Breathing now affected by reflux

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Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/16/2013 2:37 PM (GMT -6)   
I am now getting episodes where I feel short of breath and have woken up on three occasions at night over the last couple of weeks feeling unable to take a deep breath. Last night was particularly bad as my heart was palpitating badly too and it took a good half hour for it to calm down. My breathing today has been a little laboured.

Is there anything a doctor can prescribe for this? Obviously if I become much worse and find I can hardly breathe at, I will get to the hospital. But what would they be able to do for me?

I am really concerned that I will become asthmatic as a result of this reflux.

Post Edited (Noelle3) : 10/16/2013 1:41:40 PM (GMT-6)


lajenner
Regular Member


Date Joined Jul 2013
Total Posts : 349
   Posted 10/16/2013 5:24 PM (GMT -6)   
I did become asthmatic because of reflux. I had no clue it was causing it, though. My allergist assumed it was caused by allergies, and treated both my asthma and allergies. It took a lot of doctor visits and a lot of tests to figure it out. I had a bronchoscopy which showed acid in my lungs.

I know you have been posting, but what is your status with the reflux? Have you had ph testing and manometry done yet?

You should also discuss it with your primary doctor, express your concerns about the problems related to reflux and the anxiety it is causing you.
Laurie
GERD (Nissen Fundolplication Sept. 2013)
IgG, IgM Deficient
Chronic Pain caused by Degenerative Arthritis,
Asthma, Chronic Sinusitis, Allergies,
Chronic Kidney Stone Disease, Depression/Anxiety

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/17/2013 3:29 AM (GMT -6)   
Hi Laurie,

Thank you for your response. I am due to have a PH and manometry this coming Tuesday (22nd). Then I will have to wait two weeks for the results to be sent to my doctor.

I wonder do you know if the patient is given the results right after the test or do they show up on the little monitor you have to wear?

I have allergies too Laurie. Hay fever (tree and grass) which starts in February and goes on until the end of July. But up until now have never had problems with breathing.

I will discuss my concerns with my doctor when I next see her.

Although I am extremely fearful of surgery, if they offered me an operation in the morning I would take it and deal with whatever comes after. I am getting so worn down by this that I honestly don't know how much longer, at 61 I can put up with all these symptoms.

I have been following your thread on your recovery from surgery and wish you well. Take care.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis

lajenner
Regular Member


Date Joined Jul 2013
Total Posts : 349
   Posted 10/17/2013 9:12 AM (GMT -6)   
In the US, they are not allowed to tell you the results right away. The information has to come from your doctor. Ask the techs if you can get a report sooner.

The monitor does show the ph level dropping during reflux, if it is set up for it. I had my monitor for 4 days, actually had to switch monitors after 48 hours. The 2nd one wasn't set to show the levels. I missed looking at it. So, ask the tech about it before they sedate you.

The manometry test takes some major mental relaxation techniques. I put myself (in my mind) on a beautiful beach enjoying the sea, taking in deep breaths of the wonderful sea breezes. Prior to that, I could not help from swallowing.
Laurie
GERD (Nissen Fundolplication Sept. 2013)
IgG, IgM Deficient
Chronic Pain caused by Degenerative Arthritis,
Asthma, Chronic Sinusitis, Allergies,
Chronic Kidney Stone Disease, Depression/Anxiety

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/17/2013 10:22 AM (GMT -6)   
Hi Noelle

They won't give you the Manometry results while your there as they have to analyze the data. The ph impedance test is in for 24 hours mine showed no information on it. I removed the 24 hour impedance myself at home and a courier picked it up and delivered it to the clinic in London. I got all my results the following day.
I didn't have any sedation except the spray up the nostril to numb it. I didn't find the tests difficult or uncomfortable at all they were far easier than the endoscopy that I had.

Like you I'd have surgery tomorrow if it were offered. I'm also finding it difficult to cope with all of my symptoms. All the waiting to see doctors and getting results is extremely frustrating.
If only we could see the doctors and get the tests done on the same day then get the results promptly it would make our lives so much easier.

I know that a lot of people seem to manage this dreadful condition with medication but I don't think it works well for me. I feel that it's the same for you. I do all the correct things with diet etc but I still get severe symptoms. It's made my life hell since this all started out of the blue in April.

I'll be thinking of you on the 22nd as that's the day I see another surgeon and also have a barium swallow to try and determine if I have a hiatus hernia. I'm fairly sure I do and it just wasn't seen on the endoscopy although I don't think they were looking for a hernia at that time.

Where are you having your tests ? Remember when you do the impedance test eat all the things that you used to eat before all of this started. Have they told you not to take your ppi's and other medication for heartburn before the tests? You need to get good readings otherwise they'll think that you can manage the condition with medication.

Good luck on Tuesday and let me know how you get on. Hopefully they'll get us sorted by Christmas and we'll be symptom free for the New Year .

Take care

Maria

lajenner
Regular Member


Date Joined Jul 2013
Total Posts : 349
   Posted 10/17/2013 11:04 AM (GMT -6)   
As Maria suggested, I had to be off PPI's for a week prior and during the PH test. I would quit today if I was in your place. Mine was a Bravo Ph Monitor, so it was wireless, inserted during an endoscopy and tracked reflux for 4 days. I'm not familiar with the wired version that Maria had.
Laurie
GERD (Nissen Fundolplication Sept. 2013)
IgG, IgM Deficient
Chronic Pain caused by Degenerative Arthritis,
Asthma, Chronic Sinusitis, Allergies,
Chronic Kidney Stone Disease, Depression/Anxiety

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/17/2013 2:51 PM (GMT -6)   
Hi Maria,

Thank you for your kind words and for that information on the Manometry.

I am having the tests done at the Chelsea & Westminster hospital at 5pm. Yes I had intended to eat what I ate before this reflux business began, but thank you for reinforcing that advice. It all helps.
They said to stop PPIs 5 days prior to tests, so I haven't had any today. I can take antacids like Gaviscon up to 24 hrs prior to tests.

This waiting game is tortuous indeed, but hopefully we'll both have a better idea of the true state of things soon. I'll let you know how I get on and will want to know how you get on too, so please post. Best of luck.

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/17/2013 2:59 PM (GMT -6)   
Hi Laurie,

I'll bear in mind what you said about relaxation techniques during the test. I have read that it can be quite challenging.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis
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