24 hr esophageal pH procedure reassurance

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Ruhr
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Date Joined Jul 2013
Total Posts : 53
   Posted 7/21/2013 5:26 PM (GMT -6)   
Guys and gals,

I'm having a 24 hour esophageal pH test done tomorrow morning. Emotionally, I'm strangely calm about it, although I suppose I have intellectual fears/concerns about this procedure. Maybe it hasn't hit me yet, and I might freak out in the lab room when it starts.

Any words of reassurance from those of you out there who had this done? Having that thing stuck through the nose...would be enough to scare anyone, eh?

Discomfort? Not painful? ???

Ruhr

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 7/21/2013 5:31 PM (GMT -6)   
I need to have it done too.  Please let me know how you do.  I tried it a few weeks ago and because my nose has been badly broken they couldnt get the tube in, but i really must do it.  I hope you post on here and let us know. 

fishguy
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Date Joined Jun 2013
Total Posts : 23
   Posted 7/21/2013 5:53 PM (GMT -6)   
I got a tip from someone on this forum which was really helpful. Keep drinking the liquid non-stop until the tube is all the way in. That helped it slide in and I think it made me concentrate on drinking rather than on the tube going down.

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/21/2013 6:08 PM (GMT -6)   
Thanks for the tip, fishguy.

I've located some excellent YouTube videos of folks discussing the procedure, and they've been mostly reassuring that it's not too bad (well, except one where the guy's gagging on camera. Freaks me out a little). I just hope everything goes OK.

Not sure if I'm getting a manometry first. Might be only the 24 hour study. Though, if they make me drink liquid, I'll remember to focus on drinking. One of the videos told me to put my tongue in between my teeth for those times when they tell me NOT to swallow, so, I'll try anything.

Thanks folks!

Ruhr

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/21/2013 7:33 PM (GMT -6)   
Holding your tongue is what helps with not doing a second swallow during a manometry. The PHi study probe is a lot smaller than the manometry one. Every time I had the PH study done I also had the manometry done right before it.
This was to determine at what length the LES is so they can position the PH probe correctly.

Take care,
Bill devil
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/21/2013 7:43 PM (GMT -6)   
Ruhr,
If they took a measurement and recorded it during any endoscopy you had, you may not need a manometry first.  I had to have manometry to get the measurement for placement of the 24 hr ph monitoring. 
 
The PH test is really not difficult...just a little uncomfortable.  If you have a deviated septum be sure to let the doctor or nurse know that.  They'll put the wire into the other nostril. 
 
You just swallow down the wire, which sounds worse than it is, then they tape it to your face so it doesn't slip.  Off you go with the little machine that records your acid reflux episodes for 24 hours.  I was told not to eat certain things, but otherwise I was able to do whatever I wanted.  You go back the next day (happily) and get the wire removed and hand in the monitor.  Usually they'll look to make sure the results registered properly.
 
I preferred to take the day off, as I didn't want to be wandering around in public with the tube coming out of my nose.  Some people don't mind a bit, and go about their normal routines.
 
Good luck!  Let us know how it goes.
Take care,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/21/2013 9:19 PM (GMT -6)   
Thanks for the responses guys! I elected to take off tomorrow. Explained it to my boss. She agreed with me--I'd probably be a little uncomfortable and start getting tired of having to keep explaining it to people. Better to just go home and not deal. I'll be sure to keep active and do some light housework and chores, to get an accurate reading.

I'll report back on how things go. It'll soon be midnight for me: no drinking/eating after 12am!! I'll take my last gulps of water shortly

Ruhr

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/22/2013 12:31 PM (GMT -6)   
OK, well this morning went OK. The only hard part was putting the probe in. There was a slight burning sensation in my nose as the nurse advanced the probe.

The tips on lightly biting the tongue during times I was asked not to swallow, was very helpful! My only contribution: don't forget to breathe! I was concentrating so much not to swallow that I was holding my breath without knowing it.

I'm supposed to be moderately active, though all I felt like doing all day has been to sleep. Just feel tired. This thing seems so psychologically draining. I just want it to be tomorrow and get this thing out already. I know I can get through this, though.

Oh, BTW, there was no manometry test. I guess that test wasn't ordered by the doctor. Just the 24 hr. probe. The nurse did need to take some time to adjust the length--pulling it out a little and advancing it a couple of times, until she got a good reading.

