing Page :
 1  2  3  4  5  6  7  8  9  10  11 
[ << Previous Thread | Next Thread >> ]

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/16/2013 11:05 AM (GMT -6)   
JANUARY 15, 2013 - TUESDAY - DAY 1

I arrived at Knox Community Hospital (in Mt. Vernon, Ohio) at 11am. They took me back to a bed to wait. I had to change into a surgical gown, they told me I wasn't even allowed to wear underwear! Thank goodness the gown had a back cover! I was trying not to cry from being nervous. A lady came in to take my blood, then the other nurse put in my IV. At about 1pm I was beyond nervous and antsy. The surgery was scheduled for 1pm and I felt like sitting in the little room was torture! The girl in the room next to me was getting a hysterectomy and I over heard she was born in 1993! I felt so bad for her :( That put my surgery into perspective though!

At about 1:15 my surgeon, Dr. Taiganides, came in to talk to me. I'd have to say he has the best bed-side manner I've ever encountered. He came in and sat down, asked how I was feeling. I told him very nervous. He gave me a big hug and told me everything would be okay that he would take great care of me. We talked for about 10 minutes. He said he had already done 2 other LINX surgeries that day. He gave me his personal cell phone number and told me to call him if I need anything. He warned me he will be at a conference friday, so if he doesn't answer then he will call right back. The nurse before him did tell me Dr. Taiganides will be in Miami to teach 15 other surgeons how to perform LINX. I thought that was pretty cool. Here I have the best LINX surgeon in the country and he's also teaching others about it. That made me feel better, safer.

I wasn't allowed to get any medicines for the anxiety until I was wheeled into the operating room. I was so nervous going into the room, seeing everything!! The hospital is remodeling, that is why I had to be in there before the meds. The anesthesiologist was very nice and gave me something to calm me down right away. I had to move onto the operating table and stuff started to get a bit hazy. The one nurse remembered me because of my dog and she's a dog lover. I guess I had to count? I have no idea LOL I was out into lala land! I woke up in recovery and just wanted to keep sleeping. I had no pain, they had already given me pain meds in my IV. I stayed in there for about 45 minutes and then got wheeled back into the room I started in. My husband came in and gave me kisses and asked how I was. I was still pretty darn out of it! They wanted me to wake up so I could go take an xray. They like to be extra sure and get xrays of the positioning of the LINX. I was too dizzy and nauseated to get off the bed, so they had me do the xrays while on there. They did put a patch on me for nausea while I was in surgery. It's a 72 hour patch. I get very very sick from anesthesia so I wasn't shocked. I didn't want to "test" out the new LINX and throwing up!

I went back to the first room and we went over all the healing, paperwork, etc. I do have a card that I carry with me that says I've had the LINX procedure done, just in case I need it at the airport or any other esophageal work. All of the nurses at Knox were super nice and very helpful. They gave me a prescription for vicodin for the pain. They wheeled me out and I got into the car. Once at CVS I got into the back. I have a boxy Honda Element and we had the seats in the back out and mattress pads and memory foam - so it was bed :) I laid back there for the 3 hour drive home. I had some pain starting so took a pain pill. We finally got home and I just laid down and watched tv. I didn't sleep so well though. I have 5 incisions and the one on my bottom left was stinging a bit. Overall it wasn't that painful, just what you would expect from getting surgery. I do feel like I did 10,000 situps! Jeez!! I do have to say so far no gas bubbles in my shoulders or body. He did a great job sucking out all that air they pumped me with! My voice was a bit hoarse because of the tube down my throat during surgery.

food
I wasn't too hungry from all the meds. I did have 2 packets of crackers, a chocolate chip shake and tortilla chips.

That's it for day 1, I'll try to update each day :)

update
I have 12 of the magnetic beads in me.

