Daily Support and the Saga of Acid rebounders or GERDers, part 2.

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Chris K.
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Date Joined Mar 2013
Total Posts : 197
   Posted 4/6/2013 7:51 PM (GMT -6)   
 
Let's keep this going.

Love all of you. You know who you are. Ativan is really doing a job. I feel completely normal emotionally after another dose of it. I just need it until tuesday.

I just realized that my gerd symptoms are better if I stay away from gluten. Has that been anyone elses experience?

Ej, seems like you are going thru a tough stretch as well. You are in my prayers as well.

Post Edited (Chris K.) : 4/7/2013 1:33:36 PM (GMT-6)


inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/6/2013 8:23 PM (GMT -6)   
I have not experienced the gluten free thing but I would not be surprised I have read so many things online and they say low carb diet or gluten free is really the best way to go because carbs tend to take longer to break down, so I decided to go on low carb, low fat, low everything basically with everything in moderation, I just bought this book called dropping the acid by dr. Koufman, somethings were insightful O: I think its funny some stuff in there make sense sometimes I feel like apples don't sit well with me she said to limit them to 4 times a week including red delicious can you believe that? Haha some natural gluten free grains are millet, quinoa and buckwheat, I am deciding to still have pancakes but buckwheat instead will let you know how it goes. :)

I am glad you started this forum again haha! we need it!
I am glad you are doing better, I really didnt want see you suffer.

I am still combating mine but honestly if I think about it too much I am going to miss out on life you know? I been going to gym, and doing so many things so I do not have to think about it but tomorrow we are going food shopping so I will try and modify my diet more salads and less bread haha.

I also need to eat less, hardest part is because my stomach is always full I do not when I am full haha.

you are in my prayers as well. :)

I really look forward to our talks as well, sometimes I get all happy just to see a respond from you guys, you all have meaning in my life thank you for that!

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/6/2013 8:30 PM (GMT -6)   
EJ I do not want to jinx it but wow can I say that the aloe is helping just had some before my tea and did not experience any heart burn without chewing my gum so tomorrow I am going to go on gum free day and take the aloe juice before all my meals and see how it goes they said 2oz is the way to go so I am guessing thats 8 table spoons in a day, will u know how my experiment goes. I also would invest in some gum like trident cinnamon one, its the best and it doesn't harm your teeth it has to have the ingredient Xylitol in it to knw it wont harm teeth

Post Edited (inpinkagony) : 4/6/2013 7:34:01 PM (GMT-6)


Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/6/2013 8:33 PM (GMT -6)   
Roah, you are young and you have your whole life ahead of you. I wouldd take burning pain for 30 minutes after each meal if I can be guaranteed a life long enough to see my own 8 year old daughter goto college and get married. I think you are lucky to have learned a lesson of a healthy diet at your age. In the long run, you'll live such a better life. This thread has been my oasis as well. Thank you for resting with me.

natitc
Regular Member


Date Joined Feb 2013
Total Posts : 48
   Posted 4/6/2013 8:50 PM (GMT -6)   
Chris, I have a prescription for Ativan. You think I should take it? I have so much anxiety right now that even my GP recommended I see a therapist. I've lost my desire to eat. When I do eat, I get full really fast. My has me depressed is the weight I'm losing every month. I can't eat 1500 calories a day. My frame has now shrunk, my leg muscles are weak and I'm getting these twitching all over my body. I read somewhere that the body can go into starvation mode at this point. Did the Ativan really make a difference with you? Does it make you sleepy?

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/6/2013 10:22 PM (GMT -6)   
Nat, I have been on ativan for less than 24 hours. So please take what I say with a grain of salt. I have been taking half a pill before bed and half pill early afternoon.

The pill I took before bed took away my anxiety almost immediately. That made me want to do things and I ended up staying up enjoying some tv shows. When I fell asleep, I ended up sleeping thru the night for the first time in nearly 1.5 months. When I got up, I felt slightly lightheaded and my anxiety was back. I wanted to take the other half but did not because my doc told me that it can makeyou drowsy and I had much driving to do. By noon, my anxiety was out of control and I started to feel depressed. After I did all my driving for the day, which was like at 3, I took the other half and within minutes, my anxiety went away and oddly enough, I craved food for the first time in a while. Its little after 8 now and I am feeling ok.

Bottom line: it seems to help me with anxiety quick and fast. It did not make me sleepy but once I was asleep, may have controlled my anxiety, so I didn't wake up, which is exactly what you want. That's been my experience. Doctor did recommend that these can be addictive so warned me not to use it for more than 2 weeks.

