Low grade nausea for the past 2 years. Ideas?

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Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 3/20/2013 7:47 AM (GMT -6)   
Hi all,
 
I have a low grade dull nauseous ache in my entire gut that can't readily be attributed to anything, after a series of GI and other tests. It started a couple of years ago, while on PPI therapy for GERD and though my PPI has been changed and even paused for a week, the discomfort still remains.
 
Some days are better than others. I am on a GERD diet - that is, without trigger foods.
 
Anyone experiencing this?
 
Many thanks,
 
GM


Baza
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Date Joined Jan 2011
Total Posts : 513
   Posted 3/20/2013 8:05 AM (GMT -6)   
Hi Gastricman,ive nausea aswell,its been there since i was diagnosed with acid reflux 6 years ago,worse ever since ive had nissen which has obviously not resolved my symtoms.It just seems to be part of this illness and is not fully understood. I feel worse if i dont take a ppi so its related to acid i think.
Do you use any anti-nausea meds? Im taking domperidone at the minute which helps a bit,still feel sickly though. Have your doctors any ideas what might be causing your nausea? Barry

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 3/20/2013 9:14 AM (GMT -6)   
Hi Barry,
 
Thanks for responding.
 
Here is how it all came about. Around 2+ years ago, I started getting sick, as in nausea, chills, vomiting, diarrhea when I would eat out at various restaurants. At first. I thought it was coincidence. It was all intermittent until last year when I became sick again only after eating out. My docs thought that the PPI (Protonix at the time) was making me more susceptible to gastric infections - see here:
 
 
When I "recovered" from the last two bouts of this "symdrome," I never felt totally well again. At that point I was switched to Dexilant, 60 Mg, QD due to the GERD after another round of esopageal manomety and pH/impedence testing indicated that I needed a stronger, longer lasting,  PPI.
 
Something was making me feel lousy, leaving me with a low grade, dull, nauseous ache in primarily in the lower abdomen. I still have an appetite, but really just want to lay in bed. I have had an upper and lower endoscopy, MRI enterography, stool samples, among other tests which came back totally normal. No h.pylori or c.difficile.
 
The only thing that came back positive was a hydrogen breath test for small intestinal bacteria. I was placed on a very potent (and expensive!) antibiotic, with no luck. In time, the nausea reduced and I went on with my usual daily life and just waited for the day to end so I could crawl into bed.
 
2 weeks ago, the discomfort became somewhat more pronounced, for no apparent reason. I have not been dining out and have been watching my diet so as not to introduce trigger foods, as mentioned above. My doctor prescribed 8 Mg of Zofran PRN and that really did not help much, so I stopped it.
 
Very weird. I just feel lousy and can't pinpoint the cause. My GI doc is smart, but on this aspect, clueless.
 
I will call him again, but I just want to see if anyone else is going (or has gone) through this.
 
GM

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 3/20/2013 10:06 AM (GMT -6)   
Hi,thats definitely a strange one gastricman,you would think one of those tests youve had done would show something.If youre feeling symtoms after eating i wonder could it be an allergy which is very hard to diagnose? Maybe youve been down that road? Barry

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/20/2013 11:18 AM (GMT -6)   

Some medicines have specific instructions about how to take them. This is because they work better when taken correctly. These instructions can include getting the right dose and special instructions for preparing the medicine. Make sure you follow any specific instructions given to you by your prescriber or that are in the Patient Information Leaflet that comes with this medicine.

If you are having problems taking this form of Zofran, you should talk to your prescriber . They may be able to give you advice on other ways to take your medicine or other preparations that are easier for you to take.

Also there are other choices and what worked for me was Compazine throughout my  chemo. JMHO

Sorry to read you are feeling nauseated as I know that is miserable.

Kindly,

Kitt


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 3/20/2013 12:12 PM (GMT -6)   
Hi Kitt,

Taking the Zofran is easy, except that it doesn't work for me. Seems to be more intestinal.
I wonder if my problems are comorbid, like GERD and IBS. I will have to look into that further.

Thanks,

GM :)

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 3/20/2013 1:34 PM (GMT -6)   
I am sorry that you are suffering so. Maybe you need complete detox since so much alien stuff is in your system. You never know what would be the side effects of what you are taking.
Wish you the best.

Tinlou
Regular Member


Date Joined Jun 2010
Total Posts : 395
   Posted 3/20/2013 2:25 PM (GMT -6)   
What are your trigger foods? It could still possibly be something you are eating but you are not correlating the two yet. Have you been tested for celiac? Maybe you have and it came back negative, you could still be gluten sensitive. I am and i can't tolerate any barley,wheat or rye anymore. Do you chew gum a lot? That too made me nauseated and often made me run to the bathroom because of the sorbitol in it. You may need another or a different PPI since they too can cause nausea. Strange, since its the one thing i always had and was trying to get rid of and the doctor would give me something that made me even more nauseated!! It is so frustrating trying to find the right med for GERD?Gastritis but don't give up. I take a otc zegerid dailly and it works better than anything I tried without the anxiety. Best of luck to you!

gerd_hater
Regular Member


Date Joined Oct 2012
Total Posts : 322
   Posted 3/20/2013 3:04 PM (GMT -6)   
Hi Gastricman,
Pardon me for the offtopcid, but do you have any recommendations for GIs in NYC ? I have myself been looking for someone.

GH

Gastricman
Regular Member


Date Joined Jan 2013
Total Posts : 294
   Posted 3/20/2013 3:43 PM (GMT -6)   
Hi Tinlou and GH,
 
Tinlou -
 
Negative for Celiac and I do not regularly chew gum. Known trigger foods have been eliminated.
 
GH -
 
Yep.
 
 
I have heard that Drs. Turner, Wan and Crawford are great - you can call with your specific diagnosis and check.
 
GM :-)

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 3/20/2013 6:25 PM (GMT -6)   
Hi GM,

I've always had nausea as a "main feature" of my GERD. I have mild gastritis also, and am never sure whether the nausea belongs to the GERD or the gastritis. Two things have helped a lot in the last 6 months - acupuncture improved my nausea a lot, and although it will reappear during a flare up, I can have long periods of time without it now. The other thing that has helped is milk thistle. I'm not sure why it helps, but it helps a lot with reflux sensations (I don't know if it's helping any actual reflux but it relieves the feeling of drinks crawling back up!). Milk thistle is a mild prokinetic, which may be why it helps. So it may not help you if Reglan hasn't. I didn't realise just how much the nausea impacts until it stopped for a while!

MMM
GERD (over 2 years)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

gerd_hater
Regular Member


Date Joined Oct 2012
Total Posts : 322
   Posted 3/20/2013 11:19 PM (GMT -6)   
Thank you, GM! I shall try to see Dr. Crawford.

GH
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