GERD - part III

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Willovercome
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Date Joined Mar 2013
Total Posts : 105
   Posted 4/17/2013 2:12 PM (GMT -6)   
Here ye all who suffer from GERD!

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/17/2013 3:10 PM (GMT -6)   
Will: you got me mixed up with Sewfun. It was Sewfun that can't have dried fruit. BTW the dried apricot is very good. I used to like the mixed trail nuts from Costco but I can't have them anymore.

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/17/2013 3:31 PM (GMT -6)   
hahah another thread to conquer muahahaha, you guys staying busy with life is the best medicine but its the morning when I realize i have LPR I started getting hoarseness from time to time scared of that, but I really wish I could just hurry up and get these testing done and over with so I can find out what can I do about the situation.

in other news I am looking for job, wish me luck, shopping organic is not cheap and summer classes. UGH haha

Post Edited (inpinkagony) : 4/17/2013 3:33:27 PM (GMT-6)


Chris K.
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Date Joined Mar 2013
Total Posts : 197
   Posted 4/17/2013 4:16 PM (GMT -6)   
Glad you guys are keeping this going. Gail, so they didn't find anything horrible. Awesome. Continue the battle, ladies.

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/17/2013 5:05 PM (GMT -6)   
Sorry, viv :)
I am planning to get some other dried fruits this weekend. Dried Dates and plums are also good for stomach and nutrition wise.

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/17/2013 5:14 PM (GMT -6)   
Viv: heres another remedy to try you guys, haha I love going all natural but I read that turmeric and freeze dried black raspberry powder is good cancer inhibitor I am trying to get some, it is known for its esophageal cancer studies and throat cancer, but I wonder if it would do anything for my lanyrx.

Hi Chris and EJ :)

sewfun
Regular Member


Date Joined May 2011
Total Posts : 146
   Posted 4/17/2013 5:57 PM (GMT -6)   
Will, I am not suppose to eat any dried fruit, but I did find out I can put it in a smoothie, maybe. idea Not too much though, as I have to limit my fiber as well.

Now some good news, I have been HB free today. Normally I get afternoon HB or discomfort, but today I did not! Not even an uncomfortable feeling. If I can maintain that success for a few days I will go ahead and start weaning the Zantac. I read somewhere today that it should be done over the course of weeks. Slow and steady wins the race. I'm on such a high dose it may take longer. There's a lot of info on how to wean from the ppi's, but not much on how to wean Zantac. I'm also hoping that since I took over 2 months to wean off the ppi there won't be any delayed rebound. I haven't heard of any delayed rebound from the Zantac. Keeping my fingers crossed.

Inpinkagony, good luck with the job hunt. yeah

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/17/2013 6:24 PM (GMT -6)   
Roah: you should see how many supplements I bought so far: DGL, Digestive enzymes, Marshmallow tincture, Valerian tincture just to name a few. I know turmeric is good but how do you take them. This saturday I will ask my naturopath doctor to see what else I can do to gain back some weight and get rid of remaining GERD symptoms. Is your throat hurting?

Sewfun: it sounds like you are making good progress. I am still trying. My throat is still a bit sore these days.

Chris: how is your battle?

Will: No problem... :)

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/17/2013 6:44 PM (GMT -6)   
Hahah yes, I know we just keep wasting money on all these things haha, I am trying not to fall into anymore thing, I am really just gonna watch my diet but I ordered the black raspberry freeze dried powder from amazon by nutrifruit I think you mix 1 tea spoon a day, does the neroupath need insurance? I might see one after all these tests are done and I do not have soar throat just seem like tired vocal chords I am trying to say as relaxed as possible every time i get upset or scream my symptoms get worse and I really think for me its nerve thing since I was moody when I was young and screamed at the top my lungs I must done some damage somewhere some how haha. But I hope your soar throat gets better. just watch what you eat honestly it really is that for me, did you try alkaline water? that's my new fix but expensive haha trying to kill pepsin that makes the LPR worse.

happy health!

Thanks sewfun and hey chris!

