Welcome to HealingWell and I am so glad you found us. This site was started in 2003 and this particular forum has been very active so I hope we can help you.
I have not had a NF, however, one of our Moderators, Bill, has had redos so I am posting a link to his story. I know he will be along to talk with you as well as other members will respond to your questions also.
Here is the link for Bill's story; just click on the link:
I am glad you are going to advocate for yourself and make sure the surgeon you choose is someone you feel confident in.
Blessings to you,
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.
"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."