Eosinophilic esophagitis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lilacs
Regular Member


Date Joined Jan 2013
Total Posts : 23
   Posted 3/12/2013 10:44 AM (GMT -6)   
I have been having troubles for year now with vomiting and weight loss. Finally, MD did endoscopy. I saw her today and she said I had the above.

I am to go on drug, Prednisone. Anyone hear of this disease?
Female age 65. Dx acid reflux, 8/12. On Prilosec for GERD. Sucralfate for nausea. Gallbladder removed 9/12. Had weight loss going from 108 to 97 lbs in nine months time. Weight now stabilized. Height is 60 inches.

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 3/12/2013 1:08 PM (GMT -6)   
Hi Lilacs,ive heard of this,its a allergic reaction to something you may be eating or breathing in,which causes your esophagus to become inflamed.If you can find what your allergic to ie.dairy or wheat you can eliminate that from your diet.Prednisone is a drug to treat allergies.A surgeon i seen recently discussed this with me,saying he thinks i may have the condition.Im getting tests done soon. Hope you get it sorted out! Barry

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 3/12/2013 2:37 PM (GMT -6)   
Hi Lilacs --
 
EoE, by itself, does not cause vomiting and weight loss.  Its most obvious signs are remarkably similar to heartburn, although if you have both, the symptoms are different.
 
I encourage you to take some steps on your own, and there are some things you can do while you're waiting for your next appointment.  Don't be afraid to see another doctor if you don't feel your current one is helping you.  Your current state of health is not something to be allowed to continue without further intervention...beyond Prednisone.
 
You may get something from the two threads linked below.
 
-Bruce
 
 

Lilacs
Regular Member


Date Joined Jan 2013
Total Posts : 23
   Posted 3/13/2013 9:06 AM (GMT -6)   
I will admit I haven't made exhaustive study of EoE like you have.

I did see something that at least in children they can have vomiting and failure to thrive.

I would not give up on GI MD yet. I have only seen her twice--one for endoscopy and once for follow up.
Female age 65. Dx acid reflux, 8/12. On Prilosec for GERD. Gallbladder removed 9/12. Had weight loss going from 108 to 94lbs in one year time. Nausea and vomiting.
Height is 60 inches.

DontStealMyBacon
Regular Member


Date Joined Jan 2013
Total Posts : 186
   Posted 3/13/2013 2:14 PM (GMT -6)   
I was going to link the post I created on EE a while ago, but it looks like Bruce already did.

I have not heard of Prednisone, but every single specialist has a very different treatment method for EE. I was put on Flovent and was put on a heavily modified diet, as you can see on my extended post.

You can read the full post, but to put it in a short statement, after a couple years of taking Flovent, restricting my diet, and repeating endoscopies, my EE is under control and basically cured, as long as I continue to avoid all of my allergies, which is a lot of foods. My EE is under control, but I still feel a lot of pain from GERD and LPR, which all the doctors I have seen have been unable to treat. I asked my EE specialist if all patients with EE feel no difference when they get their EE under control, and she told me that each patient is different and that there basically is not enough information known about it yet.
Right Temporal Lobectomy 4/5/12

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1171
   Posted 3/14/2013 4:42 AM (GMT -6)   
Bacon, I have a question with EE, do you ever notice stress makes it worse? Or physical exercise?

Also when eating the allergic foods, does the pain come on suddenly or is it more of just a constant pain? How long does it usually take to settle down once you elliminate that thing from your diet?

Sorry for all the questions, just trying to figure out whether I may have it, I may try elliminating some things from my diet. It feels like my esophagus is constantly inflamed and the only thing that soothes it is just sit still and relax. But I end up doing this for most of the day. Luckily I have a desk job and like only 5 minutes from my work.

Post Edited (Andy1986) : 3/14/2013 5:20:55 AM (GMT-6)


DontStealMyBacon
Regular Member


Date Joined Jan 2013
Total Posts : 186
   Posted 3/14/2013 7:13 PM (GMT -6)   
Thats fine, questions are great.

