Hi! So, I've been reading a lot here, but this is my first post, and I'm looking for others that have been through the same/have any advice for me!
I'm 31 years old, and I've had pain near the top of my throat for over a year now. I also have tenderness on the right side when you press my throat, and some hoarseness of voice. In Feb I saw an ENT/oto for the first time, he said my vocal cords are scarred and dx as LPR, and I began omeprolazole, 40mg, then upped to 80mg (40mg 2x/day).
Not much change, switched Drs, and new Dr actually sched tests. I did barium swallow, which shows "Markedly abnormal esophageal motility" and "Marked reflux to upper esophagus" (esp when I laid down during test), but no narrowing of esophagus. Barium
cookie swallow/swallowing study was within normal limits. Manometry showed abnormal motility in lower esophagus.
So this Dr dx as achalasia and referred me to GI, and I'm waiting for them to call and sched that appointment. My mom actually had severe achalasia that was recently diagnosed, and she ended up having emergency surgery, as she was no longer keeping down liquids and her esophagus became grossly dialated. So unfortunately, I'm recently somewhat familiar with extreme achalasia.
I would love to hear from others with achalasia or other esophageal motility disorders. I'm curious as to how this Dr was able to say it was achalasia, being that I don't have any narrowing where my esophagus meets the stomach; does anyone else think this is weird? Part of me still worries that its something even worse, like scherloderma. Also, does anyone know, what can I do to prevent my motility from worsening?? Are there certain foods/etc that make my motility get worse over time? I'm already trying to follow a mostly soft-foods diet, but I still haven't been able to get myself to give up caffienated beverages. Do you think I should avoid all alcohol? (part of me wonders if this could cause nerve damage in the espohagus?) I just want to do whatever I can to prevent my motility from worsening, like it did with my mom.
Also, any thoughts/opinions on treatment options that worked/didn't work for you would be helpful, as I'm assuming we'll start discussing my options at my next appointment!
Thank-you in advance for your advice and support!!