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/17/2013 10:49 PM (GMT -6)   
viv, my MB

I have some anxiety issue today. it's my 3rd day of 'zantac 150 at night only' day and i don't exactly have heartburn and stuff though i still don't feel perfect.
it's just this darn breast bone pain and still persistent upper back pain. it got much better but still there.
moreover, my period is coming up in less than a week and all, i feel a bit of usual pms anxiety. i guess.(not like i was taking ppi and having heart palpitation, though) i feel down.
I don't know... I keep thinking where is the end of all this and feel depressed.
I can't remember when i was healthy, how i was healthy. what it was like.

I am so glad that i have you to 'talk' about this together. I have a big sister but she would just say, yeah aren't we all! and dismiss it. Then i feel i am a wussy and feel worse. As I am whining for nothing.
Am I? Maybe I am.
chamomile tea doesn't do much for me and st john's wort is not for me now, because you become sensitive to the sun if you take it, it says and we already have 12 hours of sun in Alaska these days. i don't want to take any prescription anxiety medicine but i need something to calm me down....

Roah,
wish you get a good job. My daughter got to do a volunteer at the museum during the summer and from there she hopes she can make a connection to do some research.

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/17/2013 11:02 PM (GMT -6)   
Oh EJ how I wish you can get better, yeah I know what you mean by all these odd symptoms I swear it's the PPI's if you take it for just 1 month it can change your whole symptoms I tell you, I never thought I would experience all these weird things until I got off it's super weird.

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 4/18/2013 8:36 AM (GMT -6)   
Good morning,
Roah: I have insurance through my company so I don't have to pay for the naturopath visits ($90/ea. visit). Good luck with your job search, my daughter is coming home in a few days I need to have a big talk with her, wish me luck.

Will: I asked my mom about her menopause, she doesn't remember a thing. She claimed she had no problem mind you she was in so much pain with osteoporosis so maybe that's why she didn't pay much attention to anything else. You're right about our moods swing. Do you do any exercise? I love to take Zumba but not sure I have enough energy to last the whole class! Have you try deep breathing? How is your sleep?

Morning to : Gail, Chris, Sewfun...

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/18/2013 3:23 PM (GMT -6)   
Vivian, Yeah I do not think my insurance cover nor do we probably have a lot of them around the washington d.c. area so that's sad maybe when I finally graduate college and get good insurance then I shall look them up, you guys I am starting to get nervous about my test and life again... ugh these nerves.... I wish I can just ignore my illness but I keep looking at the back my mouth and the mucus that is in my throat just wondering how long will it before things get worse. I wish I never read the things on the internet about how bad lPR is and how little years you have before it becomes very aggressive and cancerous....

yess I need job so I can stay away from the comp when i get home from school. thank you for the luck I need it.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/18/2013 4:15 PM (GMT -6)   
Hi everyone.
 
Viv, my battle against GERD or indigestion or gastritis or whatever it is that I have, is on hold.
That's because I am battling some other sickness (bronchitis or a sinus infection or both). 
 
I am hesistant to go to the doctor because I have been going so much plus I know he's going to just give me more antibiotics, which will ruin my stomach some more.
 
I am just looking forward to the day that I get over this cold/flu so I can actually judge how I feel about the other stuff. 

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/18/2013 5:16 PM (GMT -6)   
Chris it's good to hear from you, I know what you mean on trying to go back to life haha. But yeah about the sinus infection I gave mine 4 weeks and then I finally caved in and went to an ENT and you remember what my diagnose was, for now I just have to wait on the 24hr probe and barrium swallow to let me know what's going on, but I do hope you feel better and hear some good news, I wanted to ask since you got the swallow done do you know what it's exactly about and does it check for loose UES OR LES? mine is tomorrow //nervous

thanks
Roah :)

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/18/2013 7:40 PM (GMT -6)   
Hi Everyone......I just found the new thread.  I thought it was weird that there were no new messages.   duuuuuhh. redface
I went this morning to the lab for the blood work, stool & urine.  How fun doing that stool sample........gross!......now I wont have the results for 2 more days, which means Monday maybe??
When I asked my  Doc about PPI's yesterday, he told me that if a person takes them longer than 2 weeks, they will have rebound for sure and it can be bad.  I thought to myself (then why did you want me to take them?).........glad I didn't.  All the problems I am having are enough.   I started taking a tablespoon of fiber with water after dinner, but it is hard for me to get down all of it without feeling like gaging.  Doc said I could take Colace and fiber.  So I took a Colace at 2:00 pm and plan to take another tonight.
 
