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mitsie
Regular Member


Date Joined Apr 2010
Total Posts : 129
   Posted 7/19/2013 6:04 PM (GMT -6)   
Hi.
 
I'm still having problems.   It all seemed to start after losing 50lbs which I know is strange because usually losing weight helps.
 
Im pretty sure I had signs of reflux before losing weight, but just didnt realize the signs of reflux.
 
I used to drool on my pillow at night.  Not a lot but some, just thought I was weird.   I had a cough too and thought it was from my blood pressure pills as that was a listed side effect.
 
I had the TIF surgery April of 2010 the surgical clips came undone.   Then in Oct of 2010 I had a full nissen fundoplication.
 
I had all the tests for the surgery in oct. 2010 and had one of the best surgeons.    Well 5 days later I had burning on my tongue and in my nose.   Had tests to check the surgery and a bravo and a barium swallow.  No acid registered and the surgery was fine.   It was suggested that maybe I had nerve damage from the TIF surgery.
 
I thought I had burning mouth syndrome so all this time I have been trying to solve this problem for burning mouth.   I had a bad taste in my mouth and my tongue was actually sore my nose burns.   This is driving me crazy.
 
about 4 months ago I changed DRs and after a time he suggested that it was possible that I could still have acid reflux.    He wrote a prescription for Nexium.   I didnt really notice much difference with the Nexium, but a month or so later I had a really sore throat, well Im one of these people that get a mirror and look.   Well when I did I could see yellow on this place behind my tongue going down the throat.  I think its called the epiglottis.   Well that really scared me I thought it was infected so I made an appt with an ENT.    He did the nasal scope, not sure what its called, he had a student in with him so Im sure I learned a lot more than I usually would.    He was telling him that this fluid is a sign of reflux and that I had cobbling.   He wrote me a prescription for 300 mg of zantac.   Well after I started taking that my tongue wasnt sore any more and the bad taste left some.   I also had an earache off and on and that doesnt seem to be a problem any more.   I put vasaline in my nose and that kind of helps with the burning nose.
 
I had a barium swallow and it shows acid reflux and peristalsis.   I finally made an appt at UPMC in pittsburgh and I am scheduled for the test for motility the first week of Aug.
 
The dr is thinking that my nissen wrap is too tight.   I dont know what he is recommending to repair this yet.   He mentioned take down of the old nissen and doing a loser one and he also mentioned a partial Gastric bypass.   Now my question is has anyone heard of having a partial gastric bypass for acid reflux?
 
Sorry for the long email.
thanks

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/21/2013 9:04 AM (GMT -6)   
Hi mitsie,
Wow...you've been through a lot.  I have heard of a gastric bypass and partial wrap to take care of reflux.  I suggest you make a big list of questions for your next appointment, so you get everything clear in your mind. 
 
So sorry you've had to deal with so many problems!  I hope you find answers and can get feeling better with the quality of life you're seeking.
Hang in there!
Best wishes,
Denise
 
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 7/21/2013 10:51 AM (GMT -6)   
How can a wrap that's too tight cause reflux? I have often wondered that myself... Like you mitsie, I'm still having problems after my TIF. Not really sure why it's reaching my throat so vigorously, but it is... You mentioned you have ear pain. I have that too... But from reading your post it seemed like nexium didn't help, but zantacs 300 did? I'm on nexium right now... It doesn't make a dent in my ear pain/hearing loss.
Anyways, Keep us updated on how things go and best of luck!
-TheSixness-

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/21/2013 11:41 AM (GMT -6)   
Hi TheSixness,
A too tight wrap can create a problem with food backing up at the wrap site and irritating the esophagus.  The pain mimics reflux, and the esophagus creates mucous in an attempt to protect itself from the offending foods/drinks/medication, which also happens when there is reflux.
 
The brain receives a reflux signal, even though there isn't reflux from the stomach.  Instead, everything backing up (even though they eventually makes it through the too tight wrap) create the reflux sensation. 
Good question!
Hang in there Mitsie!
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

mitsie
Regular Member


Date Joined Apr 2010
Total Posts : 129
   Posted 7/21/2013 8:19 PM (GMT -6)   
Sixness sorry I didn't make clear about my meds. The 300mg of Zantac is added to my prescription of nexium.

My barium swallow showed that the barium just stayed in my esophagus instead of going down. The surgeon said my esophagus was normal at the beginning then was odd kind of ballooned out then went real narrow. I do get things stuck that just don't go down so I have to kind of bring it back up. Sorry too much info.

I did have ear pain. Bloody nose..sores in my nose...dizziness until I added the Zantac. I still have burning nose and tongue and bad taste sometimes.

I have 3wks until my manometry then my appt with the surgeon and he said to make sure I saw him as this was kind of complicated.

My tif surgery came undone none of the clamps stayed in place.

The surgeon said with the partial gastric bypass you didn't need the valve.

Denise and sixness thanks for the good wishes

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/21/2013 9:09 PM (GMT -6)   
Hi mitsie,
You've sure been through a lot, and still have an excellent attitude.  It'll help you get through all this.  Too bad about the TIF.  Good luck with your appointments and tests.  Let us know what you find out.
Best wishes,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
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