You sound terrible and to be honest, you need help just like me. Its easy for people to say oh don't worry or let it go but sometimes, I think we can use the help.

natitc
Regular Member


Date Joined Feb 2013
Total Posts : 48
   Posted 4/6/2013 10:46 PM (GMT -6)   
So glad it has worked for you and that you got to feel "normal" for a day. How many mg. were you prescribed? I have .5 mg. I also got a prescription for Peractin for the appetite. Are you still experiencing stomach pain?

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/6/2013 11:04 PM (GMT -6)   
Chris. Sorry I disappeared all of sudden i got heartburn and the anixety kicked in, you are so right I do have my life ahead of me but I am just such worry wort you know every time I feel the pain the "the feeling of omg whats happening inside my body and how long will it be before it becomes serious type of thoughts" Yeah the sad thing it happened to me so young and I had to give so much sometimes I think ugh life is no fun anymore you know because of the 20"s are suppose to be your funnest times, I already given up on some dreams because this illness (becoming a baker or nutritionist) but since I can't have certain things there is no point, ugh sorry to sound negative all of sudden its one of those days, this illness makes me feel like roller coaster sometimes haha.

But I do believe you will see your daughter graduate, in my heart I truly do, you will be fine hang in there, I was gong to ask what symptoms have disappeared so far? glad to hear your doing well.

Nat: oh my goodness you seem to be having hard time my friend, what are you currently feeling like, and let me tell you about the food thing, you really have to slowly introduce your body to meals again, I would start with juicing or pureed foods, then built up see how that goes, but stay clear of trigger foods, sometimes it takes forever to get your appetite back, my prob at mom is the constant heartburn, I think I am cave in and see my doctor for 24hr but I don't want to make my dad mad by abusing his insurance, I feel bad his rates are already going up, so sad.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/6/2013 11:04 PM (GMT -6)   
I was prescribed 1mg tablets so I am taking 1mg per day (divided into two .5mg ).  
After the triple therapy for h.pylori, I tried to stop takin Aciphex, but after 1 week gave up because the discomfort to the upper portion of the stomach/esophagus and throat was returning (acid rebound?).  I have been back on Aciphex for about a week and it's getting better again.  Aciphex always did help with the stomach discomfort but I can tell from my bowels that when I am on it, I don't digest food that well.  So it was either comfort and subpar digestion or discomfort and decent digestion.  But with discomfort, I was starting to eat less too.  That's why I decided to go back on Aciphex and also try Ativan.  Yes, prescription drugs are scary (and pushed by evil pharmacuetical companies) but right now, for you and me, how we feel is more important to our sanity than anything else.
 
This is for everyone.  Go to youtube and watch this commercial for intermezzo, which is a drug for middle of the night insomina.  I was pretty close to taking these for my insomnia.   
 

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/6/2013 11:20 PM (GMT -6)   
Roah, I think one of the words I used the most on this board is "rollercoaster".  It truly is.  One minute you think everything is going to be ok, because you eat something and it doesn't feel that bad and then later that day, you eat something else (possibly a little more than you should have because the meal earlier gave you hope) and then all of sudden, you actually feel nausea and the anxiety kicks in and you feel like you have some crazy terminal condition that the doctors can't find.  That's been my story for the past 2 months.  And I know you know exactly what I mean.  Yeah, I didn't mean to invalidate what you are feeling just because you are young.  You are absolutely right.  You should be having fun without a care in the world.  But I am kind of paying the price for that right now, thinking that I was invincible.  Just hang in there and you will figure out the right diet for yourself.  It's going to take a lot of trial and error but it will happen for you, girl.
As far as the symptoms go, once I started the aciphex, the intensity of the lump in throat feeling and the general discomfort in the stomach after meals have gone done noticeably.   Unfortunately, due to all the other stuff that happened (h. Pylori, the antibiotics regimen, doctors initially thinking I was a hypochondriac, the ultrasound and now the liver spots and the CT scan), it's the non GI issues that bother me, such as the insomnia, depression and the anxiety.  Well, it won't be too long before I have some answers (or maybe not, my doctor cousion did tell me that it is possible that after the CT scan, they could still be unsure if the spots are benign or malignant so they might want to do an MRI.)
 
