surgery cancelled. Normal test.

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Greg2013
New Member


Date Joined Jun 2013
Total Posts : 5
   Posted 9/25/2013 9:59 PM (GMT -6)   
I was scheduled for the Linx Surgery on 9/27 but was cancelled after my 48 hour bravo test came back normal. I been a GERD suffered for nearly three years. I usally have pressure, burning sensation, or discomfort in the upper stomach area but also get heartburn.
 
I had all other test done over the years from CT scans to HIDAS scans, all normal. The doctor now wants to test me for Non-Acid reflux.
 
Has this happened to anyone?
 
 
 
 

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/26/2013 11:04 AM (GMT -6)   
I was pigeon holed for having reflux as I have all the symptoms plus a very small area of Barretts. GI physician suggested I was headed for Nissen. I had only ever had partial response to PPIs so I was keen to find relief by some other means, especially as I have side effects on PPI and would like to stop. I went for manometry with pH monitoring - which was a big deal cos I have poor tolerance for having tubes shoved down my throat. It came back normal with a Demeester score embarrassingly low and no reflux shown, even over night. Also told the LES was "borderline hypotensive" but even so there was no reflux.

Am now told I need to go back to GI physician and discuss visceral hypersensitivity.

I have found it all very confusing - I have symptoms of reflux, but no evidence of reflux so I can't do much more other than put up with the symptoms and be slightly pacified by the fact that I'm probably not damaging my oesophagus!

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 9/26/2013 11:34 AM (GMT -6)   
mudmagnetum, how did your doctors explain the Barretts?

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/26/2013 1:39 PM (GMT -6)   
Hi,

They said it related to reflux in the past. I had reflux symptoms and much vomiting during my pregnancies, so it's possible it came from that period of time.

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/27/2013 8:42 AM (GMT -6)   
The bravo isn't the best for testing reflux. the new wired probe that tests for acid and non acid is much better. IT also has to be placed exactly a certain distance above the LES. If it's too high you can get low or no reflux readings. If too close, overly high readings.

Did they do a manometry 1st to know the exact measurement of where your LES is? IF not they could have put it in the wrong place. I had this happen when the bravo was 1st getting popular. all of my GIs and surgeons have abandoned the bravo and returned to the wired probe inserted right after a manometry because of this.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

BrandyLeigh84
Regular Member


Date Joined Nov 2012
Total Posts : 54
   Posted 9/27/2013 9:17 PM (GMT -6)   
I agree w opnwhl14 that bravo doesn't say what's really going on. Mine was slightly off and I had my surgery 9/11. U need a barium swallow and an endo . GERD is a huge pain in the rear to mostly everyone here and it destroys your daily life. U gotta b pushier w the docs it's all about $$ to most of them --so find one that cares . I went through 3 b4 I got a good one. I even travel 4 hrs to c him. Just know what to ask for and do everything to get ur needs met.

Greg2013- yes
I have issues getting mine it took 14 months
BrandyLeigh
Nissen 9/11/13
GERD since 2007

Greg2013
New Member


Date Joined Jun 2013
Total Posts : 5
   Posted 9/30/2013 8:54 PM (GMT -6)   
I had a EGD done two years back. Every test has been normal. Now they want to do a 24 ph test for non-acid reflux. If this test comes back normal, I be mad lol. Im just thankful I have no life threating condition.
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