Acid Reflux Question

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Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 4/12/2013 12:04 AM (GMT -6)   
Hey everyone.

Was hoping if anyone could answer my newbie question.

I was diagnosed 7 months ago with GERD + a stricture in my esophagus (had to dilate). Changed my diet to low fat foods and been eating healthy and dropped my weight from 180 to 170 lbs @ 6'0, since I heard that helps.

It has been slowly getting better but I get a weird sensation/feeling at my upper stomach/esophagus level that hasn't gone away, which is making is making me go nuts.

I went to the gasentrologist a month ago, and he told me I'm still healing and gave me nexium to try, (I tried prevacid and prilosec prior to this but those two were working slowly). I THINK nexium is working better compared to the two drugs. But I do not want to be dependent on the PPIs for too long=[

But can it take this long for the esophagus to heal? Since I read those articles/reports it takes only 8 to 12 weeks. Kind of paranoid that I may have something else.

Thanks!

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 4/12/2013 12:21 PM (GMT -6)   
Welcome to the forum.

Did your doc say if you have a hiatal hernia or nutcracker esophagus? Did he have to do a barium swallow to see if you have a LES (lower esophageal sphincter) that is not closing?

Under some conditions being on a PPI could fix the esophageal irritation, but what happens when you stop taking it? That depends on what caused the problem in the first place. If the valve stays open the stomach acid will still come up. The PPI only makes the refluxate become non-acid.

Having non-acid reflux is what I had for many, many years, first while on various antacids, then on PPIs. I found Nexium worked by far the best for me.

I got my stomach to stop the reflux events by finding my specific food triggers (see many posts in the search box). But that doesn't stop acid from washing up while lying down at night.

Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 4/12/2013 3:04 PM (GMT -6)   
Hi Alcie,

Thanks for the reply =).

He didn't mention that I had them. I did not do the barium swallow, but now you mention it..I think it is not fully closing. I do sleep in a recliner chair, and do feel some irritation in that area if i don't sit up right, but what I don't understand is that the irritation is gone when I wake up in the morning...but it comes back after a meal. Missed taking nexium by a few hours today (woke up late), and I did feel a little burning sensation around that area. It went away after I took it. I do not get heartburn or the serious symptoms that some people have with GERD. The irritation (or is this heart burn?) is the "worst" symptom I'm having right now, and I take DGL, which helps soothe it. Stopped eating well known foods that cause reflux. my diet consists of low fat fish (salmon), brown rice..potatoes,

I'm just paranoid that I need to take PPIs for a long time and what it could do to my body (afraid of losing a kidney haha). Also, doesn't help that I'm a type 2 diabetic..I take the lowest dosage of metformin ER, but I been maintaining my H1AC around 5.6 to 5.8%..due to the changed eating habit from my reflux. the ONLY upside to this.

My primary doctor doesn't want me on PPIs for too long, and he's surprised I'm still on it. He said he could send me to another gasentrologist (@ Stanford University, but dunno if that would even change a thing) for a 2nd opinion. My gastroenterologist thinks its normal if you take the regular dosage for awhile (i.e 1 nexium a day vs 2-3 x 40 mg),but advises against taking more.

I thought about the Linx surgery (maybe its overkill for what I want to get fixed), but I think i may wait a few more years to see additional data, and its not available in northern California yet.

I ranted enough..thanks for answering my q =P.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/12/2013 4:55 PM (GMT -6)   
Chilifries,
 
Hello and welcome to HealingWell.  Pull up a chair and make yourself comfortable as you are going to meeting some great people here in the forum.
 
opnwhl4 (Bill), one of our Moderators has personal experience with EGD with dilation; having had 4 dilations in 4 months...........I am sure he will be along to add his wisdom to your post.
 
I wish you the best and keep on talking with us here in the forum as we support you and will do our best to help you.
 
Kindly,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 6/29/2013 3:30 PM (GMT -6)   
I hate reviving this old post..but I'm going nuts here. I did have a follow-up and did bring up a lot of questions with my gastroenterologist--whether my esophagus is closing or not, and he told me that wasn't an issue. I was put on BID 40mg Nexium for 6 weeks, and told to come back. if it doesn't feel better/heal..he plans to do something else..whatever that is.

It's been 14 days, and the increase in Nexium hasn't helped too much, except feeling more weirdness around my esophagus/chest area..like its being pushed on. Can I assume its working? I been paranoid it could be something worse..but I'm probably being too paranoid and making it worse, since they didn't find anything a year ago except the stricture. Also, I get dry/soreness around my throat due to the increase..maybe the stricture got worse..blah.

Am I jumping the gun too fast--should i give the Nexium more time..I can't even tell if its working or not lol.
And how long do you guys usually wait to get a 2nd opinion?..I'm about to give him my doc one more time--if he puts me on more meds.. I'll probably check out some one else at Stanford hospital.

Thanks,
This ranting (paranoid) fool=P

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/29/2013 10:36 PM (GMT -6)   
Chilifries


Sorry I missed your post before.

Have you had a PH study or manometry done? These along with a barium swallow can really help to understand what is going on in there. The monometry can show exactly how much pressure your LES has.

I have been through about 14 dilatons 11 of which were within 6 months to try and dilate an incorrectly done nissen. The ones I had for a stricture though had to be done a 2nd time as they didn't want to dilate it too much at once.

I have only been on nexium once when I had an ulcer and I took it for a month, but didn't really notice any difference on as far as my reflux. It does seem to heal things better than the rest though and did heal my ulcer.

I would definitely go for a 2nd opinion if your GI is stalling on s=finding out answers for you.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 6/30/2013 12:28 AM (GMT -6)   
Thanks for the reply Bill.

I haven't had any of those tests, and will see what the GI will try to do; he seems willing to do something else if it doesn't work. Can a stricture cause discomfort also? I been having slight difficulties with food getting stuck in my throat..more with the dry foods. Also sort of my fault I'm in this predicament too..he asked me if I had difficult swallowing..but I didn't think of my slight/small difficulty as an issue..maybe I should have said something. I'll wait for one more week and contact him.

And I should mention the discomfort feels worse if I move my chest forward..so I'm guessing there might be something physically wrong there..

Thanks.

Post Edited (Chilifries) : 6/29/2013 11:35:30 PM (GMT-6)


Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/30/2013 2:19 PM (GMT -6)   
In my opinion a great doc in mountain view is dr. Triadafilopoulos. His office and the other docs there are quite impressive.

Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 7/3/2013 1:28 AM (GMT -6)   
Thanks. I think I may need to consider another GI after today.

My current GI did perform another endoscopy..and behold the stricture was back..no wonder I felt like poop=[. He said I could go back to the 40 mg nexium, but nothing else, except control my diet..and take my medication. bleh=[

Also, has anyone found that switching to 2x 20mg of nexium (different times of day) works better than taking 40 mg of nexium?

Chilifries
Regular Member


Date Joined Apr 2013
Total Posts : 31
   Posted 8/10/2013 2:29 PM (GMT -6)   
Teacherman said...
In my opinion a great doc in mountain view is dr. Triadafilopoulos. His office and the other docs there are quite impressive.


I know this is a semi-old post, but I had a question for you, Teacherman
Has George Triadafilopoulos mentioned endostim, or have you asked any questions about it? Just curious since I found out he was on the Endostim Scientific Board. He is one of the Docs I'm considering visiting..and likely to visit, so I try to get some information out of him lol.

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 11/15/2013 4:05 PM (GMT -6)   
Hi chili, just saw this. I will ask him next we'd.
If you haven't seen him and you are still looking for a good GI I highly recommend dr. T.
Very smart and caring.
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