Nissen on Tuesday...Terrified

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lissa100
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 5/2/2013 4:04 PM (GMT -6)   
Hi everyone,
 
I'm scheduled to have my Nissen on Tuesday and as you can tell by the title ^ i'm scared out of my wits.
 
I understand that it has to be done and it's in my best interests in the long term. I'm 22 and have hiatal hernia and have had reflux and regurgitation since I was 15. It's been prgressively getting worse. And whilst I know it's no where near as bad as some of the situations I've come across on this forum and elsewhere, both me and my doctors believe that it's better to do it now then wait until it's even worse and this is something that won't get better on its own.
 
I guess what I'm trying to say is, I don't want to be 50 and having suffered all my life, only to have to go through the operation anyway :( Plus, i'm worried about the long-term affects of PPI use (and seens as I've hopefully got another 60yrs in me yet, thats a long time) and also of the damage reflux could do to my oesophagus.
 
So to cut a long story short, I'm having the operation.
 
Now here comes the hard bit,
 
I've been reading a lot of the posts on here and I'm just so scared. I'm such a fussy eater and like a limited amount of things. Also, being in the UK and so with the NHS, I'm not in control as much as people in the US are.
 
I'm scared that my doctor's will tell me to eat the wrong things, won't give me oral pain killers, will not give me anything for the nausea and I'll be sick and ruin my wrap. And even though I've read up, they won't take any notice because i've just read it off the "internet".

Hopefully somebody out there can put me at ease, anyone whose had it done in the UK? How did you fare?
 
Also, any handy sites/tips for good foods for a fussy eater :)
 
Any guidance would mean the world to me!
 
Melissa

luv2drive
Regular Member


Date Joined Feb 2013
Total Posts : 36
   Posted 5/2/2013 7:28 PM (GMT -6)   
Hi Melissa
I'm not in the UK, but when I interviewed my surgeon before my surgery, I made sure he was agreeable to writing liquid pain meds, anti-nausea oral med and suppositories both while I was hospitalized and for discharge. He agreed, but I made sure, on the day of surgery, to remind him. I also told the anesthesiologist that I get very nauseated easily, so she put a scopolamine patch behind my ear preop (it does cause you to have a dry mouth however).
As far as eating, I printed off a couple of suggested diets for home use that were on this forum site, and I turned away inappropriate foods and straws...so educate yourself before your surgery.
Also, after surgery, insist on walking the halls as much as you can. Even by yourself pushing your I.V. It helps with the pain in your shoulders.

Good luck, stay strong, and tell yourself, you can do this !!!! Linda

Janeuk
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 5/5/2013 11:53 AM (GMT -6)   
Hi Melissa

I am from the UK, near Cambridge, and I had my operation on the 24th April on the NHS at Addenbrookes hospital. I have written a diary which you can view on this site at http://www.healingwell.com/community/default.aspx?f=45&m=2715313
 it is under the user name Janeuk called Toupet Fundolication and hiatal repair. I had 270 degree wrap instead of the 360 one and they call this a Toupet instead of Nissen.

My experience has been absolutely fine on the NHS and the care I received was amazing. I have written thank you cards to the two wards I was in and to the surgical team as they are well deserved. So please don't worry, I know that is easy for me to say, I was little anxious before the operation but I needn't have been. I was only in for one night too and it was like being in a hotel, couldn't believe it, I had my own room and ensuite and offers of food and drink on tap. The catering staff were not that familiar with what I could have to eat or drink but I was able to have yoghurt and apple juice which I knew would be fine. I also took my own decaff tea bags.

Regarding diet, I have love my food and wine! I have been on homemade smoothies, soups, ice cream and sorbet and digestive biscuits dunked in tea. I am on day 11 post op and tried a chunkier chicken soup today with meat pieces and rice, was not too bad going down but just have to remember to eat slowly. I also suggest you buy some Complan, Tesco's sell it. I have been putting this in my smoothies to make sure I get enough nutrients. Just been out for a couple of hours today and feel a bit exhausted now, you do get tired quickly so make sure you do get enough rest. I do not intend to drink any alcohol ideally to week 6 but I will just see how I feel and if I fancy a little before then I will try some and see what happens. The idea is not to have too much of anything in one go.