If you want to see pictures of what LINX looks like inside I have three. Two are of the LINX, one is of the LINX sizing device and then there is a photo of the incisions. The password is linx1234 (in lowercase) .. it looks kinda gross but figured some of you on here may want to know :) s247.beta.photobucket.com/user/amynxdx/library/random/LINX

FEB. 11, 2013 UPDATE - THE BILL & INSURANCE COVERAGE
I just checked www.myuhc.com to see if there were any updates and FINALLY there were! It looks like United Healthcare covered everything according to my plan. Here's the break down:

Total Amount Billed: $24,940.93
Plan Discounts: $5,821.74
UHC Plan Paid: $17,072.28
Total amount you owe to the providers: $2,046.91

I think I can deal with that! Add that onto all my 9 tests from before the surgery and I'm at about $3,000 out of pocket. It still STINGS since I don't exactly have $3,000 to just pay things off but $3,000 to not have heartburn again? DEAL!!!

Under "Type of Service" for the surgery it just says "OP MISC. SERVICES" So I assume that's the LINX part? The other part of the bill just says "Type of Service" "SURGERY".

Needless to say I'm about $400 shy of meeting my deductible for the year...

Post Edited (NoDoubtLove) : 2/11/2013 7:04:54 AM (GMT-7)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 1/16/2013 12:13 PM (GMT -6)   
Congratulations, NDL! 
You're now a member of the yeah yeah yeah LINX Club! yeah yeah yeah Thanks for keeping a journal!  I'm certain it will help MANY people who are searching for information and encouragement.
Happy Healing!
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

RGR
Regular Member


Date Joined Jan 2013
Total Posts : 34
   Posted 1/16/2013 2:18 PM (GMT -6)   
I'm glad you made it ok! They didn't keep you over night? I'm surprised about that. I'm glad to hear that the surgeon is just as nice as he was on the phone when I talked with him once.

I'm excited to keep reading your journal!

Take it easy! :)

BEACH-GIRL
Regular Member


Date Joined May 2012
Total Posts : 467
   Posted 1/16/2013 4:55 PM (GMT -6)   
NDL,

Glad you are doing ok. Please keep us updated.

:-)

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 1/16/2013 6:44 PM (GMT -6)   
No DoubtLove. It's over,------ now you just do the job of healing. Happy for you. Wish you the best. Keep us posted with everything.
🎀🎀🎀🎀🌅🌅🌅🌅🌺🌺🌺🌺

shrtcak81
Regular Member


Date Joined Jan 2013
Total Posts : 165
   Posted 1/16/2013 6:56 PM (GMT -6)   
Congrats! I'm so excited for you!! You're very brave :) I would be a nervous wreck too! I've never had surgery, but I will probably have to soon. I can't wait to hear how your recovery goes. I'm sure you'll be just fine!

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/16/2013 7:10 PM (GMT -6)   
YAY! I'm in a club now :) LOL

I'm going to try the best to update as much as I can. I've been super sore today. I'm also super sleepy...I could sleep all day!

And yes, Dr. Taiganides is great! I love how caring he is. He really made me feel better :D

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/17/2013 10:54 AM (GMT -6)   
JANUARY 16, 2013 - WEDNESDAY - DAY 2

Here are some pictures of the actual LINX device inside me. Two are of the LINX, one is of the LINX sizing device and the other is a picture of my stomach and the 5 incisions. I know it's kind of gross - but figured some people may want to see. Password is lowercase: linx1234 s247.beta.photobucket.com/user/amynxdx/library/random/LINX

Overnight of day 1 and day 2 I didn't sleep as well as I thought I would. I was too paranoid about the incisions and I'm a stomach sleeper. When I woke up for the day I was pretty nauseated. I called the doctor and asked for some medicine to help me out. They ordered anti-nausea medicine and suggested I eat some toast until the prescription was ready. The toast did help a little bit. I mainly sat on the couch just watching HGTV.

I had my husband get my medicine and Gatorade. I was feeling pretty dehydrated. I took the medicine which calmed me down a lot. I hate that I have such a bad reaction to anesthesia! I kept laying on the couch watching TV. I was still very tired from everything so laid down and napped for about 4 hours!

I didn't really have any pain, I could slightly feel the LINX, or just something in my throat. It didn't hurt just noticeable. My stomach was still super sore and the incisions hurt a little bit. Overall nothing too bad, just noticeable.

My husband went out and got us Outback. I had the kid's steak with mixed veggies and blue cheese chopped salad. Everything went down very well. Just have to remember to chew chew chew!!!

