Hello, newb here, just finding my way around, reading alot.
Have been dx with a 'small' HH 4 years ago and still get odd bouts of LPR (not diagnosed) and mild heartburn despite being on PPIs and diet change. (HH caused by violent coughing fit).
But has anyone else been affected in a way to become housebound/bedbound/disabled by such things ?
I've not had a normal life in all this time. Defo got more 'disabled' after the endo.
My vagus nerve seems to be very sensitive and I'm on beta blockers for the racing heart incidents (but my doc thinks it is for anxiety). I'm prone to the fainting episodes too.
Lately I think my PPIs are making me very very tired. (vitamin deficient ?)
Can anyone else relate to such debilitating issues caused by HH ? eg have to get up really slowly and upright from bed or a chair ? I can't lean forward more than a degree or two.
It's made me under weight and I've lost muscle mass too cos I can't exercise or do basic chores around the home like lift objects heavier than a half full kettle.