Welcome to Healing Well! So sorry to hear you're struggling. Do you have a good Family doc or PCP? You mentioned a referral at the beginning of your post. I wonder if you've been back. A good PCP can help you sort out all the specialists and can coordinate your care. This can make a very big difference to your outcome. If you haven't been back lately, it might be good to go to your PCP with a list of questions and see what he/she has to say about your struggles.
Hopefully somebody will be by who can offer more ideas and support! Glad you've joined the forum...it's a great place to get support and information.
Nissen Fundoplication 2/09
"Whatever you fight, you strengthen, and what you resist, persists.”
“Worry pretends to be necessary but serves no useful purpose”
“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”