Overall that's about it for Day 2. Nothing too crazy, just sore and recovering :D

food
2 pieces of toast
yogurt
steak
mixed veggies
blue cheese chopped salad
pickle
tortilla chips

gerd_hater
Regular Member


Date Joined Oct 2012
Total Posts : 322
   Posted 1/17/2013 11:06 AM (GMT -6)   
NDL,

Best of luck as you recover.

Thanks for sharing the incision pics - I imagined they'd be a little smaller. I will be a little bit more prepared.

Are you already off PPIs ?

Can you remind me what your worst symptoms were ? heartburn or breathing ?

GH

BEACH-GIRL
Regular Member


Date Joined May 2012
Total Posts : 467
   Posted 1/17/2013 11:09 AM (GMT -6)   
NDL,

thanks for the pictures.

Glad you are doing ok. It is expected to be really tired. I was really tired for several days. The anesthesia was really really rough on me too. I am thinking of you.
BG

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 1/17/2013 3:39 PM (GMT -6)   
Hi NoDoubtLove,
 
Wow. I have been writing in the LINX Club thread and noticed yours by casual browsing.
 
At the moment, I am evaulating LINX to see if it appropriate for me rather than the Nissen Fundoplication (total 360 wrap) that a my intended Surgeon is pushing to me. Problem is that he (and all others) don't perform the LINX surgery here in NYC where I live, so I have been very hesitant to proceed with either.
 
Please share with me your medical history with GERD, prior to surgery and how you feel now. I am especially interested if take a small sip of water and feel that it sits in your esophagus, rather than draining into your stomach.
 
My take (and please tell me if I am wrong) is that the little bit of water won't let the LES open since the pressure has been increased by the LINX, causing some dysphagia.
 
The Nissen appears to have many unwanted side effects and I would strongly consider the LINX with more real life data, like yours, since I understand that only about 400 have been performed in the US to date.
 
Thanks for posting your pictures, they are spot on for a laparascopic procedure such as this.
 
So I guess I need to know if it all was worth it and the quality of Dr. Taiganides technique and bedside manner.
 
Rest and heal well!
 
Gastricman :-)
 
P.S. A truly normal diet on day 2? Seriously? No dysphagia? shocked
 
 
 

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 1/17/2013 3:45 PM (GMT -6)   
Hi dencha,
 
Shouldn't this thread be appended to the Linx Club (latest part)?
Guess, it's best to keep things in one place for clarity.
 
Just a suggestion.... tongue
 
Gastricman :-)

hitThePost
Regular Member


Date Joined Dec 2011
Total Posts : 133
   Posted 1/17/2013 5:14 PM (GMT -6)   
NDL, congrats! Wishing you the best of luck in a smooth and speedy recovery, and of course NO REFLUX!

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/17/2013 6:30 PM (GMT -6)   
I know the whole picture thing is kind of gross but I know if others had them to post I'd want to see them. I guess just to know a little bit more.

I didn't have any problems with breathing, just straight up acid reflux, indigestion and heartburn. I have sinus issues and drainage, yes, but I don't think those were related. My lower esophageal sphincter was wide open and not functioning at all.

about Dr. Taiganides I love that guy so far. From the first time that I met him he was concerned, had good options, had all the facts and answered every question I had. He has a great sense of humor - which made me feel more relaxed. He wasn't trying to push anything on me, just giving me facts to make my own decision. He gave his opinion, yes, but not "YOU MUST DO THIS OR THIS" type of thing. The day of the surgery he made sure to see me both before and after the procedure. I loved that he gave me his personal cell phone # just in case I had any issues. He's a very positive and upbeat doctor, which is very rare anymore.

I started my own thread just because I wanted a place to track my progress. I didn't want it mixed in with everyone else, since we all heal in our own ways.

I did a lot of research about LINX vs. Nissen before going through this. LINX is the more logical answer for me. I also want to start a family this year and if I had Nissen there are a lot more complications.

I am off the PPI's 100% so far. Last time I took it was the day before the surgery.

Going to write up Day 3 now :) I hope I'm answering all questions, if not, just ask again LOL

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/17/2013 6:47 PM (GMT -6)   
JANUARY 17, 2013 - THURSDAY - DAY 3

Beware, I'm bad at story telling!

