Surgeons not willing to operate, but...

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[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 8/14/2013 3:56 PM (GMT -6)   
So, for the last two and a half years I've been seeing a couple doctors who have recommended me to a total of 3 different surgeons so far. Each surgeon sends me back to the doctor to have him do a different test on me, and then the doctor decides to have me see a different surgeon after the test seems more geared toward another surgeon's abilities instead. But for whatever reason, the surgeons are just sitting on their hands.

I had a Nissen 8 years ago, and it's failing, but the tests are inconsistent, and no one wants to do anything for certain. Now I'm about to see a fourth surgeon about the TIF procedure (can they even do a TIF if you've already had a Nissen?), but I'm losing faith. Meds don't help, and this is kind of my last chance, but I don't want to appear as if I'm shopping around for a surgery; I'm just trying to correct an inconsistent but life-nullifying problem.

Has anyone had this problem with medical practitioners before? I recognize my symptoms from before I had my Nissen, and I know that, at least for a while, the Nissen fixed them. I've gone for too long with no solution and, every now and again, I'm confronted with the increasingly dark realization that I can't keep going on like this on such a diminishing cycle.

How would you approach a surgeon about being proactive without standing down and continually idling?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/14/2013 11:00 PM (GMT -6)   
[J.K.]

Welcome to Healing Well.

Sorry you are getting the run around. I don't think they can do a TIF after a nissen, but maybe they can. I would see about getting into a teaching hospital and seeing their GI department. I went this route after my 1st nissen was done wrong and no one wanted to touch it. They see tough cases all the time and usually will take them on.

If you have had a PH study, manometry, and possibly a barium swallow they should have all the information they need. Also look for a surgeon who specializes in redoes. This is very important as redoes are more difficult.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 8/15/2013 10:49 AM (GMT -6)   
See, that's the problem. I've had a surgeon say he think a redo would be risky and doesn't want to deal with it. They want to try other meds, but I've already been on over half a dozen meds with zero success. They keep testing for things that have an infinitesimal likeliness when there's the glaring fact that we all know what it actually is.

I've done the aforementioned tests, all multiple times, and have gotten different results each time. Whatever's going on, it isn't consistent (but I knew that already), but present.

Is it possible to have the Linx surgery implant done after a nissen?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/16/2013 12:12 AM (GMT -6)   
[J.K.]

I am not sure if a Linx can be done after a nissen. I know it can be done the other way round.

Have you been to a university hospital or have the ability to go to one? If you do I would go that route. I have had to go there 3 times and with very tough cases. They didn't hesitate to take me on. One was for an incorrectly done nissen.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 8/16/2013 2:37 AM (GMT -6)   
Hi jk I am having the very same problem as you. I had nissen 12 years ago and it worked fine for 9 years and then symptoms returned. Like you I recognised what it was straight away, but try telling the doctors that! No medicines work my only restbite is that after 2 bad days I get one days relief for some reason. The Consultant that did the op said nothing more can be done for me and seemed put out that I was complaining about his work(which I wasent) After seeing 3 more docs and endless tests the last doctor told me to research a Consultant who does the nissen. This I did through google and found a doc 20 miles away. He was very sympathetic and is giving me a gastroscopy to check on the wrap,the other docs looked more for cancer etc. He is also sending me to a university hospital for a high resolution manometry. Perhaps I will find out soon what to do. Please keep trying to find help, do not give up Rita

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/16/2013 11:03 PM (GMT -6)   
reet22

I am sorry you to have been given the run around. As I said earlier, this is a huge pet peeve of mine. Hate it!

I am glad you stuck to your guns and have found someone who seems to be wanting to help you. I was lucky to have had surgery on my lung by someone who is a very caring surgeon and has great contacts. He is the one who suggested I go to the university medical center and he knew of the surgeon there to be a specialist in redoes. It's a very small list of surgeons who specialize in this.

Sometimes bariatric surgeons are up on redoes too. The surgeon who referred me to the specialist would have done the redo, but the GI doctors here couldn't figure out what was wrong with mine. It took me almost 3 years to get it redone. On a side note this surgeon who referred me did do my last redo after the 1st was torn apart to save my esophagus after it tore during an EGD.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 8/17/2013 7:00 AM (GMT -6)   
Thank you so much Bill, here in UK the cogs of the NHS run really slowly unless you can afford to go private. So it has taken a long time to get where I am. I have the gastroscopy on the 29th and still waiting for the other appointment,but I've learned to be patient! Best wishes Rita
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