Not PPI-less anymore ...

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aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 1/26/2013 7:32 PM (GMT -6)   
I haven't posted in this forum for a while, but wanted to update everyone on my situation.

For those who don't know me:
In March 2011, I started to experience terrible symptoms from LPR/GERD - and found out soon after that - that I could not tolerate the PPIs or H2s (they used to give me terrible side effects: tingling, insomina, knee aches and so on). I tried a lot of natural things (including probiotics, DGL, juicing, breathing exercises, acupuncture, homeopathy) - saw many many doctors (including Dr. Kaufman in NYC who did neuro tests on me etc.), learnt so much from you all on this and other forums. Some Drs. also had me try neuro-drugs (gabapentin, SSRIs, wellbutrin etc.), to see if they can offset my side effects but back then - they would give me other side effects, so I abandoned those plans then. I was pretty much convinced that without getting the surgery, I'll have to live with these symptoms forever.

I continued to struggle with my symptoms through the summer of last year and had been evaluating TIF, Nissen and LINX etc. ... and even though I came very close to getting the surgery, I did not pull the trigger.

Then some time later in the summer, I changed my GI and the new GI put me on a combination of Elavil and a higher dose of Aciphex. Elavil used to make me groggy in the mornings and also make my hands and feet a little achy ... but I continued on it for a couple of months. I was also taking Gavison Advance (Liquid Aniseed Flavor from UK) as well. Then, on the direction of my GI, I tapered off of Elavil by November and was also able to reduce Aciphex down to 20mg/day - and recently to 20mg/every-other-day.

In the last 2 months, I've continued to feel better.

So, in the last 2 years of this saga - I can safely say that I am now feeling my best on the regimen of:
1) 20mg Aciphex every other day and
2) Gavison Advance the night of the days when I don't take Aciphex.

Of course I am not fully cured and don't expect to be - as I do continue to experience some reflux symptoms (they are more of GERDish symptoms now .. not LPRish symptoms at all) and at times, I also feel some side effects from Aciphex - but they are minor and are much more manageable now.

At this time, I feel I have my life back - I am fully engaged both at work and at home with the kids and family, am able to eat and drink in a pretty much normal way and hope to start back on my running schedule this spring.

So, I do want everyone to stay hopeful .. this beast is manageable .. so hang in there and continue to find a solution that can tame it!

My username is not really accurate here anymore though :) as I've been on Aciphex for the last several months now!

Post Edited (PPI-LESS) : 1/26/2013 6:36:52 PM (GMT-7)


theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 1/26/2013 9:42 PM (GMT -6)   
Hi PPI-LESS,

Glad to hear your doing better! I remember you very well of course, and am very happy for you!

aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 1/27/2013 9:55 AM (GMT -6)   
Thanks ARM ..

I know this may very well be a temporary phase, but I'll take it anyday ..

I also plan to take Ca/Mg supplements to avoid any long term absorption problems from the PPIs.

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 1/27/2013 1:45 PM (GMT -6)   
It is great to hear all "I'm doing better" stories. Glad you are back into the flow of life.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 1/28/2013 3:09 AM (GMT -6)   
Hi PPIless, glad to hear you have made progress!

This illness is such a struggle, such an impact on normal life, so it's great to hear that good things can happen too! Well done.

MMM
GERD (over 2 years)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Irfan
New Member


Date Joined Dec 2012
Total Posts : 15
   Posted 1/28/2013 7:05 AM (GMT -6)   
your story gives me courage that i can also feel good someday .. :-)

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 1/28/2013 10:34 AM (GMT -6)   
are you following any special diet?

or do you think the progress is from the elavil and PPI alone.

aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 1/28/2013 12:02 PM (GMT -6)   
I've tried a lot of different types of diets over the last 2 years and unfortunately the diet does not seem to make any difference to me.

The progress I think really is because I've been able to take 20mg Aciphex now. Elavil helped with reducing my body's adverse reactions (side effects) from Aciphex.

Again - I am not cured here but compared to before feel more comfortable.
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