I slept great last night. I'm used to waking up at least 3-5 times with indigestion or burning. I think I woke up once when the dog was having a bad dream! I woke up feeling a lot better than expected. I made myself some ice coffee and had a kashi granola bar. I put away some dishes from the dishwasher and my stomach muscles started hurting (just the soreness of everything). I watched some tv then tried to pick up my fat cat (he's 16 pounds) and felt a pain in the lower incision, so I figured no cat holding! They did advise me no heavy lifting for 2 weeks.

I watched more tv, ate some candy and then got bored. I decided to try to cut out some patterns for sewing, but bending was a bad idea. Back to the couch. I started feeling the gas bloat of everything and that has been very uncomfortable. I drank some water and ate this health food version of ramen noodles. I forgot to chew enough and swallowed a big bunch and felt it get "stuck" in my esophagus. I could have sworn I felt the LINX open and shut. It wasn't pain or anything, just noticed I could feel it. I had a few sips of water and everything went down fine.

I am noticing that I'm super gassy. I know some is from the surgery because I feel it in my back and high in my chest. I have burped a little bit. I feel the other burps coming but they don't go past the LINX. I ended up going to CVS and getting Gas-X chewables (the nurse recommended the chewables). I had 2 of those and the gas pain is going away.

I feel like I'm all over with my story. I did take a pain pill because of the gas and back ache (I already have back problems, so that's not related as much). I have taken a total of 4 since I've been out of surgery, so not too bad.

Overall, I can feel the LINX today. The nurse did warn me that I would feel "something" since I didn't have a functioning LES (lower esophageal sphincter). So maybe I'm just not used to that barrier? The gas build up pain was pretty uncomfortable though. My incisions are starting to itch. Only 1 has some pain. I'm still happy with this procedure and can say I've had ZERO heartburn since it's been put in. And I even tested it with a heartburn trigger tonight! I'm starting to feel so much more hopeful about my future :)

I took a shower earlier and made sure to pat the incisions dry. I didn't have any pain or discomfort, so that was a relief. I was kind of worried about showering and getting them wet.

Sorry my writing is kind of all over the place. I am still very tired from everything and on the pain killer.

food
Ice Coffee
Kashi Dark Chocolate & Cherry granola bar
Reeses peanut butter stick
Health food version of Ramen noodles
Chocolate Chip Milk Shake
Skyline Chili (It's a Cincinnati thing. It typically gives me heartburn - spaghetti, chili and cheese)

I think tomorrow I will test out the device hardcore. Hot buffalo wings, that always gave me heartburn.

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 1/17/2013 6:58 PM (GMT -6)   
wow you are doing great, congrats
I assume u don't have any stomach problems, if I would eat what you had today my stomach would be on fire
did your barium test show any reflux? how did they see that your LES is wide open.

gerd_hater
Regular Member


Date Joined Oct 2012
Total Posts : 322
   Posted 1/17/2013 11:32 PM (GMT -6)   
Gastricman,

Some other journals here.

Justpassingthrough www.healingwell.com/community/default.aspx?f=45&m=2405176 read through this completely for answers to most questions
edopter www.healingwell.com/community/default.aspx?f=45&m=2276616
Beargirl one year on www.healingwell.com/community/default.aspx?f=45&m=2450517

The information in JPT's thread is very useful, make sure you go through it entirely.

The Linx club members from Linx Club 4 thread: Justpassingthrough, Beargirl, Slicer, Shooz, Beach Girl, Puppylove88, Gazbiker, ianb123, LinxBeliever, 3girls, AntZag, MissyP, LinxCR, Linx99, Stevie91, LinxCR,

search for those handles and look up their posts (you can click on handle to bring up past 10 posts). Granted the search is not top-notch, but very likely you will find answers to most of your Linx questions already in here.

From reading several of these posts and experiences, I've built up some confidence that Linx COULD work with decent odds. Unfortunately, there are sub-optimal cases too on these forums, I think AntZag, BEACH-GIRL etc.