Nat: I forgot to give you this advice.  It's kind of what pink said already but just because you want to put back some weight so bad, do not overeat just because you might feel good one day.  Be happy that your appetite is back but go slowly.  I had a week where I thought my appetite was back to normal so I ended up chowing down on tuna salad sandwiches and giant burritos.  Big mistake.  I was miserable the next week because my stomach just wasn't ready.   

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/6/2013 11:52 PM (GMT -6)   
Oh no chris I did not feel like you invalidated me at all, never think that but I was laughing so hard at your post because we both are like, what is going on fine one minute and worse the next. I know that's exactly how I feel, its comforting to know that I am not they only crazy one out there, my family thinks I am so crazy but I can't help it I am worry wort LOL yes it is definitely a roller coaster but I can only take it one day at time, I think that goes for both of us, I am just doing a lot of reading on what I should shop for tomorrow you know? The thing that makes me like O: the most is the combination of symptoms this disease can give you haha. I swear everyday its new thing, but honestly for me the thing that made everything worse was the PPI so going off it now, I got a lot whole new set problems, before it used to be just discomfort in my stomach, and the PPI didn't do anything to that. I think I had GERD but I wasn't aware of it at the time until I inflamed my esophagus but being on ppi brought upon new symptoms tightness in chest and dyspepsia and so on... yes I will def try and experiment as much as I can. I just want to find job cause I am not going to lie shopping for my special life is hard. LOL I read a lot now instead of going out, it's my new hobby makes me go less insane and little bit more alive, and I think sometimes people need to be on drugs, I think in your case it helps. I was going to say do you still suffer from the pylori? I heard 2 months of munuka honey kills that stuff, maybe you should look into that. I know some other stuff that could help but I forgot, this all I do is read online about thing, but you know like EJ said sometimes whats good fro you naturally is not always helpful in my case I think its kind of true. LOL

Goodnight my friend I need sleep this day off looking forward to your response tomorrow :) sleep well!

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/7/2013 1:40 AM (GMT -6)   
Honey, I am home!
I got your message and found back home, roah.;)
So i move part of my message there to here.

I had to take zantac 150mg in the evening(75 last night after 19 days of drug free T.T) again because gaviscon helped only a little. I had a mild dry cough, too. Sigh. I don't know what exactly triggered it but after dinner I suddenly started to feel not so well. Maybe i had too much. In retrospect, I confess i freaked out when i weighed that morning i found i still weighed my bottome weight, which is 7lb loss and i must have overeaten inadvertently .
I don't know but gaviscon seems to make a lot of noise inside for me. Not quite working smoothly as i hoped...
Well, when i get all those other stuff tomorrow i will let you know how it works out for me.
Roah, i really hope aloe works for me. How i wish!

Long time no see natitic!
Remember me? you are my menopause buddy, too! :)

Good night, Roah(such a pretty name. did i ever tell you that?)chris, gail, vivian(has she found home yet?) and nat!
All my good friends. Mwah!

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/7/2013 6:36 AM (GMT -6)   
Morning everyone,
I am home too Will :).

Chris: you sound better, I am glad. Don't worry about addictive to any pills yet. I think we should try to get and feel better with drugs first and when your strength is back then you can wean yourself off the pills. My mom is on the 2mg Ativan for over 40 years. You definitely will see your daughter goes to college and get married but you have to go through her teenager years first!!!

Pink: it's good that you are health conscious at such a young age. I am trying to do this to my daughter (20 years old) and I don't think it's working. What worry me is the drinking that goes on in the college. I remember when I visited her one time, I found so many empty bottles were on display at one corner of a residence house eyes . My brother in-law was an alcoholic. He died 1 1/2 years ago of colon cancer at the age of 50 so this is why I feel very strongly about the alcohol.

Nat: Please try to take it slow. I went through a very rough period myself too: lost a lot of weigh, no energy, anxiety through the roof.

Gail: you must be still sleeping :).

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/7/2013 7:37 AM (GMT -6)   
Wow, I am finally here.  I started another thread also, so now I need to delete it?????
Yikes, not sure how to do that?????
 
Glad I found yu all....;)
Chris,  so glad you feel a little better with the Ativan.....I am sure when this test is over, your anxiety will cut at least in half......I feel in my gut that you will be fine and mighty relieved! I have been constipated again, so started the prune juice again!.....oh I feel horrible when this happens.  Gas pains, and my lower back just kills!......finally went this am but not like it should be.  So I will be taking 2 doses of PJ today for sure.   Odd how being bound up, your back can hurt like that?
 
