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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/9/2013 2:41 PM (GMT -6)   
GC1pink said...
Hi Couchtater,

May I ask how bad your tertiary movements were, and did you personally feel like you had swallowing issues?


I am also having major problems now and am living in daily pain with tertiary contractions that seem to last all day, I have never experienced pain like this, it's really dragging me down.
 
When I ate I'd get spasms in my esophagus which hurt something horrible. The doctor said it was the HH I had. They told me it was a non-productive tertiary movement. I can't tell I have any problems now.

Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/9/2013 5:06 PM (GMT -6)   
Thank you so much Joy!

I also have a 3cm HH and now even when I swallow saliva I can get the ruddy spasms, I have also been told they are tertiary contractions, but no-one has yet to give me a solution! Did you have swallowing problems with yours?
I am due to see a surgeon soon, so fingers crossed one way or another they can sort me out!

I'm very grateful for you reply! x

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/9/2013 7:53 PM (GMT -6)   
You're kind of stuck with them unless you have the surgery. They seem to calm down some after the surgery. Make sure they don't do a tight wrap on you it will cause more issues for you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

OHSOBAD
Regular Member


Date Joined Apr 2013
Total Posts : 87
   Posted 9/10/2013 11:55 AM (GMT -6)   
GC1pink - I too had excruciating chest pain from esophageal spasms, I had surgery in May which seems to have taken care of them.  The type of surgery I had is called POEM (per oral endoscopic myotomy).  i still have a small HH and I still have reflux but, I can eat without the severe pain.  The surgery was performed at Johns Hopkins in Baltimore MD.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/11/2013 2:52 AM (GMT -6)   
Hi OHSOBAD,

May I ask what the esophageal spasms felt like, and how long they lasted every day? Did you have swallowing issues, and how did they diagnose them? I have read of POEM, I don't think it's in the UK as of yet, I'm glad the operation was a success for you, do you suffer much with the reflux?

OHSOBAD
Regular Member


Date Joined Apr 2013
Total Posts : 87
   Posted 9/11/2013 9:14 AM (GMT -6)   
GC1pink - Started out with severe reflux, over time the issue expanded into difficulty swallowing and chest pain.  Had a monmetry done by one GI which showed "jackhammer esophagus", readings were greater than 14,000 whenever I swallowed anything.  Was given various different drugs to take and that was it.  After 4 months of no relief I went to another GI who said I had little reflux, emptying time was within normal limits and I had another manometry which showed "some overactivity of peristatsis" in the esophagus. Was told to raise the head of the bed by 6" etc, etc. This doc wanted to do a capsule study but insurance said no so....that was it with him.  By August I had lost 25 pounds and was able to eat very little.  Went to breakfast with some firends from work of which 1 was a doctor.  When he saw that all I was able to eat was 2 bites of scrambled egg he told me to come see him in the ER that night.  Eat whatever I could so that the pain would manifest first.  Did that, went to ER.  I had been taking calcium channel blockers at that point, he ordered the ususal tests and called my original GI.  They gave me nitrates (nitro glycerin) this time and the pain was bearable.  He told the GI guy he should send me for a consult to either GW or JHU.  Got the appt. at JHU and the tests all began again with the original results.  Tried to continue with a medical approach which included different drugs.  The drugs would work initially but then they would fail within 10  to 14 days.  Continued with the H2 blocker and PPI and then added antispasmodic.  Again it worked for a bit but eventually failed. After a year of this the JHU doctor that did my last EGD said there was a new procedure that they used for achalasia that may work for me. At the point that the surgery was done I was just about unable to eat or drink anything without excriciating, crushing chest pain.  The pain lasted anywhere from a few hours to days.  Even the protein drinks I was able to swallow caused pain,  I was down to chicken broth and ramen noodles.  I looked bad and felt worse, my hair was falling out, I had no energy etc, etc.  Anyway, the other problem was a tight LES so I had severe spasms and then the LES wouldn't open to allow food to pass through.  The LES had been dilated during my last EGD.  Today I do still have reflux and I take protonix 40mg 2x /day.  My vocal cords are still swollen and red and my voice is very hoarse.  This I can live with.  Surgery was back in May and I have gained 5 pounds.  There are still foods I can't eat but things are 100% better.  Hope you find an answer soon.  If you want to talk more let me know and I will give you my e-mail.  Did I answer your questions?  It is hard to describe the spasms because all I really felt was the pain and sometimes I feel movement of the esophagus at the back of my throat.  Pain is usually mid sternum down into the upper abdomen.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/11/2013 1:04 PM (GMT -6)   
Hi OHSOBAD,
 
Many thanks for telling me your history - you have been through the wars, and I'm glad that you're feeling so much better.
 
My pain starts with just lying in bed swallowing and continues for most of the day, trying to eat now is proving very difficult as I get this crushing pressure and pain and feel that food is not going down my LES, even though I am on PPI's I'm still getting a lot of reflux in my mouth.
 
Unfortunately last manometry a few weeks ago was on a symptom free day, and showed a weak peristalsis along with one episode of mild spasm. She thinks it's caused by my HH and reflux, however I'm not so sure. I'm due to see a new surgeon tomorrow so we shall see what he has to say, but right now I look and feel like a walking skeleton, and I'm having to try to force food and liquids down.
 
Sometimes life is just crap - I am getting to the end of my tether. I'll let you know how I get on, and many thanks again.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/13/2013 6:36 AM (GMT -6)   
OHSOBAD,
 
May I have your email address please so that I can contact you.
 
Many thanks
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