My Path to healing from GERD / LPR

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Bryter-Later
New Member


Date Joined Jul 2013
Total Posts : 5
   Posted 7/22/2013 10:32 PM (GMT -6)   
Hello,

I've been lurking on this board for a few years and have tried everything to get some relief.
I think I have found the cure for myself, maybe my experience can help someone else.

Brief background, I am an early 40's male, very thin and healthy with a BMI of 18.7 and no other health issues.
I have had severe acid reflux and LPR symptoms since my late teens, constant burning, cough and nasal drip. A Five years ago I developed total loss of swallowing, my weight quickly dropped quickly from 135 to 120 and I saw my doctor who put me on Prilosec which helped enormously. For the past 5 years I have been on Prilosec at least once daily, sometimes 2 or 3 pills per day and gradually it stopped working. I went in for a scope and my doc told me that my LES is functioning properly though he did see serious redness, irritation and inflammation. I tested negative for celiac and all other gastro disorders. He is a thorough and careful doctor who was truly stumped. He said I shouldn't be having any GERD or LPR based on his findings. he suggested I try eliminating different things from my diet and see what happens, Fo about the past year I have been doing just that, eliminating one thing at a time and experiencing varying degrees of success. I have recently tried something drastic with my diet. No sugar and nothing with wheat or gluten. There are studies showing that gluten causes an adverse immune response in a lot of otherwise healthy people, it was worth a shot.
I am happy to report that my GERD has resolved itself by about 90% as well as my LPR symptoms. My burping is also drastically reduced. I live in NYC and have enjoyed pizza, pastries and sandwiches daily for my entire adult life. No wheat means no candy like Twix or Kit Kat, no bread, no sandwiches, no cake or pie, no pizza, no crackers, nothing "breaded" like chicken fingers, etc... I love bread more than anything and stopping cold turkey was impossibly difficult. The interesting thing is that after about 5 or 6 days I completely lost all cravings for bread and now I don't miss it at all. I also loved candy bars, especially those little Justin's organic peanut butter cups, agin, I stopped cold turkey at the same time. I also cut out all dairy, no cheese, no gelato (I miss Grom Gelato in the Village like crazy) especially in this summer heat. If you live in NYC then you probably know Grom. It's crushing. Oddly again, a week without sugar and the horrible craving are completely gone. I've been basically living on brown rice, various beans, corn products, leafy greens like Kale, Spinach and lettuce, bananas, gluten free oats, quinoa, apples, potatoes any sort of chicken and turkey (except breaded or fried) and any berries I can get my hands on like blueberries, strawberries and black raspberries which can stave away GERD related cancers (according to studies I've read).
I also consume no red meat of any kind and switched from coffee to white and green teas with honey.
Lastly, for good measure I eliminated all foods containing Carageenan, Guar gum and Xanthan gum, all proven gastro irritants. You's be surprised how many food products contain one or more of these 3 additives. I had to give up soy milk because every brand I found has Carageenan, just rice milk for me from now on.
Like probably everyone else on this board I have researched every aspect of GERD to death trying to find the magic bullet to relive my GERD/LPR symptoms without surgery.
A simple Google search of gluten, inflammation and reflux will yield a lot of helpful information.
Imagine going from 1-3 Prilosec's a day to 1 or 2 Tagamet's per week? That's my experience with this diet change. I can't say exactly which single or combination of changes did the trick but that's my diet and I am easily 90% cured on my best days and 70% cured on my worst. I still plan to continue seeing my gastro doc once a year and will have a scope every 2 or 3 years just to be on the safe side. If I stick to this diet then hopefully I'll experience a better cure rate, so far it's only been a few weeks but honestly the best few weeks I've had in over 20 years. No more LPR symptoms, I even sleep on a flat bad the last two night, I haven't been able to do that for 5 years!
Anyone try anything similar with their diets? I'd like to hear anyone else's experiences or feedback.
Thanks for reading.

shifting
Regular Member


Date Joined Jun 2013
Total Posts : 28
   Posted 7/23/2013 8:57 AM (GMT -6)   
Thank you so much for sharing your story. I am writing just to give a perspective. I am about 80-90 percent cured of my GERD symptoms when I DO eat wheat and dairy. The key for me seems to be low fat, low acid, low spice--kind of the classics. I tried going gluten free for a week using mainly rice and corn products and did not feel so good. Just shows how every case is individualized and we just have to be persistent! Good for you for finding your magic bullet!

