Dreaded sunday

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 1:51 PM (GMT -6)   
Its finally happened. I reached the point of my condition where nothing i do matters. Havent been able to sleep sitting up, on a slant or laying down. My throat is just too tight, i can breathe out fine, just cant breathe in. The only thing that helps is afrin nasal spray, but that doesnt stop the burning pain in my nose. Ive tried taking my inhaler no relief what so ever. Thinking of going to the er but i know they cant and wont do anything. Sure would like to do something more than just sit here, but im to out of breath and cant physically sleep.


The thing about this condition is that it can always get worse.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 4/28/2013 2:15 PM (GMT -6)   
Hang in there it does get Better.

What are u doing so far?

What SYMPTOMPS do you have?

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 2:37 PM (GMT -6)   
My sympotms as of right now are tight throat, heavy chest, bruning sensation in my nose, chest, throat. My throat is much tighter in the warmth, and its harder breathing in than compares to out.

My problem however is that im a non acid relfuxer, anatcids wont bring relief. I have a meeting on may 9 witha surgeon... Gonna talk about the roux en y, possibly get the nissen. I have gastroparesis, so we'll see. Kinda nervous about this one, if he wont do anything im gonna have to live like this forever. Other surgeons wont touch me since my tif is tight.

So far today, i have gone through my check list of meds. Ive used my inhaler, gaviscon, 40mg of prilosec, afrin, baclofen, apple cider vinegar(usually helps me breathe, doesnt work anymore), ive also popped 2 vicodan, hoping that will bring down the inflammation. Yesterday i popped some bendryl, guess its not from allergies, but ive pretty much tried everything i have.

Maybe will start some anti anxiety meds, other than that i guess im gonna try icing my throat.
-TheSixness-

Fighting daily pain from gastroparesis, gerd and lpr!
Had the TIF done 2/2012 and still am symptomatic.

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 2:46 PM (GMT -6)   
In hard times i like to think of my favorite bruce lee quote,

"Do not pray for an easy life, pray for the strength to endure a difficult one"

Also, its a hard nut life is one i think of a lot haha.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 4/28/2013 2:59 PM (GMT -6)   
How do u know its non acidic reflux?

Try focusing on what your eating and how you eat.

A couple of diets you can look at scd diet. Check amazon breaking the vicious cycle. A low carb variation helped me greatly. The book a a good read.

Ppi won't help until you get your diet under control.

Lately I also figure out water makes my LPR worse. So I try not to drink water 1 hr before meals. During meals. And I stop all water one hour before bed.

Everyone got to figure out their own solution for this gerd issue. Just keep trying different things.

Sometime too much meds can irritate the gut. I know Vicodin was rough on my stomach.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 4/28/2013 3:04 PM (GMT -6)   
Almost forgot u really should also stick to high ph food. Jamie Koufman has a nice write up on this.

Acid activates pepsin on your throat causing more burns.

I was a similar situation horrible burns on my throat for a year.
My throat a lot better now but my diet is strict. I don't eat out anymore
Can't control what they put in your food.

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 3:35 PM (GMT -6)   
I've been trying to get dropping acid from the library, its pretty tough to get. Everyone has holds on it, may go buy it tonight. In regards to my non acidic acid, i had a ph impedance test done about a month ago that showed 51 episodes of non acidic acid.
-TheSixness-

Fighting daily pain from gastroparesis, gerd and lpr!
Had the TIF done 2/2012 and still am symptomatic.

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 4/28/2013 4:08 PM (GMT -6)   
Hello ➡➡➡The Sixness:. I've followed the Dropping Acid eating plan and found it helpful. I think you should try it. I do own a copy of it. But if you pull the book up on amazon and click on the Look Inside button,-- you will be able to read quite a bit of info that is enough to get you started TODAY. Thanks to the generosity of the authors. Reading this info and charts listing the foods convinced me to purchase the book. Wish you the best. Want you to feel better real soon.

