Enough is enough, I need surgery ASAP, but which one?

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Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 9/16/2013 9:29 AM (GMT -6)   
I'm sorry to have to make so many posts back to back, but I truly am suffering and have once again had to stop myself from hurting myself over the hell that is LPR. Although my GP is unwilling to send me for any more tests - they've given up on me, prescribed me Mirtazapine and sent me on my way - I'm sure they'll listen if I show I'm desperate for surgery, and if I show I know what I'm getting myself into. From this community, I've learned of 3 types of surgery - Nissen, LINX and Endostim. I'm sure there are more, but when it comes to LPR these are the ones I've heard of most often.

My question is a simple one; many of my LPR symptoms are due to gaseous reflux, which none of my H2 Blockers, PPIs or Gaviscon Advance can stop. If anything all of these make the symptoms worse! Based on this, which type of surgery would I benefit from most? I'm hoping the answer is LINX as this is something fairly local, and I know it would be reversible if it doesn't work out. As a reminder, these are the tests I've had done to date:

- Endoscopy (clear)
- Barium Swallow (clear)
- ENT throat scope (clear)
- Peptest (1/3 results positive, but very low, only 35 n/mg)

If anyone can help me form a convincing arguement to present to my GP, I'd be very grateful! Thank you.

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 9/16/2013 9:58 AM (GMT -6)   
Daxter,

I'm assuming your in the UK as you've said GP. I really don't think you'll ever convince your GP of your problems. You'll probably have to go private.

Have you tried talking to people on the Linx site as I know that Justpassingthrough had LPR and had the Linx fitted but it's worth talking to others who have had similar problems.

Maria

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 9/16/2013 11:00 AM (GMT -6)   
Have you had a Manometry exam and a 24hr PH study? Without these no surgeon will touch you. Well, at least they shouldn't because they would be doing you an injustice if they didn't.
www.tommarkzfilmsblog.com

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 9/16/2013 1:46 PM (GMT -6)   
Mcedge said...
Daxter,

I'm assuming your in the UK as you've said GP. I really don't think you'll ever convince your GP of your problems. You'll probably have to go private.

Have you tried talking to people on the Linx site as I know that Justpassingthrough had LPR and had the Linx fitted but it's worth talking to others who have had similar problems.

Maria


Yeah, I've looked through almost all the parts of the LINX club, and asked a couple of questions if memory serves. It's all such a mixed bag; some report total relief, some - and this worries me because it's to do with gaseous reflux - say they have no relief at all. I really don't want to be on drugs my whole life, because they just remind me I've got a real disease which causes further stress, so surgery is extremely important to me.

Does the Barium meal show any signs of LES/UES function? Apparently my endoscopy checked my sphincters but I'm not convinced... Meanwhile I'm trying to save up the money to go private, but it's not easy when you've been unemployed for as long as I have - I only have a handful of savings, and I'm not even close to my target.

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 9/16/2013 3:49 PM (GMT -6)   
The ph manometry test will show how well your les works and then the subsequent ph test will show acid reflux. You have to ensure you are off ppis for 7 days for it to be accurate. Have you been referred to a gi consultant? This is the test that the gastro consultant and surgeon will request for before they decide on the surgery even privately.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/16/2013 6:46 PM (GMT -6)   
Daxter

As others have said, you need a PH study and manometry to know how your LES and esophagus are functioning and the reflux amount is.

As for being off PPIs, some GIs don't require to be off them as they want to know what is happening wile on them. This is usually for people who aren't responding to PPIs. If you haven't been through all the meds they like to do it off PPIS though.

As for which surgery.... That's tough one. Myself I prefer the nissen as it has been around longer and has massive amounts of data about it. The Linx may prove to be just as good or better in the years to come, but right now it's just too new for me.
The nissen can be reversed as well. Some surgeons don't like to do that, but it can be done just as it can be redone if it ever fails. It is more difficult to do than the Linx though.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11
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