Ruhr
Regular Member


Date Joined Jul 2013
Total Posts : 53
   Posted 7/23/2013 7:22 PM (GMT -6)   
Bryter,

That's really encouraging to hear a success story like that. I'm glad you've found a diet that you can live with!

I haven't tried outright *eliminating* anything from my diet yet. Just...reduction of things (though, come to think of it, I don't eat spaghetti with the tomato sauce any more). I suppose if things get worse, I'll have to think about elimination. Shifting is right--every case is different--though it's good to get some ideas from these boards!

Take care,

Ruhr

getbettertummy
New Member


Date Joined Jun 2013
Total Posts : 10
   Posted 7/23/2013 8:56 PM (GMT -6)   
THE HYPOALLERGENIC DIET is very good option also. I tried it for a week and feeling a lot of difference here is a good example http://www.gaianaturopathic.com/docs/hypoallergenic_diet.pdf

getbettertummy
New Member


Date Joined Jun 2013
Total Posts : 10
   Posted 7/24/2013 6:45 AM (GMT -6)   
Bruter, look at the diet I posted and try to make few adjustments in your food intake. Try stopping bananas for few days as well, they on the list of undesirables. A lot of times when people see improvements eliminating Glutten they don't realize that problem is not neccesary in Glutten but in the yest. If illuminating milk products helped then go step further and illuminate anything containing milk protein. That includes lactose free products, butter, milk protein drinks, etc... Eggs also could be a major contributor. Try the hypoallergenic diet for few days and see if you improve any more. It seems to be working for me well, but I'll wait for a bit longer to be certain.

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 7/24/2013 12:16 PM (GMT -6)   
Bryter, thanks for the post. I have been battling gastro issues for nearly 9 months and it's been really hard, both physically and mentally.

I have one question. I don't doubt that gluten free diet has helped you. But were you able to resolve why you tested negative for celiac's?

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/24/2013 12:49 PM (GMT -6)   
 
Thanks for posting how changing your eating plan worked for you.  You asked if any other members had luck with dietary changes.  There are a great many threads about food choices and how changing what one eats has helped decrease the symptoms of GERD.  I am going to post a few links for you to read through:
 
 
 
Good Luck and glad to know you are advocating for yourself.
 
Kindly,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 7/24/2013 1:09 PM (GMT -6)   
How do you keep from dropping too much weight?

Chris K.
Regular Member


Date Joined Mar 2013
Total Posts : 197
   Posted 7/24/2013 1:55 PM (GMT -6)   
lobstahguy, are you eating as much as you used to?
For lot of the GERD sufferers, it's simply a caloric intake thing when it comes to weight. Having to cut this out, cut that out and with gut issues, you just simply don't eat as much which naturally leads to weight loss.
GERD has been the best diet plan I ever had. I am kidding of course but in a way, it really has been.

Snowinsummer
Regular Member


Date Joined Jan 2013
Total Posts : 40
   Posted 7/24/2013 2:59 PM (GMT -6)   
Bryter, my experience is similar to yours. By eliminating gluten and dairy (casein and whey), and sticking to a low carb diet I've cured my LPR/GERD. No more coughing, choking or lump in the throat feeling. If I accidentally consume the tiniest bit of gluten or dairy, my symptoms immediately return.

I recently tested negative for Celiac Disease, but my GP diagnosed me as having non-celiac gluten-sensitivity. I've lost about 7 lbs, and maintain my current weight with lots of high calorie snacks like nuts, nut butters and seeds. Although I've cut out cow dairy products, I can eat goat cheese just fine.