Ruhr

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/22/2013 2:33 PM (GMT -6)   
Well done - it'll soon be over!

I'm confused by my hospital's description of the test - does the wire really go all the way from your stomach to the box on your waist?! I thought it sent radio wave messages to the box but it seems not?

MMM

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/22/2013 6:54 PM (GMT -6)   
MMM-

The bravo does send it that way, butt the wired probe is directly connected.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/22/2013 8:14 PM (GMT -6)   
MMM,

My probe was directly connected: it is actually a thin copper-looking catheter that they strung through my nose, down my throat, into the esophagus.

Today was not a big shortness of breath day (mixed blessing: I kinda wanted those SOB bouts to show up in the data). But I think I'm getting tired of this probe. I feel slight heartburn sensations, and I'm recording it in my diary, though maybe it's really the probe that's causing this.

It's been such a drag all. It is mentally draining. I did watch a movie after dinner though, to try to take my mind off it and pass the time.

10 hours to go. I'm going to go to bed so I can pass the time quickly. I'm tired of this stuff already. Let it be over.

Ruhr.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/23/2013 1:19 AM (GMT -6)   
Have a good sleep Ruhr. By the time you wake up I'll have started mine - IF I can tolerate the wire - I'm pretty scared!

MMM

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/23/2013 5:53 AM (GMT -6)   
How are you doing Ruhr?

I've started mine but it was pretty horrendous! Took 3 goes to pass the first tube because it hurt the back of my throat so much (the bit of throat you can see if you say "ah" to a mirror!). After much choking, coughing and crying (me not them) it went down on the last try. I had no sensation of the catheter below that bit of throat so didn't mind it being in my stomach.

Swallowing the water lying down was also a challenge and made me cough and splutter until I learnt to catch the bolus of water as it was squirted in and form a proper mouthful and swallow from it. Had to do that about 12 times as I had coughed!

Was almost as horrible putting in the second catheter but that time I knew how long I had to grit my teeth for. Would have been useful to know how long it takes to get it in place e.g if they said "keep swallowing, don't stop, it will take half a minute". The biting or fixing tongue tip was useful and I didn't get told to repeat any swallows other than those I'd coughed over!!

I feel quite uncomfortable, like I have a very sore throat. Having to wash food down with a lot of drink. Not got huge amount of symptoms, so am very worried this will all be for nothing.

Fifth day off the PPI was pretty bad, after that it's not been as bad as I thought, so am tempted to try Zantac for a bit and see how long I last. My skin is so much better off the PPI it's hard to think about taking it again, but I guess that day won't be far off.

I found the manometry pretty hard with the choking sensation and pain at back of throat - wondering if I do have hypersensitivity and not much else!

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/23/2013 5:56 AM (GMT -6)   
PS: unexpected things - not allowed to drink alcohol during the test and secondly haven't been given an activity diary, just told to record beginning and end of eating or drinking.

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/23/2013 7:25 AM (GMT -6)   
MMM,

Sorry to hear your manometry was a little rough. I didn't have that done--just the 24 hr tube. The 24 hr tube is a lot thinner so I could imagine the manometry one was very difficult! At least it is behind you now.

Try to do things today and tonight that will take your mind off that tube. Watch a movie, or the television. Take a nap. Go to bed early to pass the time!

The only thing about this morning was the quick yank getting it out. My left nostril was sore for about 5-10 minutes, but then that was that! I'm glad it's out and I feel normal again. Now for a nice refreshing shower (I couldn't do that yesterday!), and off to work.

You'll get through this day!

Ruhr

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/23/2013 7:46 AM (GMT -6)   
Thanks Ruhr. I feel like I have a sore throat from it. So am managing normal activity but hard to eat normally.

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Teacherman
Regular Member


Date Joined Jun 2013
Total Posts : 172
   Posted 7/23/2013 9:18 AM (GMT -6)   
I've had the 48 hour hour and 24 hour tests. The only thing that was fun about it was my docs all told me to eat what I wanted so they could see how my system was working while taxed.
So, maybe you can eat all the foods you don't normally eat. I had baby back ribs, pizza and ice cream. In the future , I will eat a lot before I have the test and while I have the tests. Sometimes I think it takes my system a few days to get to that nasty point of reflux.

Mollymarie
Regular Member


Date Joined Mar 2013
Total Posts : 58
   Posted 7/23/2013 5:10 PM (GMT -6)   
I remember being told that I could eat whatever I wanted so I was really looking forward to it. But then I couldn't eat, I felt that rubbish. I also just felt like wanting to sleep.

