Great site here, but are there other group sites for Barrett's

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Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/25/2013 4:38 PM (GMT -6)   
Just curious if there are another sites on line that are as good as this one. But for Barrett's?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/25/2013 8:50 PM (GMT -6)   
Not sure. Your barretts has been removed with ablation, correct?

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/25/2013 9:42 PM (GMT -6)   
Yes, it was ablated. Checked and it had not returned. Doc says I have close to zero chance of it returning. But I have to be "religiously" take my ppi's twice daily and stay away from hamburgers and pizza. Initially he said come back in 3 years. I went back in 4 months. He said he would restore me in a year if I that would make feel better. You bet, I said!
I love this site. I have learned a lot and confirmed a lot here.
But, Barrett's puts me in a different league. Anxiety wise. However, I don't want to go to a doom and gloom environment either.

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/25/2013 9:44 PM (GMT -6)   
Restore should have been rescope. Darn I-pad.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/26/2013 12:24 AM (GMT -6)   
Teacherman


I have had barretts since '05 and opted for the nissen over huge doses of PPIS that weren't helping. With a functioning wrap my barretts hasn't advanced and now I go every 3 years vs every year to have it checked.
There are several of us here who have barretts, but only a couple I know of have went through with the ablation.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

DOGGBONES
Veteran Member


Date Joined Apr 2012
Total Posts : 707
   Posted 6/26/2013 6:25 AM (GMT -6)   
I'd like to be restored!  tongue

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/26/2013 8:23 AM (GMT -6)   
Thanks bill. It's good to know I am not alone here. How do you deal with the stress? I am thinking everything is reflux when it may not be. But what if it is? Drives me crazy. However, I am sure it is all related.
I am going to try some holy basil today. Hopefully it will help me with my stress. And not make me reflux.
I awoke this morning thinking I should just have the surgery. I am leaning more towards the LInx though. I was planning on having the nissen but the GI doc told me to read up on the LInx. My last visit he told me he could improve my quality of living with the surgery. I opted for more tests.
The numbers are in our favor. With or with the ablation it is t
Less than 1 percent. So why does it bother me so much?

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 6/26/2013 12:42 PM (GMT -6)   
Hi Teacherman. I also have Barretts, diagnosed a year ago with scope and biopsy. Mudmagnetmum has a great thread, which discusses the chances of progression...

For new members with concerns about Barretts
http://www.healingwell.com/community/default.aspx?f=45&m=2338513

John Hopkins Hospital runs a very open forum about Barretts. I have placed links from there to here, so I guess it's ok to do the reverse...
http://pds17.pathology.jhmi.edu/N/n.web?EP=N&URL=/MCGI/SEND1^WEBUTLTY(199,115)/1842473870

Finally, I have started a thread about advances in Digital microscopy which will soon lead to great improvements in diagnosis and management...
http://www.fortcharity.org.uk/phpBB3/viewtopic.php?f=2&t=1579

cheers
phil

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 6/26/2013 3:35 PM (GMT -6)   
Hi Phil, are you on ppi's? Did you or are you going to have the surgeries?

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 6/26/2013 5:53 PM (GMT -6)   
I'd like restoration treatment too!

I think the thing with Barretts is to be monitored and to try to keep it in perspective - as I've said many times, your chances of getting other more common cancers (breast, bowel, prostate etc) are much higher than your risk of Barretts transforming. Just think of all those women out there with abnormal smears who have to just live with it and keep getting rechecked! I know the oesophagus is a more scary site, but you need to try to keep perspective and look after your whole self, including your mental health. We all have to do what keeps us sane - for some that would mean annual endoscopy, for others it would mean ablation, others would be happy with a healthy lifestyle and occasional monitoring. I have endoscophobia (!!) so even biannual monitoring would put my anxiety levels through the roof!

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 6/27/2013 5:01 PM (GMT -6)   
Hi Teacherman, yes I am on PPI's, 1x20mg Omeprazole twice a day.
This keeps my heartburn symptoms at bay, with occasional acid breakthrough. I do worry when I get the breakthrough.
Re surgery, I have volunteered for the proposed Endostim trial here in the UK. If I am a suitable candidate, and the device works, I hope that I may be able to give up the PPI's. Later on I would look at Ablation.
If I don't make the trial, I will consider Endostim surgery as a private patient, if I can afford it.

There are a couple of other UK sites I refer to for further info on Barretts,

Barrett's Wessex
http://www.barrettswessex.org.uk/

and

Heartburn Cancer Awareness Campaign
http://www.h-cas.org/
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