GH

NoDoubtLove
Regular Member


Date Joined Oct 2012
Total Posts : 359
   Posted 1/18/2013 9:41 AM (GMT -6)   
So far today (Day 4) I can feel the device inside there. Its uncomfortable but not painful at all. The gas build up is still there :/ Stomach is super sore and my back is sore too. I'll give a full Day 4 update later on tonight :)

BEACH-GIRL
Regular Member


Date Joined May 2012
Total Posts : 467
   Posted 1/18/2013 9:59 AM (GMT -6)   
NDL,

I had terrible gas pains for close to two weeks. Also back hurt bad too.

This is normal.

Keep us posted.

Hugs.
BG

shrtcak81
Regular Member


Date Joined Jan 2013
Total Posts : 165
   Posted 1/18/2013 11:31 AM (GMT -6)   
Wow, NDL - sounds like overall you're doing great! I'm so happy for you:) It must be nice to not feel anything heartburn at all. Is feeling the device a weird feeling? I would think it would feel pretty strange. I'm so glad you are journaling about your progress. It helps to see someone's recovery of this procedure. I look forward to reading more of your progress. I'm really thinking of getting this procedure once I get all my tests done!

BEACH-GIRL
Regular Member


Date Joined May 2012
Total Posts : 467
   Posted 1/18/2013 12:15 PM (GMT -6)   
JPT,

I miss you and your advice. Please tell us how you are doing. Are you trying any new treatments? How is the breathing?
BG

RGR
Regular Member


Date Joined Jan 2013
Total Posts : 34
   Posted 1/18/2013 1:01 PM (GMT -6)   
NDL -

It's crazy how you are eating almost whatever, and so far so good. I'm so excited for you!

I thought with this surgery you had to spend at least one night in the hospital?

RGR

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 1/18/2013 4:11 PM (GMT -6)   
Hi NDL,
 
The Steri-Strips on your laparoscopic incisions will fall off by themselves usually in the shower with warm water.
By no means try to tug on them! It might take several days.
 
Internal itching is part of the normal healing process and could be bothersome at times. For external itching just call your Dr's Nurse and see if there is a minor OTC antibiotic ointment like Bacitracin that can be gentry rubbed in to the affected area.
 
As for gas pain, I have found that Gas-X (simethicone) is effective in bringing together all the gas bubbles for explusion. Another more potent product is Charco-Caps (Activated Charcoal) which is very effective for absorbing entrapped gas and is available OTC.
 
Hope this helps you. I don't understand why you are having gas.
 
One question for you...
 
When you drink small sips of water, does it backup a bit into your esophagus, or does it go through easily?
 
Best,
 
Gastricman :-)
 
 

Post Edited (Gastricman) : 1/18/2013 3:37:41 PM (GMT-7)


Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 1/18/2013 4:16 PM (GMT -6)   
GH,
 
Thanks for those resources (above). I will look though them!
When about will you be having your surgery?
 
Best,
 
GM :-)
 
P.S. Why is the LINX causing issues for AntZag and BEACH-GIRL?

BEACH-GIRL
Regular Member


Date Joined May 2012
Total Posts : 467
   Posted 1/18/2013 4:46 PM (GMT -6)   
Gastricman and GH,

I want to know why the linx is causing issues for myself too. That is the one million dollar question. Please add your input as to why I could be having problems. I am willing to listen to all advice I can get.

I took gas x for one month after linx surgery. It helped with the gas. After a month, the gas tapered off and it is not an issue now.

As far as water backing up in the esoph, yes it does. You have to drink enough of a swallow to get the linx open and to push the water down in the stomach.

You sort of have to "prime" the linx to start working. Before you eat, drink some big sips to get it opening and closing. Same thing with drinking. Don't just take a sip and stop drinking, you have to have a few sips or you can feel it collecting above the linx.

Saliva does that too. The doctors say this is common and call it "saliva pooling above the linx". My saliva does not seem to pool above the linx.
BG
New Topic Locked Topic Printable Version
263 posts in this thread.
Viewing Page :
 
Forum Information
Currently it is Thursday, June 21, 2018 3:02 AM (GMT -6)
There are a total of 2,974,031 posts in 326,235 threads.
View Active Threads


Who's Online
This forum has 161223 registered members. Please welcome our newest member, otismacie.
267 Guest(s), 2 Registered Member(s) are currently online.  Details
alunke82, KarloVen