My experience weaning off PPI's

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UC Veteran
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Date Joined Sep 2011
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   Posted 1/23/2013 8:21 PM (GMT -6)   
I have been on H2Blockers and PPI's for 35 years in ever increasing doses. I was up to 80 mg. of Protonix.
After being in the hospital twice for "mysterious" liver issues, the Protonix was the cause.

In my effort to wean off Protonix, I tried eliminating a pill ( I was on 4). It was unbelievably hard, headaches, nausea, reflux and generally feeling ill. I researched methods of weaning the dosage slowly. My answer was Protonix packets containing lots of little beads. I divided the beads from the packet in ever smaller portions, to replace one pill at a time. This was more comfortable but still hard at the higher doses.

I discovered apple cider vinegar pills on the Internet and tried them. They work wonderfully for me. I take one anytime I eat protein or a large amount. Usually just a small snack that does not include protein is ok with out the pill.

I am completely off PPI's and take 5 or 6 ACV pills a day. I may have to take them for ever, but that is ok with me, I have no side effects from the apple cider vinegar pills and no reflux at all. This miracle was hard and took about 4 months, but so worth it!

SummerGAL
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Date Joined Apr 2011
Total Posts : 116
   Posted 1/24/2013 12:17 AM (GMT -6)   
The ACV pills worked good for me too, but I decided to have the Nissen surgery anyway. I'd like to start up the ACV again because it has many benefits.

hatepills
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Date Joined Mar 2014
Total Posts : 5
   Posted 3/30/2014 12:18 PM (GMT -6)   
How and where did you get the small protonix capsules? I am also trying to get of the protonix and having a hard time.

UC Veteran
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Date Joined Sep 2011
Total Posts : 29
   Posted 3/30/2014 3:01 PM (GMT -6)   
There is a packet of beads, prescription only, > Mine were 40 mg packets. I usually sprinkled the beads on yogurt or applesauce and swallowed without chewing. I would divide the packets in decreasing amounts as the weeks went by to gradually decrease by daily dose. I found Betaine Hydrochloric acid was necessary to digest my food especially a protein meal. I had to do it very gradually over 5 or 6 months to avoid being uncomfortable after eating. It was not easy but very much worth it in the end. I have been totally off PPIs for over a year. I still take HCL Betaine with every meal. And probably will forever. I find if I burp after a meal that means I need to take a little more HCL betaine. I use Source Naturals brand. I now never have acid indigestion, my eczema is totally gone and I feel so much better.

hatepills
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Date Joined Mar 2014
Total Posts : 5
   Posted 3/31/2014 9:36 PM (GMT -6)   
Thank you. I will mention them to my GI when I see him next, although I don't think he wants me to get off it. I have been taking 40 MGM twice a day and I am trying this week to take it only in the morning and take Zantac at dinner time. It has not been easy but I am hanging in there.

UC Veteran
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Date Joined Sep 2011
Total Posts : 29
   Posted 4/1/2014 10:03 AM (GMT -6)   
Be proactive and research for yourself as I did. PPIs and products like Zantac stop all stomach acid production. You need acid to properly digest food. My problem was and always has been too little acid. Gastros either don't understand this or think we as patients won't understand. It is very complicated and just now being understood by the medical community. Look at clinical studies not what other people (like me experience ) You are a unique case and may be different from me or my solution.
It has been a mistake to rely on my doctor blindingly without good reasons to know they are right. I don't do that any more no matter how good I think they are or what school they went to.

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 4/1/2014 10:22 AM (GMT -6)   
UC,
 
I am glad  the apple cider vinegar pills work for you.  I tried the liquid ACV and could not swallow the glass full of water with the ACV in it.
 
Thanks for sharing.
 
Kitt
 
 
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

UC Veteran
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 4/1/2014 6:32 PM (GMT -6)   
I transitioned to Betaine Hydrocholric acid pills because they are stronger and work better for me to digest my meal. I hated the taste of vinegar too!

hatepills
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 4/1/2014 10:08 PM (GMT -6)   
How did you realized you neede more acid? Ever since I was prescribed 40 mgs of the protonix twice a day I have been getting stomach pain after I eat. Now that I have cut to protonix am and Zantac at night, I am getting stomach pain after I eat? Could that be not enough acid?

UC Veteran
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 4/2/2014 4:02 PM (GMT -6)   
When I researched this topic, I found that the reflux you think is acid is really acid from fermenting bacteria of undigested food in your stomach. When I take Betaine Hydrochloric acid it is the right kind of acid to digest food. Your stomach is made to withstand a lot of the right kind of acid. It is naturally made by your body in response to eating. I did not have enough at an early age because if also have Celiac disease which has that side effect. Everyone produces less acid as they age. It is normal by the time you are middle aged to have much less acid and it is beginning to be a problem and people start taking things like antacids. That masks the symptoms and pain of heartburn, but does not solve the problem.

When you take antacid, h2 blockers or PPIs you reduce and stop you natural acid production. You stomach can't digest your food. So, your stomach says , uh oh I need more acid and produces more acid pumps in your stomach. Gradually over the years you have to in crease the dosage to get relief. By the time I understood this, I was taking 80 MG of Protonix, which is 4 times the recommended dose. The company even says it is not meant to be taken for more than 6 to 8 weeks. Docs seem to ignore this and just keep giving it out. I was on everything for 35 years starting in my 20's. You need to research and see for yourself what is really happening. THere are a couple of conditions that do need them for longer periods of time but not ordinary Gastro Reflux disease.

hatepills
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 4/2/2014 10:11 PM (GMT -6)   
I had a better day today, I also slept better last night. This week I have been taking 40 mgs protonix am and Zantac 150 mgs at night. Do you know if it's possible to cut the protonix pills in half? Next week I want to try going to 20 mgs protonix am and continue the 150 at night? Is it too soon to do that? I don't see my GI dr until the end of April.

Prairie ranger
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 4/3/2014 6:53 AM (GMT -6)   
Do you if it is bad to take hcl if you have gastritis with your gerd.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/3/2014 8:11 AM (GMT -6)   
PR,
 
This is a tough question and most likely your Dr. should advise you on the use of HCl.  there seems to be lots of thoughts from people that have both GERD and gastritis.
 
One person posted, "If you take HCl, how can that ever have any effect on the stomach? Doesn't the stomach produce far, far more HCl by itself than you could ever take orally? After all, HCl production is the stomach's main task..."
 
Food for thought.
 
Have a great Thursday,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

UC Veteran
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 4/4/2014 7:36 AM (GMT -6)   
HCL relieved my acid re-flux symptoms from the very beginning. I had to discover the right amount for what I was eating. I take 4 or 5 650 MG pills of HCL with every meal and less with a snack. I don't seem to need as much if the snack is just a carb like crackers. If I have any burping or reflux I take another HCL and eat a cracker. It works for me every single time. I never even think about indigestion any more.
I eat comfortably each day now and have no symptoms. If I had discovered HCL Betaine supplements earlier in my attempt to decrease my dosage of Protonix, it would have been so much easier.
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