I am sure all will go well on Tuesday and please reply to my post if you have any more questions.

Best wishes

Jane
 
made the link clickable

Post Edited By Moderator (dencha) : 5/5/2013 6:02:08 PM (GMT-6)


Gooserstein
Regular Member


Date Joined Apr 2013
Total Posts : 57
   Posted 5/5/2013 1:16 PM (GMT -6)   
Hi Melissa,
I just had my nissen done on Thursday and I completely understand what you're going through. You need to advocate for yourself. My doctor doesn't like prescribing antinausea meds but I demanded it. I think the scopolamine is a great idea. I wish I had it for mine. I really think that ensuring protein in your diet is so important. It hasn't been super easy for me, but I know in the long run it'll be worth it. Best of luck!
Erica

Lissa100
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 5/5/2013 3:23 PM (GMT -6)   
Thanks everyone for you replies, you've really eased some of my worries :)

Linda ~ thanks, I've already bought new slippers with miles of walking in mind aha, from reading on here I can see that its going to be the best thing for me.

Jane ~ I'm so glad you replied to me, thanks so much! It really is reassuring to hear from someone also from the UK, who has had a good experience. Because even though I know the op is for the best, I was really worried I'd get railroaded into doing things that will cause me problems. Eating/drinking the wrong things etc. Thanks for the tip on the Complan, will get my mum to go get that tomorrow. I'm going into hospital tomorrow, having the op tuesday and then home weds/thurs apparently.

Do you know how long your op lasted? How was the pain management? Were they ok with giving you enough pain meds?

Erica ~ thanks for your advice, I'm going to follow yours and other members advice and I'm just going to be strong and be really clear on what I need. I've got a really good GP as well, so I'm hopeful if I have any issues with getting prescriptions to come home with that I can got to them and they'll help.

Can I ask everyone, how long were you off work for? I've got an office job and I've told them max 6 weeks, but was just wondering what other people's experiences are?

Lissa100
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 5/5/2013 3:34 PM (GMT -6)   
P.S. jane you're journal is a great help thankyou :) And you just reminded me to buy decaf teabags! I went shopping last night and bought loads but forgot them...duh! By the way were the hospital ok with you saying what you could and couldn't eat/drink?

Melissa

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/5/2013 7:09 PM (GMT -6)   
Hi Melissa,
Welcome to Healing Well!  I can see you've already gotten lots of great advice from some new friends here!  This forum is a great place to get information and support from others who know what the surgery and recovery is like firsthand.  Most surgeons know how to do the surgery just fine, but really don't understand the extent of the recovery. 
 
As far as the hospital food goes, you'll have to be your own advocate.  I remember they gave me ginger ale, caffeinated coffee, and a straw on my tray.  I was able to salvage the lemon ice, which was nice.  I feel sorry for the post-Nissen patient who hasn't researched the dos and don'ts, and drinks some nice carbonated soda through a straw. Ouch!  Bloating will surely follow.  Just tell them what you need and want.
 
We'll be here waiting to welcome you to the Wrapped Club! 
Best wishes,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Janeuk
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 5/6/2013 1:09 AM (GMT -6)   
Hi Melissa

I went down to theatre about 3.15pm and the op lasted about 2 hours, I was in recovery and awake by 6pm. In recovery I was sipping water, ignore the straw they give you, but this made me feel queasy so only had a little of this. I was given morphine through my IV as I had a splitting headache, this did make me feel queasy too but they gave me anti sickness medication by IV. Once I was taken to the recovery ward I could have more pain relief, I did not have that much pain in the op just a terrible headache. I did not suffer from nausea at all after a few hours in recovery and have not done since. I was given liquid paracetamol through the IV and codeine for my headache when I needed it. I could have whatever I wanted to drink or eat if they had it, I requested apple juice and a jug of this appeared within minutes. The next morning I was able to have a yoghurt too, which I ate very slowly. When they came round with the drinks trolley they made up my decaf tea for me with hot water so no problems there either. Just ask the nurses if you need pain relief or drinks they are so lovely and helpful. I do admire them.

