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Pedalmash
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/29/2013 6:47 PM (GMT -6)   
Hi Everyone,
 
I've been lurking for a bit and finally joined. It's good to come to a place where other people understand and don't look at you like you have a thousand heads.
 
I've had LPR for about 3 years now. The first two years may not even count.  I had a couple flare-ups that instantly went away with a few days worth of Prilosec. The LPR went away to the point of going back to eating and drinking without even giving thought of the LPR. Then this past July, the same flare-up came back, but has yet to go away. 
 
A bit about me and my LPR:  So I'm not really in bad shape to begin with. Actually I'm in really good shape as I'm a firefighter/paramedic and an avid cyclist and mountainbiker.  I'm 41y/o male, 5'10", and 167 lbs. Not trying to brag about my fitness level, but I'm trying to convey to other people how LPR can be frustrating when you think you are already doing what you're supposed to be doing. On the RSI scale for LPR, I'm about a 2-4 out of 15 on any given day.  My LPR consists of throat clearing, feeling of mucus, or just an irritation. I don't have indigestion or any bowel problems and no problems swallowing or sleeping.
 
I've tried to clean up my diet so much that I've toned up even more and lost more weight (which is good).  I've also found things like DGL, Manuka Honey, and Slippery Elm Bark really minimize the symptoms to where I think I've got it knocked out.
 
I honestly think I damaged my esophagus from years of coffee OD'ing and energy drinks.  I'm now down to one cup of coffee a day.  Basically all I drink is water, coffee, and milk. Nothing else except for homemade fruit/vegetable smoothies.
 
Anyways, sorry for all the "I's" but it is good to finally find a place to share some notes with other people. Cheers.
 
 

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 8/30/2013 8:28 AM (GMT -6)   
Pedalmash

Hi, and welcome to the forum.

Like you I'm new to the site I only joined a week ago as my symptoms only started in April.

I'm sorry that your symptoms have reappeared after going so long without any problems.

I don't know what tests you've had to confirm your LPR but have you thought of going to see an ENT specialist as your problems seem to relate to your throat. I don't know what the RSI scale is or if we have that here (UK). I thought that LPR was caused by acid escaping from the oesophageal sphincter.

I don't think you've damaged your oesophagus but there are tests to check all is well. You should go and talk to your doctor if your symptoms persist and he could arrange the tests for you.

Take care

Maria

Pedalmash
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/30/2013 6:10 PM (GMT -6)   
Maria,
 
Thanks for asking, yes, I have seen an ENT doctor two times now.  This past visit he did do an upper airway scoping and said my laryngopharynx was irritated.  He scheduled me for a real esophageal scoping this next week since the Prilosec wasn't totally knocking it out.  However, today my irritation is very minimal and has me wondering if I should even go through with the scoping, but then again we have to rule out certain things.
 
As for the RSI scale (Reflux Severity Indicators), that comes from Dr. Koufman I believe. It's in her book "Dropping Acid."  Just the acidity from coffee and other energy drinks is what makes me think I've damaged my esophagus or it has caused the LES to relax open too much. After reading Dr. Koufman's book it is easy to understand that my eating/drinking habits were very acidic. Many of the foods in the U.S. now have been allowed higher concentrations of chemicals and acids to preserve packaged foods longer.  This is why I'm moving away from processed/packaged foods. At the height of my caffeine addiction, I was drinking about 4-6 cups of coffee a day along with a handful of energy drinks during the week. That can't be a good combination.
 
Again, thanks for the concern and I hope you get your symptoms handled as well.  Feel free to trade notes anytime.  Right now treating my LPR is like taking 2 steps forward, then 1 back.

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 9/5/2013 11:43 AM (GMT -6)   
Pedalmash,

Go through with the scoping it's worth it. They may come up with an answer to your problems and even if nothing is found then at least they can put your mind to rest.

If you feel that it's your LES/LOS or your esophagus thats the problem then you need to have a Manometry test and a PH Impedance test which will give you more information.

I underwent these tests this week and got my results the very next day of being off the Impedance machine. I have been told that I can have the Linx fitted - scary but necessary. I've tried to control this condition with diet and no medication but it is impossible.

Take care

Maria
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