EJ, I am getting depressed too!......so tired of deciding what to eat, the weight thing, then thinking OMG what is wrong with me????  Do I have cancer somewhere?  I am sure you all have thought this too?.....I see myself in the mirror and wonder who this too thin person is?  Ask Viv about Rescue, she got some, don't know if it has helped her anxiety????
 
Chris, I cannot begin to tell you how many times I went to work feeling sick and crappy.
It is the worst!......I could barely drive home sometimes.  So, I feel bad for you that you are trying to work and deal with being sick.   Please take care of yourself!  Take a lot of vitamin C.......I read today that Vit C also helps with constipation, so I am starting mine again tomorrow.
 
Too sad about the Boston Marathon, so senseless and devastating for so many families.
Now the explosion in Texas too.  I wonder about our world sometimes.?????
 
Take care everyone!

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/18/2013 8:25 PM (GMT -6)   
Chris,
"In fact, there's growing evidence that long-term use of PPI drugs increases the risk of intestinal infections and pneumonia"
Are you sure it's not side effect of ppi?

Viv,
I sleep ok. It's just... Arg... I am frustrated i guess.

Hey, Roah,

Where is gail btw?

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/18/2013 8:41 PM (GMT -6)   
EJ,
See the post right above yours.....;)

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/18/2013 9:04 PM (GMT -6)   
Hey gail! When i typed mine and closed the window you weren't there! Weird...

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/18/2013 9:46 PM (GMT -6)   
Oh gosh, gail your words are like book written out of all the thoughts I have about myself everyday I wake up, I am trying to get on and smile through it but it's so hard please know ej, and viv, and gail, and chris you guys are not alone, I am trying to be positive but I have been going through it and ej, oh gosh you do not even have to tell me about PPI. Let me tell you all these symptoms I have I never had before are side effects from the PPI and I do not think they are ever going to go away, because I am on my 12th week and I took my PPI for 4 months straight, so it should have long gone, and another thing I was reading somewhere how a lot people started getting LPR after PPI and I think that happened to me I wish I had time machine and go back to to never taking PPI // sigh but what can you do?

My biggest concern now is what to eat, tired of cooking and coming up with ideas, and even the foods we make are not going to make us any bigger because we all have to watch what we eat or our symptoms will be exasperated even more. :( Gosh I just hope I hear some good news from my upcoming tests, and what's sad I haven't been eating these days because I am trying to ignore my illness which is not good and I been afraid to eat nor can I bring myself to eat. But long story short I am with you gail, its like loosing yourself everyday without you even knowing I get pointed out by my family.

and about Boston, gosh like this world really is unrecognizable to me.

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/19/2013 12:58 PM (GMT -6)   
Hi, y'all

I feel a bit better today.
But i have a question for all of you guys.
Do you have this pain on the breast 'bone' where the rib cage meets? Not in the middle but a bit along the ribcage. It was right side but now it is left side and it comes and goes. It is like a bruise or bone pain. Not something radiated from inside. Different from heartburn.
When it is there i don't particularly feel indigestion or heartburn but since it's pain when i feel it, i feel like i have heartburn but I am not sure.
Is it just another kind of heartburn?
That means i am not healing very well though i am eating ok and still taking zantac.... Come on....

I gotta buy plane tickets for upcoming june seattle trip at least at the end of next week and i am not even sure i can't leave my house for an hour.
I can't afford to 'not' go(it's my husband's conference. Good chance to have a vacation together) because it was a promise to myself when i was scared to death before the endoscopy. I would have put it off to next year if it was usual hindrance, gladly. what's the big deal, right? seattle can wait for me another year. but I vowed to enjoy everything i could while I could then. I didn't know this thing would last this long, i guess.

Still i should go, right? No matter what. Who knows what will happen next year not to mention tomorrow?
You big sis, give me some good advise?