I work for home and will probably have this week off too and go back to work next week on the 13th May which will be 2.5 weeks off work, the main thing is feeling tired so may do half days to start with.

Good luck today I am sure you will not need it.

Best wishes

Jane

Tarachriso
Regular Member


Date Joined Mar 2013
Total Posts : 88
   Posted 5/6/2013 11:06 AM (GMT -6)   
I can wish you luck as you are on the way to a better life. I know it is very scary believe me 3 months ago I was in your shoes I unlike you did not know what to expect or know anyone that had this procedure done. So I think having the knowledge is freaking you out as well as giving you the information that you need in order o have this surgery done and get through it without a hitch. I can tell you as someone that went through this that in the beginning it is a life adjustment and it can be hard at times but when I lay down at night and I’m not chocking on acid and it’s not coming out my nose I know that this was a good decision . My option to have this surgery was not optional it was mandatory but I can tell you that it saved my life in more ways than one. So I will wish you all the luck in the world and hope you have a speedy recovery well see you on the other side. As for repeats surgeries or other wraps as we get older I’m only 29 so we can talk each other trough years to come. Just kidding. Good Luck.

luv2drive
Regular Member


Date Joined Feb 2013
Total Posts : 36
   Posted 5/6/2013 1:55 PM (GMT -6)   
Hi Melissa,
You will do fine I'm sure. I'll be anxious to hear your experiences. We all will be pulling for you ! Linda

Teeth cleaner
Regular Member


Date Joined Mar 2013
Total Posts : 88
   Posted 5/6/2013 2:48 PM (GMT -6)   
Hi Melissa,

My thoughts and prayers are with you! I'm faced with the possibility of having this surgery in the future. I have been suffering for 9 years with Gerd/LPR symptoms and I'm getting tired. Be strong! You can do it!

Wendy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/6/2013 7:08 PM (GMT -6)   
Hi Melissa,
Good luck, tomorrow!  We'll all be rooting for you, and waiting to welcome you into the Wrapped Club! 
Don't worry, you'll do just fine!
Best wishes,
Denise
 
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

luv2drive
Regular Member


Date Joined Feb 2013
Total Posts : 36
   Posted 5/12/2013 10:50 AM (GMT -6)   
How are you doing Melissa?
Hope all is well with you...Linda

Flaniflana
New Member


Date Joined Jun 2013
Total Posts : 8
   Posted 6/7/2013 8:56 PM (GMT -6)   
I wish someone had told me not to drink carbonated drinks with a straw after surgery. I thought it was a no-no and kept asking my nurse but she assured me it was fine. Asked my surgeon the next day and he did not seem to think a straw was a bad thing. I have not used a straw since coming home from the hospital and carbonated drinks are certainly not on the menu.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/7/2013 10:14 PM (GMT -6)   
Oh yeah! No carbonation or straws for at least a couple months.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

luv2drive
Regular Member


Date Joined Feb 2013
Total Posts : 36
   Posted 6/8/2013 6:27 PM (GMT -6)   
As in no straws, I am almost 8 weeks out from my full Nissen and I found out drinking bottled water from bottles that have the little blue top where you have to suck up the water...like a straw...is also a 'no no'...didn't think of it when I bought these for travel, but suffered with gas for several hours. I now buy Figi water that has a screw top. Beware. Linda
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 4:25 AM (GMT -6)
There are a total of 3,006,715 posts in 329,384 threads.
View Active Threads


Who's Online
This forum has 161847 registered members. Please welcome our newest member, Mindstrange.
120 Guest(s), 2 Registered Member(s) are currently online.  Details
goshawk, Mustapha