Less than 10 hours after my WRAP 5/6/13

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Ms G
Regular Member


Date Joined Apr 2013
Total Posts : 39
   Posted 5/6/2013 10:33 PM (GMT -6)   
The subject is not a typo.

I went into the OR at 1:45pm they put me under around 2:00pm. I was in recovery by 6:00pm and in my hospital room by 7:20pm. By 9:45pm I had already walked a little over 1/2 mile (they have distant markers on the floors so patients can measure his/her walking distance). 11 laps is 1/2 a mile but because I have OCD and can not deal with odd numbers I walked 12 laps.

Can you guess what my first actions were after waking up?.......I removed all the pillows and laid flat on my back and laughed out loud.....it felt amazing. I am on pain meds but I am not groggy. I feel the gas which is why I got up and walked but it did not move & the shoulder pain is a tolerable pain (the pain is equal to working out with weights or lifting your arms a lot until you feel the burning). I have loads of the frozen flavored icy cups but my throat does not feel sore. I have the sensation that I need to burp but I find it a challenge to burp. The liquid pain meds....^5.....great suggestion.


I am so glad I did it! I thank God for the surgeon, the nursing staff and all of you for sharing your journey to a better quality of life. I know that as the meds ware off I will begin to feel the pain but I am just excited that I no longer need pillows or pills!


May 7, 2013 11:58pm

I did not sleep last night because I was waiting for the unexpected but expected GERD appearance. It never happened. Around 6:30am I did the 1/2 mile walk again.

I was discharged today, yes less than 24 hours. My surgeon said I was doing great since I was up walking and breathing into the tub. She gave me the option to stay another night or to go home. I figured since the pain was not going to go away and I would only get meds there that I might as well go home so I was released.

I do feel drained maybe I am moving to fast so I am now taking it easy. I feel the shoulder pain but walking does help. The painful coughing is more bothersome to me than anything else. The gas has not found its way out yet so this is a bit painful as well.

I had a great team of nurses and the head nurse gave me this great link that I want to share. Its the do's and don'ts of eating and drinking all outline.

If you don't see an updated post its because I am still in the same condition. Once something new happens I will update.

http://www.upmc.com/patients-visitors/education/nutrition/pages/diet-after-nissen-fundoplication-surgery.aspx[url]
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Lady G

3 John 1:2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth. (KJV)

Psalm 19:14 (KJV)Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.

Post Edited (Lady.G) : 5/7/2013 10:12:37 PM (GMT-6)


Teeth cleaner
Regular Member


Date Joined Mar 2013
Total Posts : 88
   Posted 5/7/2013 6:37 AM (GMT -6)   
Lady G.,

So glad this part is over for you! Now it's time for healing and back to a wonderful quality of life! I too have a bit of OCD which can make me very impatient at times. As Denise says.....listen to your body and use this time to baby yourself! Keep us posted! All these journals really help me because my days are numbered before I'm on the table! eyes

Wendy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/7/2013 6:50 AM (GMT -6)   
Hi Lady.G,
Welcome to the yeah yeah yeah Wrapped Club! yeah yeah yeah Hooray!!! yeah yeah yeah You did it!  Laying flat...WOW!  Now that you're on the other side, you can concentrate on healing.  I'm impressed with your walking...Like you, I was up and walking in the hospital, pushing my IV pole along with me.  Lucky you to have mile markers!  Love that!
 
Don't worry about the need for burping sensations.  They're very likely faux, and a reaction to surgical pain.  Any burping you do should be stomach-led.  You'll have lots of strange and uncomfortable sensations during the next couple weeks as you deal with the early and most challenging part of the healing process.
 
Off to work in my son's third grade class, so I won't be able to post the rest of the day.  I wanted to check in on you first, though.  Now it's time to relax, have patience, and let that body of yours lead the way toward full recovery. 
 
