GERD - PART IV

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tummywoes
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Date Joined Mar 2013
Total Posts : 361
   Posted 5/8/2013 1:26 PM (GMT -6)   
  • Here is a new thread guys.

Here's the old thread link, in case you're interested:

http://www.healingwell.com/community/default.aspx?f=45&m=2705204&p=10

Post Edited By Moderator (dencha) : 5/8/2013 7:06:19 PM (GMT-6)


Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 5/8/2013 2:00 PM (GMT -6)   
Thanks Gail for starting the new thread.

Natitc, I am sorry to hear about your setback. But that's how it goes. about three weeks ago, my stomach was feeling pretty good, so I kind of upped my portions and also got a little bit careless. For two days straight, I had battered (Fried) fish tacos. Even drank strawberry lemondade. Then I made a dish that is a personal favorite of mine: korean rice cake (it's basically white rice pasta) sauteed in lots of sugar and lots of red chili pepper sauce. Really spicy and sweet. Hey, I was feeling kind of good. I ate it for dinner and then I took the rest for lunch the next day. That night, I started to get some serious heartburn (which I usually don't), had really bad bm and my gastritis flared up and I couldn't really eat that much for about 3-4 days. So I ended losing more weight. We can't get carried away, I've learned.

My friend told me that he just took prilosec during that time. The initial endoscopy confirmed the gastritis but the follow-up endoscopy, a year later, still showed some stomach inflammation, he remembers. That's how long gastritis can take to heal. So you gotta give it chance to heal. Bad food is like picking scabs before the wound is healed. He did say that once it healed, he went back to pretty much eating everything again. For him, gastritis caused him to vomit constantly and it didn't completely go away for two years. I wondered how he survived. He was in college so perhaps he just had better healing power than us.

Finally, the ativan. It doesn't make me drowsy although it's different from person to person. I find that a quarter of a pill actually does the trick for me. I can feel the difference when I take none vs. taking a quarter. My doctor did tell me that it can be addictive and the less you take, the better you can do without when it's time to quit so that's why I am taking it in quarters. I take it at night right before I go to sleep mostly but once in a while, I will wake up and feel off, then I will take it in the morning too.

Post Edited (Chris K.) : 5/8/2013 3:12:33 PM (GMT-6)


tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 5/8/2013 2:15 PM (GMT -6)   
Chris,
That dish sounds good, but very spicy.....but I am sure it tasted so good at the time.  ;)
 
Anxiety meds, the only one I ever took was Xanax.  I also cut mine up in fourths and it did the trick.  I did not get sleepy taking the 1 quarter and doing all the usual things, like going to work. My dr. at the time also suggested anti=depressants and I said NO.  Too many people get messed up on them.   I was determined to not get addicted to anything, thus the cutting up.  I never felt I needed even 1/2 of the pill which was 0.5 mg.
 
Now I am sure I could use 1/2 this week however, but haven't touched them yet. 

natitc
Regular Member


Date Joined Feb 2013
Total Posts : 48
   Posted 5/8/2013 4:11 PM (GMT -6)   
Chris, your gastritis flare up sounds just like what I go through when I over indulge. I can't resist Mexican food and I'll always risk it just so I can have some. Sometimes it affects me and sometimes it doesn't. Strange.

Gail: I was told that anti-depressants aren't addictive like the benzos (Xanax, Ativan). I was also told that benzos aren't to be taken daily. For a person having anxiety attacks daily, they recommend you go on anti-depressents. This is all new to me so I'm trying to get as much info as I can.

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 5/8/2013 4:18 PM (GMT -6)   
Nat,
All I can tell you is my experience taking Xanax.  I took them off and on for several years just taking small doses.  It did control my anxiety totally.
I never got addicted because I did use such small doses.
 
Maybe they have new anti-depressants now that are not so mind altering.?
I do remember the horror stories about Prozac.
 
I am sure  you will research it and come up with a good decision.
 
I love Mexican too and miss it a lot!

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 5/8/2013 6:05 PM (GMT -6)   
Hello all,
Nat: I am not on HRT. My symptoms still so far are: anxiety, acid reflux. Last night was the first time I started to feel hot and this afternoon I was getting a hot flash (my first time). It has been two months since my last period and it doesn't feel like I am getting it again! My throat is better and I still take Zantac at night. The sour taste is better as well. For me it must be the oatmeal and banana that I was having everyday. I never thought banana would do that to me.

Chris: I can relate to you as I think I should cut down on my jasmine rice and yet I can't, I love eating it. I am feeling better in my throat. It isn't 100% but I am happy with the way it's going. If I remember correctly from the book, once you eat something bad it takes 24 hours to clear it down your system. Why do you have to cut out so many things at once? I thought it is better to eliminate one at a time: dairy, carbohydrate, etc. Believe me, I have been working on this since June 2011 from my diet to exercise, it is a very slow process.

