Welcome to Healing Well! You're definitely in the right place. There are many like you, who've suffered with reflux and even aspiration into the lungs. Hoarseness is also typical.
Have you seen a GI doctor? What amount of Nexium do you take, and when? Have you had any testing done? If so which testing is it?
Obviously if you've needed a dilation, you've had reflux for a while. Do you elevate the head of your bed 7-8"? That helps keep things in your stomach. Some here with very bad reflux actually have slept in a recliner to help keep the acid where it belongs.
Once acid starts hitting the lungs, it's an issue that really needs attention. You can do permanent damage to your lungs if you ignore the problem and allow it to continue without stop. I assume you're already watching your diet and staying away from triggers. This sounds more like an LES valve that isn't working to hold the acid where it belongs.
It is time to make an appointment with your GI doc, or even consider a second opinion if you're not getting satisfactory care from the one you're seeing. One option that is out there for people whose LES is allowing regurgitation of stomach contents is the Nissen fundoplication. I had it done four years ago and have had excellent results. It is considered the "gold standard" for preventing reflux. It has been done for over 50 years, and over 15 years laproscopically. Keep it in the back of your mind as a last resort treatment...a kind of light at the end of the tunnel if you can't find relief via medications and interventions. Here is a link to GERD treatments that you might find helpful:
Also, please read this document about the correct way to get the most out of your PPI (Nexium):
Glad you've joined us. It's definitely the place you should be! I'm sure others will be by to greet you and share their own experiences.
Hang in there!
Nissen Fundoplication 2/09
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