all these problems and noone knows anything plz help

anyone have a good dr they can refer me to
1
alberta - 100.0%
0
ontario - 0.0%
0
anywhere - 0.0%

 
New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/4/2013 12:25 PM (GMT -6)   
It all started a year and a half ago. I couldn't swallow solids or my saliva. Dr recoomended I don't eat solids until all the tests are done.
I did the following tests
Blood work
Endoscope
Barium
Modified barium
Mri
Ctscan
Emg
Neck ultra sound
Stomach ultra sound

All came back clear at that time.

Since then my meals are very small and I have to gargle food with water and swooosh it around my mouth until I can swallow it.
I have lost 40 pounds.
Always tired and feel malnutritioned.

Lately the last two mnths I have had pain in the neck area along side and behind adams apple area, pain behind left rib area, and pain accross my chest mostly right side and a weird burn at bottom of esophogous right where the neck starts in the front.

I go back to dr and tell him(same dr who ordered above tests and he said there is nothing wrong with me and I am a burden on tax payers money. I wanted to smack him so bad.

Now I have gone to a new dr and she ordered blood work which came in excellent and now she had me do a breath test.

I was telling my wife that I am thinking of ordering and paying cash for all above tests again. I know something is wrong I just need to know what's going on.

I'm canadian and live in calgary alberta.

Any ideas anyone please help.

Thank you everyone!

Post Edited (lost and in trouble) : 8/4/2013 11:28:40 AM (GMT-6)


lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/4/2013 7:59 PM (GMT -6)   
That doctor that said that to you will eventually have to meet karma face to face. Thats worse than some of the things that has been said to me. I had a medical procedure go wrong and the doctor blamed me, saying i was trying to make her look bad. She has since been fired for screwing up and killing so many people. You say this problem started out of the blue???

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/4/2013 8:26 PM (GMT -6)   
Ya completely. Out of nowhere, I'm pretty healthy other then the above.

Thank you for replying friend,

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/4/2013 8:30 PM (GMT -6)   
What happened to uabstahguy

Mindbodynsoul
Regular Member


Date Joined Jul 2013
Total Posts : 32
   Posted 8/5/2013 12:28 AM (GMT -6)   
You should try to get an appointment with and ENT specialist, and also see if you can get a PH acid test done.

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/5/2013 10:58 AM (GMT -6)   
Thanks for the advice

I will see if the dr will do them

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/5/2013 12:26 PM (GMT -6)   
I know how you feel.  I have so many problems i dont know where to start but my throat is my biggest problem physically and mentally.   I was having right upper quadrant pain for quite some time after 2 very long trips.  I went to our local hospital and they were going to remove my gallbladder based on symptoms alone which i thought was crazy, so i requested a endoscopy.   Little did i know they also were going to clip a Bravo capsule to my esophagus.  I tried to get out of it, but i wasnt familar with medical procedures since ive never had one and they told me i had to have it done that it was important.
 
I tried to get out of it up until the last moment but they told me i couldnt because i signed the consent form.  Thats when my life changed forever.  Six days into the probe it hurt so bad i went to the ER and they did a cat scan.  The next day i lost my voice, woke up with a lump in the throat, and have had nothing but problems for 5 months since.  Ive been diagnosed with LPR and or irritable larynx syndrome.  My current problem is, the ativan they gave me to help with the globus sensation doesnt work like it once did and now i swallow so much that my esophagus is sore.  I dont know if its wearing out or what.   Plus, the ativan is making me sick and depressed along with the constant throat pain and lump.   Not sure how much more i can take. 
 
All the medicine they give me just makes me sicker.  

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/5/2013 12:35 PM (GMT -6)   
Man I'm sorry to hear that. You know what bothers me is that all the technology they have and we (people) suffer but people like magic johnson and michael douglas live forever because of money. This proves to me that everyone on here can be helped but the choice is made by drs and medical system is soley based on financial reasons. The mri I did was paid for in cash by me because the wait time was 4 mnths through the traditional medical systems. So I paid for it and had it done a week later, is that fair ? There are many people that can not pay for it, this system sucks!

We all pay taxes, and I m so frustrated.

