Will a hard cough harm my new NF???

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cat98037
Regular Member


Date Joined Feb 2013
Total Posts : 80
   Posted 2/24/2013 6:54 PM (GMT -6)   
I haven't had my NF yet but will in the next week or two. I have a very, very hard, deep cough right now. I have asthma and have been on steroid since November. My surgeon told me that a hard cough like mine could very well tear the sutures apart. I am more concerned about my lungs than my reflux.......although it is my reflux that got me here.

I'm interested in knowing about coughing issues fresh post op. I expect to cough some and have prepared myself for it. However, my lungs deteriorate each day and the cough worsens. I'm going into surgery with fragile tissue due to steroids. If I cough hard post op, will it really tear my sutures? How would I know if they tore fresh post op? ( I'm assuming the cough does not go away immediately like the reflux does).

Denise (dencha), interested in knowing how long were you on prednisone before surgery and what dose? Was it easy to wean off prednisone postop? Im already severely short of breath, constant wheezing and very fatigued. Should I expect double trouble because of pre NF problems?

dencha
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Date Joined Feb 2009
Total Posts : 7188
   Posted 2/24/2013 7:18 PM (GMT -6)   
Hi Cat,

Prior to my surgery I'd been on high doses of inhaled steroids (Flovent 220mcg 4 puffs twice a day) with intermittent bursts of oral steroids from time to time. Because of this, I developed adrenal insufficiency, and a side effect of that was permanent skin damage. My skin is extremely thin and bruises and tears extremely easily. I never go anywhere without bandaids, alcohol wipes, and steri strips. This will never be reversed.

Because of this I wasn't a bit surprised when my surgeon told me that my internal tissue was extremely fragile. He said that he considered reinforcing the repair with mesh, but said that "mesh can create problems of its own", so he ended up putting in extra sutures to add strength.

I was very worried that my coughing would harm my wrap, because believe me, with a lung infection and asthma I coughed A LOT and SEVERELY. My husband would do lung PT on me to help move the mucous, which was helpful. My asthma doc had me cut back on my nebulizer treatments so the medication would work better after surgery.

It hurts a lot to cough with the incisions, and the one at the left rib area was painful for about two weeks. I found ice to be really helpful. I was told that it was the port where most of the surgical took manipulation occurred. I coughed a lot for about two and a half months.

And after all that, my wrap held, and my coughing didn't ruin it. You might want to share the "extra sutures" idea with your surgeon, although I suspect he/she will figure that out.

I stayed on oral steroids for quite a while (a month?) before I was gradually tapered off. Once your reflux is stopped, your lungs will be able to heal. When healing progresses, I expect you'll be able to taper without the trouble you're having now.

The sooner you can get the surgery the better. Your poor lungs are a mess. I know the feelings you're having. Sometimes it's just too exhausting to even cough. You can read over my early recovery journal. In it I do refer to coughing and lung issues.

Hang in there! It won't be long now!
Take care,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

cat98037
Regular Member


Date Joined Feb 2013
Total Posts : 80
   Posted 2/24/2013 9:49 PM (GMT -6)   
Thank you, Denise, for the helpful info.

My surgeon is using vicryl mesh. I did ask him about extra sutures. I cant remember his reply to that. I have wheezed all day with no relief from duoneb, so I called pulmonologist. He doubled my prednisone, increased omeprazole and calling in Reglan. Today was the first time since November that I started regurgitating all the way into my mouth from coughing. He wants my surgery asap and just like you said, my lungs won't heal until I have it. He reassured me that he would get my lungs thru the surgery. It is a bit terrifying for me.

Regarding your skin.......wow!!! That is horrible. I had no idea that it wasnt reversable.

This forum has helped me so much. There is a lot of great advice, knowledge and experiences. Thank you for sharing with me.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 2/24/2013 10:03 PM (GMT -6)   
Hi Cat,
It sounds as if you're really struggling. Have there ever been discussion of hospitalizing you because of your lung issues? Not that I'm advocating that...I was in for about a week during one of my worst episodes and was on IV steroids.

Have they ever discussed the fact that the steroids might be creating some of your GI issues? Oral steroids are very hard on the stomach. Do you have gastritis? I always found when my stomach kicked up with inflammation, my reflux would get worse, which would create horrible lung issues.

Get that surgery behind you, so your lungs can begin to heal.
Hang in there!
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
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