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 4/19/2013 1:28 PM (GMT -6)   
Hi EJ,
 
Sometimes I get a funny pain on the left side, right where my bra goes around.
It's like a pinched muscle or something.  I get it sometimes when I bend over the sink to wash my hair.  It is a odd thing. I always think it is my heart, but I don't really think so.
It is probably nothing to worry about ;)
 
Yeah, I had a bowl of oatmeal this am, and after, I felt kind of dizzy and weird, like I might pass out.??????   what was that????   scared me, but it went away.  Maybe I had too many cups of tea?  there is caffeine in tea, so maybe that was it ????  seems like there is always something.   
about leaving home, I would be feeling just the same.  When we don't feel good, leaving home is kind of scary.  Like what happens if I am away from home and get worse??
That would be a BIG trip for you too.  Not just a few miles away. But, you feel pressure to do it because you want to make your hubby happy.  It is a hard decision to make.
I don't like driving over an hour when I feel crappy.
 
Only had a little cup of chicken noodles last night and ended up with a bunch of gas and cramping.......innocent noodles!.....I chewed a DGL and it really helped. surprised me since it was AFTER I ate.
Feel better!
 

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/19/2013 2:22 PM (GMT -6)   
Just had my barium done today and that stuff was nasty gosh chris I did not know how your drank that stuff, I have my 24hr pr on may 7th still kind of nervous about this test because I read how some people had some complications after but I think it will benfit me since I need to get to root of what causing my LPR

EJ I think you should go, you know the easiest thing for me these days is realizing whatever happens happens because we never know what can happen tomorrow, its really scary cause we all have disease that can turn deadly but I am not trying to let it control my life say I get 5 more years instead of 50 I will be greatful for that alone because it would have been worth it spending those 5 yrs with people and places that had impacted my life, if there is will there is way, just enjoy what you can now and I hope you feel better.

Hi gail. I am so glad that the dgl are working for you, I just hope we gain some weight soon. I am bring this issue to my doctor because I cannot loose anymore but he will prob say no you need be on low fat diet or you want bile in your airways //rolls eyes.

ugh the comprises. anyways hope you guys are doing well, going to book sale, trying stay busy. LIFE FIRST ladies/gentleman

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 4/19/2013 11:09 PM (GMT -6)   
Roah, I'm sorry I couldn't respond soon enough.  Being back at work while sick is really tough and I simply won't be able to post as much as I did when I was at home for the 2 previous weeks.  But I will try to check in at least once a day.  The barium swallow wasn't that hard for me.  But that's because in my mind, it had to be done to determine what the liver "spots" were so my mind wasn't worrying about the taste.  I did have a completely white stool afterwards so if you happen to have some funny colored stuff, don't be alarmed :)
 
EJ, Gail, Viv, I am still trying to get over this sinus/cold/throat/lung infection.  My throat feels so bad right now from coughing and bringing up mucus for the past week.  My eyes hurt and even my teeth hurt all because of the pressure.  Everytime I have to swallow a pill, it feels like it's stuck right at my adams apple.  Of course, it's not stuck but the irriation is at its all time worst.  I am also getting that pressure/discomfort right behind the breastbone.
 
Sleep is a little bit better (decrease in anxiety) and my appetite (the craving for food) is almost normal although I still cannot eat as much as before.  My weight loss has stopped but I am not putting any weight back on.  Perhaps, this is what my weight is supposed to be, without the junk food and the 2nds and 3rd servings for lunch and dinner.
 
It's going to be a battle.
 
Viv, my naturopath charges $150/hr.  And you have to pay out of pocket and then deal with the insurance on your own.  But as long as she is good as advertised, I am willing to pay.  Her name is Dr. Karen Peters in El Cerrito, CA.  She sounds amazing based on the reviews on yelp.  I will let you know how it goes.  My initial consultation is on Tuesday for 2 hours.
 
 

Willovercome
Regular Member


Date Joined Mar 2013
Total Posts : 105
   Posted 4/19/2013 11:24 PM (GMT -6)   
Chris,
Oh, how awful! I can't even imagine! I am so sorry. You are being so brave. If i had other problem on top of this, i would have much more miserable.

Gail, roah,
Thanks for the input. I think i should i go. Really.
Even if I would have to take some painkillers for the body ache, that's what i will do. I will have to do anything that helps me living like a real thing. This is not the way you live. Scared to go out and play? No way! Right?

Ok, today is almost over. i've survived one more day. Ok.
Ok.
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