When it comes to allergies, I've been avoiding dairy products for years because I cannot digest it and it makes me nauseous. Other than that, I ultimately do not have real allergies that people refer to. Before my allergy test, I basically had all the foods that came up positive on a daily basis, including nuts, with no visible reactions of any sort. Evidently the cells in my throat have allergic reactions to all of the foods that came up on the allergy test, but only those cells in my throat. I can digest all those other foods normally, and I have none of those 'reactions' that people normally talk about.

I haven't ultimately noticed an instantaneous relationship between stress and symptoms, but I'm basically stressed all the time. So no, I haven't noticed a relationship, but I'm always stressed and my symptoms are always bad. :/

Do I get pain from physical exercise? Let me answer that question with an entire post. I literally wrote up an entire post because I get an extraordinary amount of pain and other symptoms from exercise, to the point that I am completely inactive in my daily life. Heres the post. For some reason, I got zero replies, but thats probably just because not many patients or doctors have or acknowledge it.
http://www.healingwell.com/community/default.aspx?f=45&m=2622440

Technically, my EE is cured and my last two endoscopies both showed that I have no eosinophils in my esophagus. Unfortunately, from the minute I was told that my EE was cured, I still had all of the pains and symptoms that I had been trying to fix. So for the past two years since that last endoscopy, I have had no EE, but still a giant problem with GERD. I haven't ever thought about it being stress related, but I have concluded that restricting my diet to avoid creating/provoking eosinophils gets rid of my EE but does not help the rest of my GERD symptoms, which continue to be a major problem for me. So I still get constant pain from reflux and just about always have acid in my mouth, melting my teeth, causing me to choke while I exercise/climb stairs, etc. People tend to not comment on my long posts because they cant relate to me or they simply have no suggestions for me. Thats probably a lot more text than you wanted, but there ya go.
Right Temporal Lobectomy 4/5/12

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1171
   Posted 3/15/2013 4:10 AM (GMT -6)   
Thanks, I've read your post and it indeed sounds awful. I get the choking feeling too when exercising although its not so bad that I cant just push through it, my actually breathing is usually fine but my throat feels tight giving the sensation of choking. not sure if thats the same as you.

I also dont usually 'feel' any reflux as such, just this tightness and choking with occasional pain and tightness in the lower esophagus too.

My ph test showed some instances of reflux but not abnormal, and during my barium swallow he had me roll around and cough, and said there was absolutely no reflux.

Glad your EE has been cured, and that it is possible to cure! At least thats one thing.

I tried a non-dairy diet last year, ironically this was just before all my problems started. Problem is I just dont know what to eat if I go non-dairy or non-gluten because so much of my diet is either one or the other.

Lilacs
Regular Member


Date Joined Jan 2013
Total Posts : 23
   Posted 3/15/2013 5:16 AM (GMT -6)   
Andy, I feel much the same as you. At this point I don't want to go on diet for allergies. My problem is intermittent. I go for weeks without vomiting and then I will vomit in morning 5 days a week. How would I tell is a diet is helping me and not just a coincidence. i imagine the same is true with drugs. How can I tell if a drug is helping. I figure I would have to go six months before I could tell.

I do feel some tightness in throat.
Female age 65. Dx acid reflux, 8/12. On Prilosec for GERD. Gallbladder removed 9/12. Had weight loss going from 108 to 94lbs in one year time. Nausea and vomiting.
Height is 60 inches.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 11:52 AM (GMT -6)
There are a total of 2,973,252 posts in 326,071 threads.
View Active Threads


Who's Online
This forum has 160950 registered members. Please welcome our newest member, Lishy.
436 Guest(s), 9 Registered Member(s) are currently online.  Details
SmilingDaisies, mysweetpanda, therearemiracles, Girlie, Darla, laudie5, Old Mike, quincy, straydog