Gail: I hate drinking the stuff for the colonoscopy as well. At the time I had gastritis and for the last cup I gave up, couldn't drink anymore. Try not to think too much about it. When is your appointment?

Roah: Hope you feel better today.

Sew, Will: Hope you two are doing well.

I signed up for a "Detoxify" course tonight. I went there all gear up to learn and the instructor didn't show up, not happy at all. I wonder if any of you ever taken this course?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/9/2013 11:21 AM (GMT -6)   
 
Kudos to you ! Thank you so much for restarting a new Part IV.  It is so good to see the freindships develop here in HealingWell.
 
Gentle Hugs,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 5/9/2013 12:03 PM (GMT -6)   
Kitt,
 
You are more than welcome!  ;)
I have been on the anxiety thread as well getting support for upcoming
colonoscopy tomorrow UCK!

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 5/9/2013 2:56 PM (GMT -6)   
LA familia!

sorry I been away, still dealing but I had to stay away from the computer or I would drive myself crazy with all the things LPR can do to someone, I made an appointment with an EXPERT on LPR I decided whatever I am willing to travel to get some closure, my last ENT just wasn't doing it for me, hopefully I can walk out with some medicine and answers for my mouth/throat/etc. It's just like really hard waking up with new things going on, my poor tongue is changing from the lPR getting some type of geographic tongue, poor me!!

hope everyone is doing good, and gail gosh we did have crappy week, I decided I will go through with the tests! depends on what my new doc wants.
GERD/LPR 3 months. College Student. Aspiring Dietitian/Registered Nurse.

"Where there is no struggle, there is no strength."

sewfun
Regular Member


Date Joined May 2011
Total Posts : 146
   Posted 5/10/2013 3:40 AM (GMT -6)   
I'm doing good. The first few days of the week always have their moments. Sunday is my day for reducing meds, but by Wednesday I was feeling less symptoms. If I can have a couple of more good days, I will reduce again Sunday. I'm being a chicken and only reducing an 1/8th of a pill at a time. It seems to be working though.

Roah, sorry you have had such a crappy week. I'm glad you are going to see a specialist. I hope he gives you the answer. You didn't mention when the appt was.

Gail, Today is the day you will hopefully get some answers. How are you feeling? Did you have any trouble with the prep? Keep us posted.

Nat, the gastritis will heal. We just have to baby our stomachs. I don't know exactly how long it took my stomach to heal, but it was under 2 years, and my pcp said it was the worst case he had ever seen. (He got the pictures). Hang in there.

Hi Chris.
Diagnosed GERD 4/2011, gastritis & esophagitis 5/2011 (healed now) and gastroparesis 6/2011
Medications: PPI-free 4/14/2013, stepping down Zantac
Domperidone 10 mg 3 times a day

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 5/10/2013 8:23 AM (GMT -6)   
Sew, yes, about 2 more hours then we leave ......so far I am not to nervous, but very tried. Prep was horrible!
I will check in when this is all over......thank you guys for caring!

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 5/10/2013 9:43 AM (GMT -6)   
Gail: hug to you.

I am doing better too on the Fast Track Diet. My throat is improving everyday.

Hope all of you are doing better: Sew, Roah, Chris, Will and Nat.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 5/10/2013 10:36 AM (GMT -6)   
Gail, GOOD LUCK and let us know how it goes. You'll be fine.

Roah, big hugs to you too. I am so sorry about everything, sweetie.

Sew, wow 2 years, huh? Just like my friend. I guess we (the gastritis club) are in it for the long haul. You are absolutely right. We have to baby it. The moment we get overconfident, we do things that the stomach isn't ready for.

Viv, I always knew I had to eliminate dairy. Right now, it's basically soy that is the new thing I am eliminating. Of course, soy is in a lot of food that you wouldn't even think of. Most breads that are wheat have a little bit of soy meal in it. I find myself just eating a lot of protein these days. I still consume carbs but very little of it. I think my diet is very similar to Fast Track. Yesterday, my foods were pea protein shake, peanut butter, steak, vegetables and beans and very little brown rice.

I am giving it another go at quitting the ppi. Today's my third day. So far so good.

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 5/10/2013 11:56 AM (GMT -6)   
Gail: big hugs!!!!! I hope you get postive answers.

Sew: Its one week from now (MAY 21), I probably have to go to dentist as well, because I am starting to get white lesions alone the insides of my cheeks and tounge I know LPR causes oral Leukoplakia(can turn cancerous) but mine is starting to early, I am going to bring all this up to my doctor!