Talk to you soon!
Happy healing,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

luv2drive
Regular Member


Date Joined Feb 2013
Total Posts : 36
   Posted 5/7/2013 5:06 PM (GMT -6)   
Great Lady G.
Sounds like you're doing GREAT. What a nifty idea to have mile markers in the halls ! Be sure to get your rest also. Linda

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 5/7/2013 11:39 PM (GMT -6)   
LadyG-

The hospital I was in for my esophagus tear had those markers too. I now know why I like every thing to be in even numbers! I do exactly the same as you.
To help with the coughs use a pillow and hold it tight to your belly. It works!

Welcome to the wrapped club!

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Ms G
Regular Member


Date Joined Apr 2013
Total Posts : 39
   Posted 5/22/2013 10:34 PM (GMT -6)   
Here is my journal re-cap and update.

Monday May 6, 2013 - I went in for the surgery @ 2:00pm and by 9:00pm I walked 1/2 mile (the hospital have makers on the floor and walls with the distance calculated)

Tuesday May 7, 2013 - I was released from the hospital because all heath concerns were addressed and all looked good. I was told I could stay 1 more day but I opted not to since I had home support.

Tues, Wed & Thursday I was fine.

Friday May 10, 2013 - Around 3:00am I woke up to my stomach feeling like it was on fire and swollen (I guess this is what several people on the form called the swelling of the wrap). I called my surgeon and she called me back and assured me that nothing was wrong it was normal. Friday night I left NJ for NC (the 12hr trip I was talking about) I arrived in NC around 6:45am and wen to the hotel to rest. Around 9:30am I got one of those surprises I was asking about. My belly button started leaking several types of discharge. I called the doctor and laid down. When I woke up it was 12:00 noon. I never received any call back and it turns out that my eldest had also been trying to reach her.

I took pictures so I could show her when I arrived back in NJ. I went to my nieces college graduation and went back to the hotel (service was 45 minutes). At 6:30pm I went to dinner/party to celebrate her accomplishments. 1hr or less I stayed and then my 2 sons and myself left to go to the hotel get some sleep and head back to NJ. When I got to the hotel to change my belly button started acting like a penis and was spraying this stuff all over the bathroom floor (I took pictures of all of this)

As I got close to the hospital we called the doctor again and told her we were head to the hospital and when I got there the surgical team was there waiting for me. As I showed the pictures my surgeon she told me that there was a mistake made during the first surgery and the only was to correct it was for a second surgery which will not be as easy as the first.

The second surgery was done on Tuesday May 14, 2013 (1 week after the first one). The results are horrible. I am now dealing with a therapist trying to understand all of this. During all of this I am not eating because it was not known when the surgeon can get an operating room (4 days).

Monday May 20, 2013 I weighed myself I lost 14 lbs (14 days from 1st surgery. My throat just became sore 2/3 days ago. I am still on clear liquids but I am in lots of pain and discomfort from the second surgery. I started feeling sharp pains on my right side I was told it was related to gas but I have been moving gas with no problems.

In speaking to the surgeon there was a mistake made in the first surgery (part of my small intestine was punctured which caused the leaking (the trip did not have anything to do with it the leaking would have happened no matter where I was. The second surgery part of my small intestine had to be removed and what was left had to be reconnected.

Tuesday May 21, 2013 I started to feel very nauseous (flash back from pre- wrap surgery). I had a hard time vomiting due to the Wrap but nevertheless I experienced the same symptoms minus the heart burn. My right side still has the sharp pain and I have had 2 x-rays in the past 3 days and they see nothing.

Wednesday May 22, 2013 I had a repeat experience of being nauseous & vomiting but right now I feel good. I walk any where between 1/2 mile and 3 miles a day but the last two days its been more like just 2 laps around the floor track.

I really hope this is helpful because no one spoke about "the what if" aspect of this surgery but there are things that can go wrong.
----------------------------------------------------------------------------------
Today is Friday May 24, 2013 - I am told I am being released to go home.

My 2 week stay in the hospital was for the second surgery. I have to wear a Wound Vac.

On Monday May 20, 2013 I was weighed & the results were I had lost 14 lbs. Last night May 23, 2013 I was weighed again and lost 10 more lbs so in the past 17 days I have lost 24 lbs.

The Meds that worked for me were Anti-inflammatories, Zofran & Simethicone (Z&S taken together was they only way they worked).

