2 months open wrap & still issues

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ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 1/28/2013 7:12 PM (GMT -6)   
rolleyes today is my 2 month mark. I am still having issues with eating and keeping food down. Firstly, I am never hungry, have lost 28 lbs (some before surgery as just could not eat/drink). I eat small safe meals and chew chew chew. Sometimes it will stay - like a piece of pizza but toast won't. There doesn't seem to be any pattern. So far, I've not called my doctor as he's in Maine and I'm in Florida. I do have very uncomfortable feelings not really a bad pain I can't manage. Just wondering if this is somewhat normal. I do keep a hot tea at the ready (thanks Denise).

I have been able to walk and swim almost daily. No strenuous swimming yet just floating and some aerobic exercises. As the surgery was on my back/shoulder I'm still careful.

Thanks!
Sharon
RA, OA, Fibramilgia, scleritis, hiatal hernia, GERD, cardiomyopathy, sleep apnea

rager201216
Regular Member


Date Joined Jun 2012
Total Posts : 107
   Posted 1/28/2013 8:28 PM (GMT -6)   
Sharon,

2 months is still very very early and the symptoms you are experiencing are normal. If you find some foods giving you problems, avoid them. You should call your doctor if you need and see what he says but I think you are doing great.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/1/2013 1:37 PM (GMT -6)   
Hi Sharon,
I agree with rager...two months is very early in your recovery, and having eating issues isn't all that unusual.  It's very individual, but not at all uncommon.  It takes a full 6 months for most of the healing and a year for the rest (mainly adjustment).  Hang in there!  Glad to hear you're able to swim and be active!  That weight will come back on all too easily once you're completely healed.
Happy healing,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 2/1/2013 1:58 PM (GMT -6)   
Thanks rager & Denise.....I am still almost daily having issues with retching. I do not try to vomit but it will just start no rhyme or reason doesn't have to be anything particularly that I ate. And it lasts! And then my stomach is so sore. Trying to stay optimistic - patience is not my forte. I still cannot go out to eat as I'm never sure when it will happen. Thanks for the reassurance and I'm trying to learn to be patient. It helps to know it's common.

Sharon
Sharon
RA, OA, Fibramilgia, scleritis, hiatal hernia, GERD, cardiomyopathy, sleep apnea

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/1/2013 2:25 PM (GMT -6)   
Hi Sharon,
Did you discuss the retching issue with your surgeon?  I've heard of that happening with an irritated vagus nerve.  I'm trying to remember. Did you have a paraesophageal hernia?  Why did you have the open procedure?  I wonder if anti-nausea drugs would help with the retching.  It's really not great for your healing wrap. 
 
There might be a med of some type that would help get it into control.  Call your GI doc if your surgeon isn't available.  Maybe he can order something for you.
Sorry to hear you're struggling!
Hang in there.
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 2/1/2013 3:00 PM (GMT -6)   
Denise...yes I did and because my stomach was behind my heart and my lungs they couldn't do laproscopicly. I will try the anti-nausea med don't know why I never thought of it.

Thanks again!
Sharon
RA, OA, Fibramilgia, scleritis, hiatal hernia, GERD, cardiomyopathy, sleep apnea

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/1/2013 9:18 PM (GMT -6)   
Hi Sharon,
Are you nauseous?  When you retch is it to get up food that is "stuck", or is it uncontrollable...just a reflex?  I think there are things they use to help stop it if that's the case.
 
I'm sure the fact that your hernia was so extensive is the reason you're having a tough recovery.  It was a lot harder on your body. 
Hang in there,
Denise
 
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 2/1/2013 9:25 PM (GMT -6)   
Actually it is both sometimes....but lately it's mainly been uncontrollable and I'll even lose my breath...it may last up to 5-6 minutes of constant retching once it starts. I did get some anti-nausea meds so here's hoping they work.

I get flushed and my face starts sweating and my saliva glands kick in and then I know it's going to start.

Hoping tomorrow is a good day!
Sharon
RA, OA, Fibramilgia, scleritis, hiatal hernia, GERD, cardiomyopathy, sleep apnea

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/1/2013 9:46 PM (GMT -6)   
Hi Sharon,
I don't see much about adults retching in my search for information, but I knew a mom with a post-Nissen baby (premie with lots of problems) who retched a lot. 
 
Often children get retching after Nissen fundoplication surgery as a result of irritation of the vagus nerve.  Here's a study that refers to a medication that they have found helpful:
 
I wonder if alimemazine would help you.  It would be worth asking!
Wish I knew more to tell you.  Good luck finding answers!
Hang in there,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
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