Thanks everyone!
GERD/LPR 3 months. College Student. Aspiring Dietitian/Registered Nurse.

"Where there is no struggle, there is no strength."

natitc
Regular Member


Date Joined Feb 2013
Total Posts : 48
   Posted 5/10/2013 12:22 PM (GMT -6)   
Had a rough week. My gastritis flared up big time. Never had it last this long. It was so bad that today I had to go back to Prilosec to get rid of this acid and let my stomach heal again. I can't believe that I was happy as a lark for the past month...than just like that, I'm back to square one. It's funny because I think I've gotten used to feeling so crappy that it doesn't affect me anymore. In the past, if my stomach hurt just a bit, I would call in sick, stay in bed all day and not eat. Now, I say to myself, "not again" and I try my best to go about my day. I have a feeling I'll have more days like this down the road so I might as well learn to deal with it.

Gail: good luck today and try to relax! I'm getting that same test in a few months. Let me know how it goes.

Chris: Did you have any bad side effects while on Aciphex? I have sample bottles of them. Now that you quit, does your stomach feel any better?

Sew: Now that your stomach has healed do you get any flare ups? Are you on any medications?

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 5/10/2013 12:28 PM (GMT -6)   
Roah: are you taking anything for the lesions? They must hurt. Try to take it easy until your appointment. ((Hugs))

Sew: Which med are you reducing again? Sorry I got all mixed up now. I am trying to reduce the Zantac? Good to hear you have more good days.

Chris: are you quitting cold turkey? You sound better. I am a bit hungry on this diet. I am going to buy some nuts so I can eat them as snack.

Have a great weekend everyone.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 5/10/2013 2:00 PM (GMT -6)   
Nat, thanks for sharing. I know that it must be rough, having the gastritis come back on you like that. But I personally am glad that you are sharing your story because it kind of gives me a reference. I have had good stretches too although never a month. Maybe a week. Then I would forget to baby the stomach and eat spicy food or fatty food, then bam, the bloating and the indigestion would ramp up again. I will say that you are not back to square one. You are better than square one. You took some steps backwards, but you had taken a lot of steps forwards too. Even if the symptoms remind me of your past struggles, you are way ahead.

And about the aciphex, viv and nat, I don't know if there were bad side effects since it's hard to say what was the side effect and what was the gastritis. But aciphex and prilosec (which I took for a few days before they switched me to aciphex almost 2.5 months ago) do affect my digestion. I saw a lot of undigested food in my stool and that's because of the low stomach acid. The low stomach acid can really hinder digestion and nutrition absorption too so right now, my stomach doesn't feel perfect but it does feel better than before so I am going to try to go cold turkey again. It's too early to tell how I feel since it's only been 3 days and the acid valves could still be turned off. I've heard that rebound doesn't happen for 7-10 days after you quit so the true test is how I am going to deal with this a week from now.

I am taking dgl licorice, manuka honey, marshmallow root, aloe juice and mastic gum in place of aciphex.

sewfun
Regular Member


Date Joined May 2011
Total Posts : 146
   Posted 5/10/2013 2:07 PM (GMT -6)   
Chris, I actually don't know how long it took to heal. I didn't even recognize it had healed until the endoscopy showed it all clear. The second endoscopy was 21 months after the first one, so sometime before that I had healed. I had just not put it to the test. I'm going to wait a little while longer before trying spicey foods.

Viv, I am reducing the Zantac. I am at 5/8 of a 300 mg tablet twice a day. I'm eating pretty cleanly. I just have to make sure I don't overeat, and for me overeating is a relative term. At least I'm not losing weight!

Nat, I do not get gastritis flare ups, but I'm also not doing anything to bring on a flare up. My idea of living dangerously is having a cup of coffee......that usually just brings on HB. I was drinking alcohol until I stopped the prevacid. I've been afraid to even try alcohol during the worst of the rebound. Soon though, because I think my ppi rebound is quite diminished. Honestly the rebound was really not that bad; definitely not as bad as where I started. This weekend I will be 4 weeks ppi free!

As I think about this, if my gastritis is healed, I don't think it would just flare up; that one mis-step would bring the gastritis back. Does that make sense? When I was diagnosed with gastritis I use to take carafate in the middle of the night if I woke up, so the stomach could get the most out of the carafate while it was resting....and healing.

