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Abster69
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/30/2013 8:01 AM (GMT -6)   
My husband found this site for me last night and encouraged me to join and see if anyone had a similar story that I might find some comfort in.
 
So here I go...my problem started last October with lower abdominal and back pain. I thought I had a kidney infection but my doctor thought more of a kidney stone. I had a CT scan done and I did have a stone but in a location that shouldn't cause pain. My urinalysis kept showing blood and the pain continued.
 
By the first of December my stomach was involved. I would have a feeling of constipation even though I was very regular. I was baffled by this because I never had any trouble with my stomach. Now did I not only have abdominal pain but I would bloat something terrible. My daughter told me I looked like I was 5 months pregnant.
 
With time I was able to piece together that when I felt constipated worsening pain was coming. There were a couple of odd symptoms that started at this time that I thought was stupid. If I wore anything snug on my waist it created a lot of pain and if anyone pressed on my abdomen it also created a lot of pain, sometimes for days. 
 
With all of this going on foods started bothering me. An example is yogurt, I would eat a couple of bites and be in immediate pain but I would eat yogurt two days later and I was fine. I felt like I was playing Russian Roulette and in fact, I still am. I never know from day to day how I am going to feel.
 
My doctor has been trying to figure out what was creating all of this pain. I have been to couple of different doctors (Urologist, Gynecologist)and was finally referred onto a surgeon who thought I needed a endoscopy and a colonoscopy done.
 
The feeling of being constipated stopped by the end of March and I am not experiencing any symptoms of chronic constipation nor have I had any problems with diarrhea, just pain from my waist up.
 
I had the scopes done at the end of May and was told I had significant irritation from the bottom of my stomach up into my esophagus and from the bottom of my stomach into my small intestine. They did a biopsy from both locations. The biopsies showed abnormalities but not enough to indicate a certain disease.
 
Also a small mass was found in my stomach. He put me on Nexium and recommended a CT with contrast to see if this mass was true and it was spotted but very small, about the size of a marble.
 
I was referred on and just returned home yesterday from having an endoscopy ultrasound done. No mass was detected. I should be grateful for that but I am not. I have been wanting some resolution to all of my pain.
 
This whole situation has consumed my life. I was told that I have LA Grade B esophagitis which I have no idea what that means. Also, my Z-line was irregular and was found 39 cm from the incisors. Well, what does that mean??
 
I can tell today will be a hard day because I already feel bloated. I am asking anyone who has been through similar situations for any advise, input, or could help understand what I have going on.
Thank-you!
 
Edited with breaks for easier reading.

Post Edited By Moderator (dencha) : 6/30/2013 9:28:33 AM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 6/30/2013 9:31 AM (GMT -6)   
Hi Abster69,
Welcome to Healing Well!  I'm very sorry to hear about all your problems.  It's so frustrating to be going through so many tests without finding a clear diagnosis.  The GI issues you are describing (esophagitis, etc.) are common with people on this site. 
 
The other issues are not something I've heard about, although there are many members participating here, and it's likely you'll find others who share at least some of those symptoms and diagnoses.
 
Glad you've joined the forum!  It's a great place to share and get support.
Good luck finding answers!
Best wishes,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Mollymarie
Regular Member


Date Joined Mar 2013
Total Posts : 58
   Posted 6/30/2013 3:16 PM (GMT -6)   
Hi,

When I first started with stomach problems I had an endoscopy which like you showed inflammation the oesophagus and the duodenum ( the bit leading from your stomach). It turned out to be gastroparesis ( delayed gastric emptying). I might be worth asking your doc for a gastric emptying study. It's not a bad test really, you just eat food, chicken soup in my case which has radioactivity in it. You then stand in front of a camera and it films it going down.

I also get the same constipated feelings and the same food problem. In that I think I've solved my problems and found the food that's troubling me and then find that actually it doesn't trouble me at all.

I completely understand your frustration about the mass, I get like that when I've had tests come back negative. It's a completely normal reaction to the frustration of it all.

I'm not sure what the z line etc means though.

I've been fobbed off for years by one doc who said it was IBS, I'm now challenging this.

Good luck

Xx

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/30/2013 6:16 PM (GMT -6)   
Abster69

The irregular Z line means you have had some damage from refluxing. It's quite a common thing with acid reflux. Sometimes a stricture can form there also.


Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Cloe773
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/30/2013 7:43 PM (GMT -6)   
I have suffered similar symptoms. I get bloating that lasts for weeks on end sometimes! Have you ever been tested for a lactose or gluten allergy? I am actually going tomorrow for testing to see if a sensitivity to a specific food has been at the root of my problems all these years. May be worth looking into!
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