I am also dealing with a bad cough (ouch the pain the cough causes) and being nauseous.

Pain - any anti-inflammatory meds. worked the staff was surprise that I requested anti-inflammatory meds but it works for me.
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Lady G

3 John 1:2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth. (KJV)

Psalm 19:14 (KJV)Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.

Post Edited (Lady.G) : 6/18/2013 8:55:33 PM (GMT-6)


sandyo
Regular Member


Date Joined May 2013
Total Posts : 56
   Posted 5/23/2013 2:19 AM (GMT -6)   
Hi Lady G......I am so sorry to hear what has happened to you. Was your doctor a specialist in this area of surgery?? I am stunned at what took place. I can only imagine what you are going through. You couldn't prevent what happened to you but I would be a little cautious now with your recovery.....Just maybe slow down a bit...don't hurry your recovery. Take it a bit easier, don't rush things......little by little is good.
I see by your quotes that you must be a christian lady. I don't know if you would be interesed but there is a great book out now by Pastor Joel Osteen....He pastors the largest church in America. The book is called "I DECLARE! 31 Promises To Speak Over Your Life!
I live in Australia and this book is very popular here.
I do hope you start to feel a lot better really soon.

Believe & Receive.....By His Stripes I am Healed!! AMEN!

Regards Sandy
SANDY

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 5/23/2013 5:01 AM (GMT -6)   
Lady G

So sorry to hear about your problems, it sounds like you were doing remarkedly well. Taking a 12 hour trip so soon after surgery must have meant the NF part had worked a charm.

I cant believe they punctured your intestine. If I was you I would be talking to a lawyer as soon as I was feeling better!

Have they not prescribed you any anti-vommiting drugs? Your wrap will still be healing and vommiting is not good for it.

I hope you recover swiftly and there are no further complications.
Anxiety, Depression, Hiatus Hernia? (different tests have disagreed), Esophageal Hypersensitivity

DOGGBONES
Veteran Member


Date Joined Apr 2012
Total Posts : 707
   Posted 5/23/2013 5:13 AM (GMT -6)   
Lady G,
Wow! Wishing you the best!!!

Teeth cleaner
Regular Member


Date Joined Mar 2013
Total Posts : 88
   Posted 5/23/2013 6:30 AM (GMT -6)   
Lady G,

I'm so sorry to hear you had a complication with your surgery! Just know that you have a lot of people thinking about you and praying for you! It's hard to believe how well you did after your Nissen- to be able to travel and all! You must have felt pretty good in the beginning! Stay strong in your recovery! You will get through this!

Wendy smilewinkgrin

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 5/23/2013 12:27 PM (GMT -6)   
Lady G-

Very sorry to hear this complication wasn't noticed during surgery or on the after surgery barium swallow.

I am posting a link to my story of complications after my 1st redo.

www.healingwell.com/community/default.aspx?f=45&m=2337138

Yes there can be issues during any surgery, but your surgeon should have caught this before closing.
You said they are waiting for an OR to become available for another surgery, what are they planning for you? If you do read my story you will see I had holes in my stomach that opened up even though they were sutured during the surgery and my barium swallow was good after surgery. I had only been home 1 day. Then I needed life saving surgery after a routine EGD perforated my esophagus and went unnoticed during the procedure and I didn't have any symptoms for about 2 hours or so IIRC.
Praying your recovery becomes easier for you every day. I do know what it's like not to be able to eat or drink for weeks at a time. It's tough, but doable.

Take care,
Bill devil
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/23/2013 5:46 PM (GMT -6)   
Hi Lady. G,
I have been waiting and waiting to hear what happened to you.  I knew it couldn't have been good.  Your experience is a surprise I have no experience with, so couldn't have given you that possibility.  The chance of that happening is tiny.  That's why they say, "Every surgery is major surgery"...there can always be unexpected complications.  You definitely had a bad-luck situation.  I've spoken to over a hundred Nissen patients, and Bill's endoscopy tear/holes in stomach from incorrectly done wrap, were the only big problems that have occurred (other than a tight wrap or motility issue).  A perforation is extremely serious, and I'm glad that you called and got to the hospital right away.
 