Roah, have mercy child, I do hope and pray you get answers and help soon!
Diagnosed GERD 4/2011, gastritis & esophagitis 5/2011 (healed now) and gastroparesis 6/2011
Medications: PPI-free 4/14/2013, stepping down Zantac
Domperidone 10 mg 3 times a day

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 5/10/2013 2:32 PM (GMT -6)   
They are not anything serious yet, so I wont know until I get to the doctor and I will take it easy I am going to distract myself by just eating right and focusing more on school, I just know when I get to my doctor I want to discuss all the possible medcines that are out there to treat these mutli-symptoms LOL

chris: I am so happy you are getting off the PPI those things mess you up big time dude, I hope you have easy transition, I was taking mine for 4 months and it took me 2 months and half you will have heartburn everyday then it becomes every other day or every other week, than it will go away or come back when you are just having regular heartburn, so take it easy and don't give up. I have GERD/LPR so my problem is silent reflux but I get heartburn once in while depending on when my LES wants to open LOL.

How do you know if your gastritis is back? because it all started with that for me and I never had any symptoms until I went to doc for my swallowing prob that he did CT scan and said oh and you have gastritis as well, you probably had it and never knew haha. I think I am called asymptomatic or something like that.
GERD/LPR 3 months. College Student. Aspiring Dietitian/Registered Nurse.

"Where there is no struggle, there is no strength."

tummywoes
Regular Member


Date Joined Mar 2013
Total Posts : 361
   Posted 5/10/2013 3:12 PM (GMT -6)   
Hi Everyone!    I am back home from the colonoscopy and the Endo,
 God!  I few scary moments prior to getting the drugs, but after that I do not remember a thing, not even getting dressed!.......I only had to wait a few minutes before they took me in.   I got through it without any Xanax also.
They saw quite a few things, I polup on the colon, I also had one inside my stomach.  They are doing biopies of both.  My stomach lining is completely inflamed, and the paper said I have IBS........so they have prescribed prescription Zantac.
I hope it helps because the OTC zantac didn't help that much.????
I can reassure you all that that prep is the worst part!  miserable all day yesterday and half the night.  
I am taking a nap now, I ate my favorite grilled cheese and it tasted so good!
 
I cannot begin to tell you all how relieved this is all over. ;)
 

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 5/10/2013 3:39 PM (GMT -6)   
WOW, gosh I am sorry you had to go through such nightmare week, how do they diagnose IBS? I always wondered about that, now I guess it's time to let your gut heal, but make sure you take it easy and the good thing about IBS/gastritis it can be easily/managed/cured but you would have to research on that, make sure you stay positive and ask for help, because like I told you before I have a lot answers for these two particular topics, part of my prepping as future nurse/dietitian haha! I am glad you found some type answer. It's battle though I tell you! :)

natitc
Regular Member


Date Joined Feb 2013
Total Posts : 48
   Posted 5/10/2013 4:14 PM (GMT -6)   
Chris: keep us posted on your progress with the PPI rebound and let me know how those natural remedies are working for you. I'd like to give them a try if they've been effective for you.

Sew: how long were on ppi? Are you taking Zantac now? How many mg per day? I'm taking Pepcid, but I think it's not working for me anymore. Would like to try Zantac.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 5/10/2013 4:40 PM (GMT -6)   
Gail, wow, what a day. Colonoscopy AND endoscopy on the same day. I know you hated it but way to knock out two on the same day.

Polyp in the colon is quite common. Sounds like you have a bad case of gastritis AND you got IBS. No wonder you are losing weight.

Get some rest and we can talk more later but diet is very important to control gastritis.

inpinkagony
Regular Member


Date Joined Mar 2013
Total Posts : 274
   Posted 5/10/2013 4:59 PM (GMT -6)   
Chris: I was going to ask you, how did you find out you had food sensitivities/intolerances/allergies? I am going to see a hollstic doctor around my area after the dentist/ent visits?? Did they do elimination test or skin tests? I heard that people who had gastritis once our gut heals it's not the same as it used to be so I think reason why I am having GERD/LPR due to the malfunctioning of my LES/UES (plus traumatic injury from that carnival ride), and sometimes our muscles in those areas malfunction because we can have food sensitive so if our gut is not willing to digest it or is sensitive to it, open the muscle goes which makes a lot sense to me why we reflux, because I was like it all started with gastritis and now I am here with two more intertwined illnesses, its amazing how everything plays together the nerves, the digestive tract, upper respiratory, the human anatomy is truly fascinating LOL.

Post Edited (inpinkagony) : 5/10/2013 5:02:44 PM (GMT-6)


sewfun
Regular Member


Date Joined May 2011
Total Posts : 146
   Posted 5/10/2013 5:31 PM (GMT -6)   
Nat, I was on ppi's from May 2011 until Apr 2013. I started to wean off the ppi in January. I took it very slowly until I was able to transition over to Zantac - 300 mg twice a day. Now I am taking about 200 mg twice a day. I am basically cutting off one end of a tablet. I cut off a little more each week. I figure slow and steady wins the race. HTH

Gail, glad it's behind you got that over with. Now you and your doc can make a plan. Get some much needed rest now.
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