I hope you're sleeping we'll now MMM. Which hospital are you under?

Xx

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/23/2013 6:13 PM (GMT -6)   
Molly,

Yeah, I know what you mean. I had plans to try to stay active yesterday to get good test results, and all I wanted to do was lie down and sleep. In terms of eating, I ate slowly though I still felt like crap. Plus, they said no wine, orange juice, or fizzy colas. No antacids. I mean, what the hey? I felt cheated.

I'm just glad it's done and over.

MMM, hopefully it's gone OK for you so far. Tell us when you get your probe out (yay!)

Ruhr

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/24/2013 1:32 AM (GMT -6)   
Thanks both of you - 2 hours to go!

Slept sort of OK but it's hard with the box and the wire following you!

Also had a scary moment when our young cat went for the wire poking out of my clothes - luckily my shriek put her off!!

I ate ice cream too and tried to eat good quantities but it was hard. Tried to have a drink of water on my way to bed but felt sick so only managed a cupful.

Hospital is in Manchester (uk) Mollie - on my way back there soon.

Disappointed was only allowed to drink, tea, coffee or milk. No fruit juice allowed or fizzy drinks or alcohol. Managed some coffee but haven't drunk tea since my GERD kicked off as it makes me feel sick. Am allergic to milk, so that left me with as much coffee as I could cope with and water.

Still very confused that there was no activity log to complete - I thought it mattered whether you were bending, exercising etc etc

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/24/2013 1:34 AM (GMT -6)   
PS also told no fizzy water because it is acidic?! The little mudmagnets drink fizzy water and I checked the pH because I was worried about their teeth - it's pH neutral!

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/24/2013 1:41 AM (GMT -6)   
Seems to depend on the source of the water but ours says it's pH 7.0
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Mollymarie
Regular Member


Date Joined Mar 2013
Total Posts : 58
   Posted 7/24/2013 3:51 AM (GMT -6)   
Ruhr, did they give you any indication of the results when they took it out?
I've still got a dent in my nose from where the tube was over a year ago.

MMM, which hospital in Manchester? Sorry, I sound like a stalker!! I was at Wythenshawe for all of mine.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/24/2013 6:46 AM (GMT -6)   
Hi, yes my consultant is at Wythenshawe but they said they don't do the manometry there and I had to go to Hope Hospital for it!! Fortunately the motorways and parking etc was all OK, but it kind of added to the stress!

I seem to have been a roundabout route - my GP always referred me to a physician to get gastroscopies done (which is another saga for me and I had the last 2 under GA). But because consultants can't do tertiary referrals any more without you going back through the "gatekeeper", I never got passed on to a surgeon. I didn't pursue that either because I was scared of manometry, but at least that's done now. So after 3 years I am finally seeing a surgeon. I went private for my first appointment cos I wanted to be sure of seeing the consultant and not reg/junior. When I did have my NHS appt, sure enough I saw the reg, who could answer none of my questions about manometry and whose excuse was "I don't know, it's not done here"!!

I go back in 5 weeks for the results of the manometry and 24 hrs pH.

Where are you up to with things - were your manometry results useful?

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Mollymarie
Regular Member


Date Joined Mar 2013
Total Posts : 58
   Posted 7/24/2013 7:07 AM (GMT -6)   
Woah!! That's shocking, I've had 3 mannometries at Wythenshawe. I can't understand why they say they don't do them!!! I did have one at Hope when I was a child but I was under Stepping Hill then.

When you go to your next appointment tell the nurse when you arrive that you want to see the consultant himself. That's what I do :-)

Did you get any scores from your mannometries today? I was told my demeester was 26 and my Los pressure was 3mmHg and also I didn't have very good contrations in my oesophagus. I could see that on the screen.

So all that got me my Nissen in January this year :-D I'm doing really well, reflux has gone, Asthma has gone, I'm off Nexium so all my IBS symptoms have gone, I still get pain, mostly in my back and chest but I'm very happy, it was definitely the best thing I have ever done.

Who is your surgeon and GI?

My surgeon is an amazing man and definitely one of my heroes ;-) He could read me like a book and was very kind and understanding and when I had problems he was very quick to try and sort them out

I'm sorry you have problems with endoscopes, in my opinion after having many of them, the surgeons are better at them than the GIs.
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