Now to the nausea.  You shouldn't be vomiting right now, as it is very bad for your healing wrap.  You need to get some very effective anti-nausea drugs immediately, as vomiting and retching can damage the wrap.  Once wrapped, you need to carry anti-nausea drugs at all times, just in case you get a stomach bug.  Don't put this off.  It's very important.
 
Having been through two major surgeries in as many weeks, you're going to have a lot of pain, and your recovery will be more challenging than the average Nissen post-op patient.  You'll have to be extra patient.
 
Still, even with all the problems you've had, I have to do it...
Welcome to the yeah yeah yeah Wrapped Club! yeah yeah yeah We'll be here for you for support and to answer questions tha might come up.  Rest, rest, rest, and get your strength back.  Hang in there, my friend!
Happy healing,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 5/23/2013 8:21:22 PM (GMT-6)


Ms G
Regular Member


Date Joined Apr 2013
Total Posts : 39
   Posted 6/18/2013 1:40 PM (GMT -6)   
6/18/13 Good day fellow Wrappers. Yes, I am back.

Thanks for your positive thoughts, prayers, book recommendation, support & encouragement. Yes, read all of the notes. Yes, Denise every surgery has the potential for complications at various levels & some of the time it has nothing to do with the surgeons skills. Today is one of my better days. I can sit longer and focus.

Okay. I am feeling much better. My trip right after the wrap had nothing to do with the medical issue to follow.

My surgeon is highly skilled in this area and I won't say anything more on that topic. So the second surgery was performed by the same doctor and we walked through all aspects of the surgery (except the wound vac) before time.

I was told I would need the wound vac until mid August. I came home on May 24th (the day before my birthday & I celebrated with my immediate family they ate and I watched....lol)

Around Wednesday May 29, I ended back in the ER because there was no gas or BM happening so I ended up having my stomach pumped. (If you go back and read my questions before surgery "any surprises" now you know why). After the stomach pumping we started over from day 1 of he NF diet. I never stopped walking while I was there. X-Rays showed a blockage. The surgeon and I did not want another surgery so we tried a few different things (I did safe yoga stretching that moves gas and Maalox was my best friend for moving the gas.

I tried prune juice & orange juice (1/2 & 1/2 mixed together and warmed) which moved gas and allowed for a BM. I remained in the hospital until June 7, 2013.The surgeon and I was both sure all things were working well now.

So I am home recovering with NO WOUND VAC! I did not have to keep it until August the huge whole that freaked me out all day closed properly (it doubles your healing time and sucks out all impurities while doing so) the medical staff and my family were cheering as I was crying because the vac could be removed.

2x's a day I have to put a clean dressing on the cut (it looks like a cat scratch now) held by paper tape and wear what ever I want....oh by the way....total lbs lost 25+ and down about 3 dress sizes and counting. I have not lost my summer fun and all is well as can be. Breathing still hurts (the diaphragm is still swollen) and I can't wear bra's still.


****PLEASE NOTE I DID NOT POST MY STORY TO SCARE ANYONE FROM HAVING THE NF "THE WRAP" BUT to give you more insight on what can happen. There is always a chance of having complications & we pray that we don't but there is a chance. I did not take the set backs easy but my surgeon talked to my sons 23& 26 and answered all their questions as well as mine, gave me her personal contact (by passing everyone-nurses, answering services and such) and sent me textes day and night making sure I was ok. I thank God for her. The one thing she could have done was try to excuse the issue or passed me off to someone else but she told me at the beginning she was invested in me & I told her the same.

******Anything that I did not mention here regarding the complication is for a reason.**********

Please have the surgery if you need it, have a good relationship with your surgeon and staff and make sure you have at least 2 people who will fight for you if you are unable to fight for your self. I was my own advocate & I was told I trained my sons well.

Peace & Blessings.
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Lady G

3 John 1:2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth. (KJV)

Psalm 19:14 (KJV)Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.