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 4:21 PM (GMT -6)   
Thank you! I will do that, i cant wait to come back to these forums and tell everyone how great things are going. One day i will! Thats my goal haha!
-TheSixness-

Fighting daily pain from gastroparesis, gerd and lpr!
Had the TIF done 2/2012 and still am symptomatic.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 4/28/2013 4:54 PM (GMT -6)   
Hi TheSixness,
Good luck with your appointment.  I hope the surgeon can shed some light on all of this. Like you, I'd reached my limit when I had my Nissen 4+ years ago.  In my case, it was uncontrollable asthma caused by much less reflux than you're having. Bile or acid both do a number of lungs/esophagus, and all points North of the stomach.  My breathing was dangerously bad, and my PCP fought long and hard with my GI doc, finally referring me to a surgeon himself.  At that point, I revisited the GI with the new testing info in hand (as well as the obvious statement from my PCP--"If you're not going to do anything to help her, I will!")
 
I went into the Nissen as worried as anyone.  I'm an internet gal, and had researched enough to read about all the horrible symptoms and people warning me off of having the surgery.  I knew that my atypical symptoms were helped 70-80% of the time, and didn't know if I would be in that group.  Still, I was at the end of my rope, and had to rule out GERD as the cause of my horrible lung condition.
 
Within two and a half months my horrible lungs/lung infection was cured, and I finally had healthy lungs for the first time in at least 6 years. 
 
After four years here, listening to people who are panicked over post-op symptoms, I've come to believe that most of those symptoms that I'd read on the internet (and had kept me from having a Nissen much, much sooner, and avoiding long-term damage) are simply normal recovery issues that weren't explained by surgeon or forum.  So many people come here afraid that the symptoms they're suffering at two months will be with the forever.  Of course, there is an occasional botched surgery by a surgeon who doesn't have the experience and skill required to do the job right--or hasn't done the prerequisite testing and has done the surgery on someone who is not helped, or even made worse.  The surgeon I saw said that an important piece of the puzzle is for the surgeon to select the proper patient for the surgery.  It works both ways.
 
Hang in there.  I know it's hard to wait through all the discomfort and pain.  It's doubly bad with bile reflux, since nothing really helps.  Have you tried Carafate suspension?  I always keep that on hand for my reactive stomach.  It helps me a lot.
 
Best wishes,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/28/2013 6:59 PM (GMT -6)   
Thanks!

I do have the tablet form of carafate. It does help a little bit but i cut it out my routine because im on a lot of meds already. Gonna try it out again though.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 4/28/2013 7:33 PM (GMT -6)   
Hi TheSixness,
If you're having symptoms in your esophagus, Carafate suspension works better, because it coats the esophagus as well as the stomach.  The tablet form works well in the stomach, but doesn't coat the esophagus. If you want some relief in the esophagus, put the tablet into a medicine cup, add a little water, and stir it with a toothpick.  Then throw it back, like a shot.  That way, the medication can have a chance to coat the esophagus on the way down.
 
If you have good prescription insurance, ask your doctor to order the suspension form for you. It's very expensive, though, so you really need the insurance.  If not, then use the tablet in liquid for the closest facsimile.
 
My PCP of 25 years said that it was very good that I found relief with Carafate, because it's a very safe and benign drug, and most is excreted in the lower GI tract.  It says that a side effect is constipation, but I've used it a lot without any constipation issues.
 
I hope it helps you!
Good luck,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 4/28/2013 7:36:53 PM (GMT-6)


inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 4/28/2013 8:28 PM (GMT -6)   
Oh my gosh six!

I am really sorry you are going through this buddy, I just wish you can feel a little bit better sooner! I know I never have anything to contribute since I am not doing well with mine, I feel like everyday things get worse and worse but I can't do anything until I get my impendance done which is in week and half but I just want you to know you are not alone in the LPR fight, I hope you do get some relief and some surgeon to help you out soon, you been in pain long enough! KEEP me updated buddy! praying for you.

Roah
I won't let you ruin me, if there is will there is way, day by day and I shall make it.

GERD/LPR 2 months yappay! :) LOL

Roah, college student, 21
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, April 21, 2018 7:11 PM (GMT -6)
There are a total of 2,954,089 posts in 324,077 threads.
View Active Threads


Who's Online
This forum has 162136 registered members. Please welcome our newest member, pbrown34.
364 Guest(s), 12 Registered Member(s) are currently online.  Details
Artist Mark, sandyfeet, island time, newuser22, laneway blues, Sinmiedo, Girlie, Defender, magoo2, pbrown34, FLBeachgal, Tall Allen