It's such a pleasure to drink coffee again , and to have an occasional glass of wine!

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 7/24/2013 3:29 PM (GMT -6)   
Snowinsummer. What tests do they do to determine gluten sensitivity versus Celiac. I understand the gut biopsy but what do the docs order to determine gluten sensitivity. Thanks

Snowinsummer
Regular Member


Date Joined Jan 2013
Total Posts : 40
   Posted 7/24/2013 4:02 PM (GMT -6)   
To my knowledge there is no test for gluten sensitivity. Diagnosis is based of process of elimination and symptomology. I tested negative for two celiac genetic markers (HLA-DQ 2 and DQ8), and my biopsy was negative. I had been off gluten for about 6 months when i had the biopsy , so the results are not reliable, but since I don't have the genetic markers it's unlikely I'm celiac. There is a lot of research underway for gluten sensitivity.... Maybe someday there will be a definitive test. For me, I feel so much better off gluten and dairy that I'll don't think I'll ever go back.

Bryter-Later
New Member


Date Joined Jul 2013
Total Posts : 5
   Posted 7/25/2013 6:01 PM (GMT -6)   
It's good to read everyone's diet experiences.
It seems that gluten sensitivity without celiac's might be more common than most people know.
It's really difficult to say what has helped me to recover from over 20 years of reflux.
For now I'll keep to my gluten free/dairy free diet since it's working so well.

As an aside, has anyone heard about microbe colonies possibly contributing or even causing reflux?
I just read this recent study from NYU which might be worth looking into:
http://newsandviews.med.nyu.edu/study-offers-new-insight-causes-gerd

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 7/25/2013 8:23 PM (GMT -6)   
Snowinsummer
Thanks. Appreciate the information. Looking into it. Pat

dread
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/12/2013 6:24 AM (GMT -6)   
I huv gerd... My gerd symptoms improve like 78%, but I am still having heart palps and a moving heavy feeling in my right side back and sometime in my chest, what could have cause that?

Bree_cda
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/11/2013 7:42 PM (GMT -6)   
I'm currently reading Wheat Belly and the author claims wheat, not just gluten can cause acid reflux. I recently got a endoscopy that showed grade 2 esophogitis so the GI put me on 2x 40 gm protonix so I've been looking into alternatives for once my esophagus heals. Eliminating wheat seems worth trying

javery
Regular Member


Date Joined Sep 2013
Total Posts : 262
   Posted 12/12/2013 8:37 AM (GMT -6)   
I was able to go from 40 mg protonix once a day, which at one point started not working anymore, down to 10 mg famotidine (pepcid ac) 2-3 times a day. What I did was cut out all grain/oat based items and all dairy products. I basically ended up on the paleo diet. I also juice every morning for breakfast. When on the protonix I also noticed that it took 5+ hours for my stomach to empty after eating. Now it takes 1-3 hours for it to empty even while taking the pepcid. I've also tried multiple supplements that may or may not have helped. What I can say is that the diet change is the biggest thing that helped.

Gondore
Regular Member


Date Joined Jan 2014
Total Posts : 119
   Posted 1/8/2014 11:32 AM (GMT -6)   
javery, what levels of symptoms do you have using just the pepcid?

javery
Regular Member


Date Joined Sep 2013
Total Posts : 262
   Posted 1/8/2014 12:07 PM (GMT -6)   
I have actually dropped 1 pepcid a day since that last post of mine and I get a slight burning sensation that isn't even close to the experiences I've had in the past. The burning sensation is also at the bottom of the esophagus and once I feel it coming on, I then take 1 extra strength tums and it goes away and doesn't usally come back. Currently I'm taking 1-2 tums a day as needed but just a few days ago I was taking 3-6 tums so things continue to improve for me as the days go by.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/8/2014 12:36 PM (GMT -6)   
 
Good to read what is working for you and I am sure others will find this very helpful.
 
I know which trigger foods to stay away from and like you, if I feel that little burning sensation start up I take 2-3 of the chewable tums.
 
Kindly,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."
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