I am sorry for your situation at least we are not alone man I read through some of these posts and I feel for all these people on here

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 8/5/2013 1:32 PM (GMT -6)   
Hi Lost and in trouble,

I'm so sorry to hear of your problems. Has it been suggested to you to see a speech therapist at all to help with your swallowing problems? A dual impedance test or RESTECH airways probe test will be able to diagnose if you are having "normal reflux" or "airway reflux- LPR" Sometimes with airway reflux that can cause swallowing difficulties - mine came out of the blue myself!
Have they tried you on PPI's or Gaviscon to see if that helps? And have your consultants not suggested a way forward for you?
I hope that you get some answer soon!

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/5/2013 8:00 PM (GMT -6)   
Lost and in trouble, money talks, no doubt about it. I have lost everything and used up all my savings so now i am on hcap. They send me to a different hospital than people with insurance. (i had insurance, lost it too) I think my ENT has tried everything he can but i cant even get in to see a gastro doctor for months. Do you live in the U.S. or Canada? p.s. when you did the barium swallows were you able to swallow the food or was it difficult?

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/5/2013 8:01 PM (GMT -6)   
Disregard the question about where you live just re-read your post.

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/5/2013 8:12 PM (GMT -6)   
Holy maaan, no I'm in canada so health system a bit easier. Ya it difficult to swallow during barium. Now they r saying its a muscle disorder called miotonia congenita, so I have been on the drugs they gave me and still no positive movement, and the drug is experimental.lol.

Man so wherre u at now what's going on for u now

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/6/2013 8:53 AM (GMT -6)   
Im pretty much in some sort of misery everyday. My newest misery is the dry swallowing that started in the middle of the night last week. It has gotten so bad that im afraid my esophagus will wear out and then not work at all. I have a swollen voicebox which the ativan helped relieve so either the ativan has stopped working, or it could be the ativan itself causing the problem. This is the world i have been living in. Lump in the throat, pain in the voicebox, no voice, and drowning in excess mucus. I have to take Benadryl all day and ativan which are both hard on my already weak liver.

I have doctors appointments lined up as far as the eye can see. The scary part is thinking that the throat may never heal, or that is heals and i cant get off the ativan. So many things to look forward to..

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/6/2013 8:59 AM (GMT -6)   
Wow, I ewas given ativan to keep me calm, I don't take it. Nexium and mexa something for a muscle diorder. I was perscribed 10 ativans last september and still have some.

The problem is if you leave the problem alone your in trouble and if you see a dr you are in trouble.

Have you seen a natural dr
Goodluck my friend

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/6/2013 9:41 AM (GMT -6)   
Thats a good way to put it. If i had seen a natural doctor to begin with i would not have the throat problem. I think the long trips i was making the last 4 years slowed my bowells down and gave me pancreatitis. If i had just taken a gentle natural laxative and added more salads to my diet and stopped more often on my trips, i would not be in this mess.

Did they tell you what causes the muscle disorder they diagnosed you with?? You say you lost 40 pounds. Are you under weight now?? Ive lost 25 pounds and can barely stay at 150. Im 5' 10"

lost and in trouble
New Member


Date Joined Aug 2013
Total Posts : 8
   Posted 8/6/2013 10:34 AM (GMT -6)   
I guess the muscle disorder is genetic.

With respect to weight I was at 310 and 44 inch waiste now I'm about 270 and 38 inch waist, keep in mind I had lots muscle too.

I could spair about another 20 pounds before I start looking unhealthy.

I just saw a natural dr last week going to try his route too

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/6/2013 6:39 PM (GMT -6)   
You had more spare weight than i did. I was always around 175. I hope you get it figured out and that the natural doctor has some ideas. Im still trying to get myself straightned out from the twice a day acid blocker nigthmare. My ENT is trying hard to help, but i cant handle the meds and they just made me sicker.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 8/6/2013 6:39 PM (GMT -6)   
p.s. dont take the ativan. trust me on this one
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 10:11 AM (GMT -6)
There are a total of 3,005,066 posts in 329,194 threads.
View Active Threads


Who's Online
This forum has 161760 registered members. Please welcome our newest member, Adrianna1023.
280 Guest(s), 12 Registered Member(s) are currently online.  Details
ksk54, SoMuchFun, logoslidat, 81GyGuy, mattamx, Poppysocks, Bohemond, CaliJR, 61Impala, SharonZ, ddyss, (Seashell)