New to this forum

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Life is Good to me
Regular Member


Date Joined Feb 2013
Total Posts : 43
   Posted 2/16/2013 5:32 AM (GMT -6)   
New here, but have been reading posts for awhile. I've appreciated all the help & advice that people share. I am undergoing surgery on March 6th for the NF. I have been on 120 mg of dexilant & 600 mg of ranitidine daily for 4 months to try to control the reflux. I've been getting hive like rashes over the last 6 wks or so. Called the doc, but they said it probably wasn't the meds so keep taking them until surgery. Interestingly, both meds have this as a side effect. Anyone else have this type of issue w/meds? I have been weaning myself off of them since surgery is getting close - experiencing less hives/rash - go figure - but more reflux. I'm not a very big person - 5ft 3in, 128 lbs. - don't think my body can handle that much medication any longer.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/16/2013 1:27 PM (GMT -6)   
Hi Life is Good,
Welcome to Healing Well! Glad you've found the forum helpful, and have joined us! I had the surgery four years ago, and am very glad I did. If you've been searching around posts for a while, you've probably already seen this, but just in case, here's my early recovery journal:
www.healingwell.com/community/default.aspx?f=45&m=2183443

Good luck with your surgery! Be sure to ask any questions that occur to you, as there are plenty of members here who are experienced with the NF recovery. We'll be happy to share our experience and provide lots of support and encouragement!

Best wishes!
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Mulligan
New Member


Date Joined Nov 2012
Total Posts : 13
   Posted 2/16/2013 9:48 PM (GMT -6)   
Hi life is good to me,
I also had rash from ppi's along with swelling but no hives. You may be one in 5000 that are allergic to ppi's. I am also one of those people and I quit taking the ppi's and the rash an intense itching went away. The rebound was unpleasant but it wasn't as bad as what can happen if you are allergic to meds. Be careful with hives they can be internal and cause life threatening breathing issues.

FYI most docs have never heard of people being allergic to these meds of all the docs I have seen none had run into this before. Google allergy to ppi's you find info one these allergies - that was how I figured out I was allergic since those meds were the only thing I was taking.

I had NF on 1/29/2013 because I was allergic to the ppi's and am doing fine at almost 3 weeks post open. FYI when I told my doc I thought I was allergic to the meds we tried a different one for two days with same result so I was taken off all of them.

Good luck with your surgery it certainly helped me. Barb

Southern Gal
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/17/2013 1:06 AM (GMT -6)   
Hi everyone, I'm new to the site but certainly no stranger to gerd! I've been reading through the comments and have a few questions. First, what is the linx device, and how does it differ from the full or partial wrap? I had been hoping to find a surgeon that would only pull my stomach back down into my belly and 'tack it down' so it wouldn't slide back up through my diaphragm, but not do a wrap at all, but so far no luck with that. I am concerned about dysphagia, and also about losing the physical ability to burp and even to vomit. What method was used to keep your stomach in place? How long until you were able to go back to work? My symptoms have begun affecting my whole life, poor nutrition, don't rest well, do I eat and have it come back up or just don't eat as long as I can stand it? It's to the point where I can't stand it. I would love any info at all about the surgical options. Thank you.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/17/2013 9:42 AM (GMT -6)   
Hi Southern Gal,
Welcome to Healing Well! Here's a link with a post by another member who had a large paraesophageal hernia and like you, didn't want a Nissen. She had the procedure you're hoping for.
www.healingwell.com/community/default.aspx?f=45&m=2637921

I had the Nissen four years ago, and though my surgeon told me I wouldn't be able to burp or vomit, I can do both. I have not found the surgery to be a problem at all, and it has been nothing but a positive experience. Even the recovery wasn't as bad as what I'd been experiencing with GERD.

Here's a link to some information about treatment options for GERD:
effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?productid=756&pageaction=displayproduct
Take note that there is a "partial wrap" option, which is done to ensure that there will not be bloating or swallowing issues.

Here is a link to the "LINX Club" thread here at the GERD forum:
www.healingwell.com/community/default.aspx?f=45&m=2622256&p=1
The LINX is a very new procedure, and is just beginning to be accepted by insurance companies. I'm not sure you can get it if you've had a large hiatus hernia. I'm sure our friends at the LINX Club will be able to answer any questions you have.

Good luck with your search! I suggest you start a new thread on the new page introducing yourself and asking your questions. It will be easier to access your questions that way. Here's the link to the main page:
GERD - Heartburn
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Southern Gal
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/17/2013 7:25 PM (GMT -6)   
Thank you for responding, I clicked on the links you sent and have already learned new things. I have an appt with a surgeon soon and now I will be able to ask about the gastropexy option as well as the nissen. I would like to ask you, what method was used in your surgery to 'tack' your stomach in place? I haven't seen any mention of using a gastric tube placed through the skin and into the stomach, and it is strictly for the purpose of 'scarring down' the stomach to the abdominal wall so that it remains in the abdomen, and the tube is removed after a few weeks. One surgeon told me about that several years ago but have not heard of it otherwise. Also, did you have a full or partial wrap? I would prefer neither and would be happy to have my stomach back where it belongs so that my food doesn't sit just below my throat, and I think I would tolerate the reflux. I look forward to your response, and will also have a go at starting a new thread as you suggested.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/18/2013 7:57 AM (GMT -6)   
Hi Southern Gal,

With a Nissen, your stomach is "tacked in place" by the repair of the diaphram/hernia, which once its "hole" is repaired (that herniation of the diaphram is how the stomach slipped through in the first place), the stomach will stay where it belongs.

I had no gastric tube.

I had a full wrap, although some here have done very well with a partial wrap. The decision is made depending on specific patient needs. People who test to have some swallowing issues are recommended for a partial wrap. It's important to locate a surgeon who has done hundreds to over a thousand (depending on the size of the city) Nissen surgeries. It takes more than a skilled surgeon. It takes a surgeon who is experienced in the art of the Nissen fundoplication.

Good luck with your search!

Best wishes,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 2/18/2013 2:33:55 PM (GMT-7)


Southern Gal
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/18/2013 10:04 AM (GMT -6)   
Hi Denise,

Thank you for your great info. I have also been in contact with the member who had the gastropexy only and that will definitely be discussed tomorrow with the surgeon. I'm sure glad I found this site! I will post after I see the doc, and also continue as things progress.

Thanks again :)

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/18/2013 3:34 PM (GMT -6)   
Hi Southern Gal,
I'll look forward to hearing what your surgeon has to say.
Good luck!
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 2:47 AM (GMT -6)
There are a total of 2,974,446 posts in 326,176 threads.
View Active Threads


Who's Online
This forum has 161280 registered members. Please welcome our newest member, Mark Aden.
220 Guest(s), 3 Registered Member(s) are currently online.  Details
Sinmiedo, Steve n Dallas, Noggin2u2