Inhalation problem

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TheSiXness
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Date Joined May 2012
Total Posts : 541
   Posted 8/30/2013 12:43 AM (GMT -6)   
Just got back from a lack luster week at mayo mn. Did a ton of exam's and met with a lot of doctors, but haven't found the root cause of my vengeance. I did find out some things however. I found out from the GI doctors that I have "functional heartburn" ... great. I had 45 episodes of reflux, 1 being acidic and the rest being non-acidic. Also, most of the non acidic substances coming up where mixed with bile, which explains why I always have a ph above 8 on my exams. Although theirs bile in my reflux, they didn't want to peruse that option.

Although, I've been labeled having functional heartburn, this doesn't explain if I had lpr or not. They wouldn't comment on this, but did say that reflux could still be making it up to my throat causing my symptoms, but weren't willing to look into this either... Which was the entire reason for going to them.

Anywho, I found out that I have asthma doing the methacoline challenge testing and I also have it documented that it takes a long freaking time for me to take a breath in lol. My pulmonologist thought it had to deal with a problem in my throat, but wouldn't comment on what it might be... so, really at dead ends even going to mayo, haven't really learned anything and haven't ruled anything out. It's nice having my asthma finally documented, as well as my inhalation problem. However, they have no clue how to treat it... I strongly suspect that it's reflux related still, but It doesn't look like mayo investigates LPR. Their GI doctors certainly don't.
I have a follow up with the asthma/allergy clinic, ENT and pulmonary doctors if needed, but I'm not sure if I'll make the journey again.

Other then having quick appointment times in a professional environment, I didn't think mayo was any superior then a medical college or some local clinics in treating asthma, allergies or reflux. However, the hospital operated like a well oiled machine and once you got your initial appointment, your Dr could schedule exams for that day or have you meet with a person in another department rather quickly.

Post Edited (TheSiXness) : 8/30/2013 12:13:49 AM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 8/30/2013 8:32 PM (GMT -6)   
Hi Sixness,
Sorry you didn't get more answers.  I don't know where you live, and I don't want to send you on another wild goose chase, but a friend who used to post here when I first had my surgery went to he National Jewish Hospital (http://www.nationaljewish.org/)  because of breathing issues, and they did a great job of diagnosing it as reflux induced (after years of docs who didn't diagnose her correctly) and she was sent for a Nissen as a result and had good results.
 
I'm sure it's the last thing you want to do, but I figured I'd share the information, since breathing issues are high on your list of problems.
 
I had horrible asthma that was made uncontrollable because of my reflux.  Thankfully, the Nissen surgery did the trick for me.
 
Again, sorry you're still struggling.  It's a frustrating road, I know.
Best wishes,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 8/30/2013 9:08 PM (GMT -6)   
That's what I've been hearing too. I have the national jewish health's lung hot line on my desktop at the moment. I was going to give them a call to see if they could send me into the right direction. Thanks for the post, I'll be sure to look into it a little bit further. I currently live in Wisconsin, I'm willing to drive up to a certain extent.
-TheSickness-

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/31/2013 1:50 PM (GMT -6)   
TheSiXness

Sorry to hear Mayo didn't provide the answers you needed. My surgeon at Loyola Medical Center told me that for GERD Mayo wasn't a good place to go to. He rated USC and the Cleveland clinic as the top 2 then. That was in 2009. HE had trained at USC and he was very good and had great bedside manners. His whole team did as well.
I pray you find the answers soon.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

Terlin
Regular Member


Date Joined Mar 2013
Total Posts : 91
   Posted 9/1/2013 12:32 PM (GMT -6)   
Six with your breathing problem , do
You have a hiatal hernia ? Do you have severe bloating pushing up to your throat and head? I do I can't tell if it's my hernia or my lpr that's causing my breathing problems it feels like a presure pushing up into my diaphram making hard to breath. And what do think of the university of michigan hospital? Also I have ear and sinus presure and pain in my back and collar none to shoulder? With numbness could all this be from a hiatal hernia?

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 9/1/2013 1:41 PM (GMT -6)   
I had a hiatal hernia... I went ahead and the TIF/hernia repair last february. I'm not sure if that's my problem or not, but it seems like my hernia is doing ok. I wouldn't know if a hernia could cause all of that. I know theres research out there that says that having a hiatal hernia could make it more likely that you will develop reflux of some sort. I have pressure inside my head and chest, it creates an inability to think. My hernia seems to be intact, I'm fairly certain my breathing problems related to inhalation are related to LPR, my asthma, I'm not entirely sure. It could be because of reflux, it seems very likely, seeing how I never had breathing problems/asthma prior to my reflux.

I haven't heard of anything about the university of Michigan, so I can't really comment on how they are. I have been to mayo, medical college of wisconsin, and UW-Madison though, they didn't provide me with much relief or answers. seems like GI doctors even at larger places don't comprehend reflux getting into the throat. I'd say, If you have decent insurance, do some research of your own and find a decent doctor in your area. If you could find a Dr that specialises in the aerodigestive system that would be the best. Other than that find a GI dr, ENT, pulmonologist and possibly an allergist that work closely together. Otherwise your going to continue to be pushed around to varies doctors without getting much answers.

It's interesting you mention back pain, my reflux started to get worse after I injured my back, I have always thought it could be nerve related. I'm on some nerve calming drugs right now, so we'll see if that helps. I've been looking into find a top end chiropractor. I'm thinking this will ease the pain and possibly help me out. I have a cousin that is a chiropractor and she's telling me there is a huge difference between chiropractors. Some are very basic well others use the latest techniques.

Post Edited (TheSiXness) : 9/1/2013 12:45:03 PM (GMT-6)


TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 9/1/2013 1:51 PM (GMT -6)   
This seems like a good break down of whats going on at the UofM

http://www.med.umich.edu/1info/fhp/practiceguides/gerd/gerd.12.pdf

From the article

here's a reason why I strongly believe my Breathing/asthma problem is reflux
-I'm worse laying down
-I've never had asthma before... Used to run 70-80 miles a week 3 years ago.
-No asthma medications help me.

Seems like U of M does have a pretty good grasp on breathing problems related to Gerd, but it still comes down to the individual doctors opinion about a topic.

"GERD-related asthma may include asthma symptoms that
worsen with big meals, alcohol, and supine position, or
adult-onset and medically refractory asthma"

Post Edited (TheSiXness) : 9/1/2013 12:57:50 PM (GMT-6)

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