Nat, about the weight.   When I lost weight after my husband passed (from not eating right) it took me a good year to gain back what I had lost.  Evidently it is easy to drop weight but a BI---H to gain it back!.........so I know what I am facing now.  So glad I did not throw out my thin jeans....can hardly wait until they feel too tight!
 
 have aloe juice, wonder if that would help me also????  I have not tried it yet, but think I will.
I am taking my calcium/magnesium supplements from Pro-Labs the past 3 days and seem to have more energy.  
Will post again after my tea, lol
 
 

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/7/2013 7:39 AM (GMT -6)   
 
I deleted the thread I started (part 2)  Yippee  ;)

Snowinsummer
Regular Member


Date Joined Jan 2013
Total Posts : 40
   Posted 4/7/2013 9:02 AM (GMT -6)   
Hi Chris,

Gluten and dairy protein seems to make my reflux worse. Note that its not lactose, but whey and casien, so even cultured dairy products like yogurt are out. The BEST thing I did was to start a food journal where i wrote down everything I ate and drank and any change in symptoms. This would help you understand if it's gluten that's causing you problems or if its carbs in general.

I think most of us feel that we have no control over the stupid condition, but by keeping a food journal I felt that it gave me more control and power! It definitely put me in a better frame of mind!

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/7/2013 9:45 AM (GMT -6)   
Good morning, lovelies!

How I look forward to all our conversations. :)

Vivian: Yes that's college for you it's sad but that's what happens, I really do hope she finds her way, don't worry to much though if she has mother like you, I know she will be fine and when she gets older she will probably stop all of that and just be an occasional drinker like the rest of society believe me, I do miss alchol sometimes like getting cocktail with friends since I just turned 21 and about to be 22 in august but once you give up something you do not notice so much unless you are in the situation with other people that's where it gets hard for me. But sad to hear about your brother, I swear cancer is like the enemy of America, my uncle died as well from the one that affects pancreas. So I can relate when it comes to loosing someone before the even enjoyed their 60's I am really sorry we both had to loose someone. :(


Gail: welcome home my friend I hope you are doing well today, I am so happy we are all here again.
now for the aloe I do not know if it helps but I am testing out today, so any time I feel the heart burn I shall use it honestly I do not know how it works if its before meals or after LOL.
I am going shopping today kind of nervous on what to buy because most of the time anything I eat bothers me, its sad. :( so we will see now I really do not care about the burn I just want to heal u know. Seriously my biggest problem is if I do not have enough bowel movements than I will get more heartburn, I remember last week I was fine today I been constipated for 2 days and if I am constipated for its not good I hope the pysllium husk helps.

EJ: thank you, it rhymes with Noah that's how you say it but like R in the front and its Arabic I am from Sudan but I wasn't born here just came here when i was 7 years old so I am pretty much American now hahaha. good luck with trying all the remedies and I hope they help.

Summer: wow you are on really strict diet. I was just going to get yogurt because I heard the probiotics in it keeps you regular but maybe I should opt out? what else did you give up?

Post Edited (inpinkagony) : 4/7/2013 8:49:54 AM (GMT-6)


VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/7/2013 10:28 AM (GMT -6)   
BTW, I felt a bit better last night so I didn't take Zantac. I sprayed the Rescue Remedy and read a good book before bed and it did get my mind off from listening to my body.

Pink: Thanks. Deep down I know my daughter will turn out fine and yet I do worry about her. I just don't like that she is 6 hours away from me shakehead

Chris: maybe you can change the title of this thread to: Daily support. What do you guys think?

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/7/2013 10:40 AM (GMT -6)   
Vivian: see I need to do that, I need to stop listening to my body like Chris said its like worry wort roller coaster you can't focus on your life sometimes, I am glad you felt better and WOHHOOO NO PILLS haha what did you have yesterday?

I think that's great idea, I love talking to all of you guys, ouuu what did you read I need suggestions. Have you read saving cee cee honeycutt its really low in reading level but such charming book, I loved it just finished that and please have faith in her, she will be fine, you are her mom after all, is she junior? I am junior right now. are you on west coast as well?

I just had little bit of heartburn after oatmeal, Lol wow does my body hate me, I chew the gum and now I am fine. I wonder what's triggering it is it the honey or something maybe sugar? Oh you should read into a book called dropping the acid by dr. koufman some things were insightful.