Post Edited (Lady.G) : 6/18/2013 8:08:44 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 6/18/2013 5:48 PM (GMT -6)   
Hi LadyG,
Glad to hear you're on the road to recovery.  I will tell you this; there is no way that anyone here could have prepared you for the complications that occurred with your surgery.  Yours is a first here at the forum. However, they always say that "every surgery is major surgery" just for that reason. Complications occur and you never know if you're going to be that tiny percentage point that has problems.  It happens very rarely, and you just got the bad luck of being the one who suffered with them. 
 
But that's behind you now.  You're on the road to recovery, thankfully.  Hang in there...it does get better!
Happy healing,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/18/2013 6:39 PM (GMT -6)   
Lady G

Glad to see you back and things are getting better. With my 2 strange complications I can somewhat relate to your experience. It's good to be out of the hospital!

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Post Edited (opnwhl4) : 6/19/2013 5:03:04 AM (GMT-6)


Ms G
Regular Member


Date Joined Apr 2013
Total Posts : 39
   Posted 6/18/2013 9:47 PM (GMT -6)   
Hey Bill. I thought of you during my second surgery. For some reason you stood out while I was researching and asking questions, I guess something on the inside was telling me that I maybe following your path to some degree.

I am doing a lot better now. Right now other than the cut that I have to dress....I am really healing from the wrap more. I am still on liquids. Every now and then I will take a bit of something soft and chew it like 50x before swallowing. The diaphragm still hurts.

The hospital staff and my surgeon were all surprise that I did not request pain meds. At first I had the pump and it was set for a dose of morphine every 6 minutes. When I woke up for the brief moment they were explaining things to me I told them that morphine does not work for me. They switched it out to Dilaudid I had the pump for 2 days and had only pushed the pump 5x's. (I have a real fear of being coming addicted to anything & dying over mixed drugs interactions & when I was able to stay conscious I explained it to my medical team. Most of the pain was gas & I just could not get my brain to understand why I would take narcotics for gas. After my stomach was pumped then the gas pains sat and moved every where I was cut....it was driving me crazy. Once we got the gas to move...Maalox (no prescribed medication worked) the pain eased up.

2 best meds. for me were over the counter Maalox and Dramamine;
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Lady G

3 John 1:2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth. (KJV)

Psalm 19:14 (KJV)Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/19/2013 6:10 AM (GMT -6)   
Lady G-

I know the feeling. My experience with my big surgeries so close was things seemed to take a bit longer to fully heal up.
Your body has really been through a lot! Go easy on the nissen recovery, it will come with time.

It's kind of weird because when my stomach leaked after my 1st redo it was good the day after surgery. It didn't start to leak until the 3rd morning after surgery and I was at home. I am surprised you were able to last as long as you did without going to the hospital. You are one tough cookie!

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Ms G
Regular Member


Date Joined Apr 2013
Total Posts : 39
   Posted 6/24/2013 1:37 AM (GMT -6)   
Hey Bill -

It took about 3 days before my navel started leaking. I had the surgery on Monday 5/6/13 I was released on Tuesday 5/7/13. Now looking back at the big picture my nave started leaking (drips) on Thursday 5/9/13 but it looked like iodine or something to that effect and it was just drops.

The only reason why I can say this is because I noticed the elastic on my panties went from being white to pink (I know TMI). It took me a day to figure out what was going on so I just went and got some gauze for my navel only. Friday the red fluid was lighter like pale pink so I figured it was getting better (again it was no a lot at all it was maybe 1 or 2 spots.

Friday night around 9pm all of a sudden my belly got hard and painfully swollen like it was going to bust. When I spoke to the surgeon she told me that was normal but I never mentioned the linking because it was going away, so I thought.

Saturday morning around 5:30-6:00 I felt a pop like a release in my stomach & the swelling got worst but since my surgeon had told me it was normal I did not call. When I stop to use the ladies room I then noticed the dressing was soaked I figured it was from sitting so long & when I got to the hotel 7:45- 8:15 am I laid down. While I was sleep I was wakened with a feeling that my stomach was in a flood I stood in front of the large full length mirror to see my navel and the it started pouring out like a faucet.

So we sort of had the same time frame. How long has it been since you had your wrap and are you still loosing weight?
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Lady G

3 John 1:2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth. (KJV)

Psalm 19:14 (KJV)Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.
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