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/7/2013 11:48 AM (GMT -6)   
Pink: I live in Toronto, Canada. It's still cold here and spring doesn't want to come! I like reading silly romance books by Nora Roberts. I was going to get this book: Gut solution from the library, maybe I will go later once my cooking is done. Oatmeal can be hard to digest, why don't you stop eating that and see if there is a difference. Yogurt was like that to me. BTW, if you want to try buy greek yogurt, it's very good for you and yet I can't stand the taste. My daughter is in her 2nd year.

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/7/2013 11:52 AM (GMT -6)   
I also heard that oatmeal is hard to digest. I love greek yogurt, the kind that john stamos eats on the ad, ha ha.

Snowinsummer
Regular Member


Date Joined Jan 2013
Total Posts : 40
   Posted 4/7/2013 11:58 AM (GMT -6)   
Hi Pink,

My diet isn't that restricted. I eat fruits and vegs, eggs, nuts and seeds, and meat. I drink almond milk instead of cow milk, and have mainly quinoa as a grain. It just takes more planning because nothing is prepackaged. And dining out can be a challenge. It's a quasi-low carb, quasi-low acid diet. But I splurge now and then! I have made some great gluten free cookies and last night I made a flourless chocolate cake that was divine!

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/7/2013 12:10 PM (GMT -6)   
All of you ladies,
Thank you so much for always listening to my rants,

Gail: Yeah I think maybe that's whats causing my dyspepsia to act up maybe since I started eating that I am not havng enough bowel movements I feel like my food is just sitting there, I am try and get some yogurt like cultured one that promotes regularity. Like Vivian said maybe , greek would be the best choice?

Viv: Yeah I think thats what's causing blockage or something, I really need to cut down on the carbs. I think they don't move like how I want them too, and Yes I love romance ones but I haven't heard of her any particular book you can recommend. The gum thing really helps me the most. I feel like we all can indulge on what we want from time to time, its all about managing so I decided stay healthy and go off track once in while LOL. Oh Toronto is still cold? I am suppose to come with the family and visit if we do not end up going somewhere else lord knows I need vacation this year, and haha your daughter is the same age as my sister, my sister sahar is 19 she is studying psychology. I hope you get some nice weather soon. I will see how the yogurt goes did you get any heartburn from it?

Summer: WOW sounds so yummy, I wish we lived close I would came over and ate all of that haha, and chocolate didn't do anything to you, well I am going shopping and I will try your gluten free, and dairy free approach and yes almond milk is what I drink as well I get the so delicious. brand. yes dining out is my biggest challenge I haven't ate out in forever I think sushi and soups should be okay right? Oh you mean you cook the food instead of getting like gluten free products packaged? you do have to share the recipes. thanks for all the suggestions. :)

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/7/2013 12:48 PM (GMT -6)   
I read somewhere online sugar can increase acid production? Haha I love sugar should I restrict my sugar as well LOL.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/7/2013 2:53 PM (GMT -6)   
Good Afternoon, ladies.

Viv: Yes, this thread has become so much more than just acid rebound and is an integral part of my daily life. As such, I took your suggestion and changed the thread title.

A few days ago, I had a bowl of cereal that was mostly made from wheat with soy milk and I recall having bad bowel movements in addition to bloating. What do I know but based on the fact that all these baked goods and pancakes, etc. also seemed to have given me problems in terms of b.m., I am trying to go gluten free right now and so far, the bm has improved. Who knows if it's that or the decrease in my anxiety due to Ativan? Who knows? But until proven otherwise, I am going to go gluten free and see how that goes?

Back to ativan. Oh the ativan. So I took 1/2 pill last night after suffering from some anxiety during the day and man, it immediately took the anxiety away. I stayed up again until past midnight watching tv and doing things that I generally enjoy doing. I fell asleep and was woken up around 7 (yeah slept through the night again) by my daughter who wanted to know if she could watch tv, I nodded yes and tried to go back to sleep but all of sudden all my anxiety came flooding back, paralyzing me and making me afraid in general. I got out of bed and took my morning dosage of ativan and the anxiety disappered within the next 5 mins. When the anxiety subsided, it was like my tiredness from not sleeping for the past two months took over and I slept for another 4 hours. I just woke up at 12:30PM and feel like I haven't felt before it a long time. That is, I feel like I got a good night sleep. Bottom line: Ativan works wonders for me. However, when it leaves my system, it brings back the anxiety almost twice as bad. Anxiety rebound!! Haha.
That's ok though, I need this until Wednesday anyway. Then I am either going to breathe again or going to need something much, much stronger than ativan.
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