Okay...last April came home from a holiday and developed IBS spasms in intestines for 2-3 months, then got lump in throat, belching and burning tongue and throat. After several tests finally diagnosed with small HHernia and mild reflux and unexplained chest pain, & tertiary contractions. Manometry showed 38% peristaltic, 9% simultaneous and 55% failed - Symptoms subsided around Feb and I went back to doing what I wanted and eating what I wanted.
Did a bit of cardio exercise combined with poor eating - chest pain came back again. Was told I did not have reflux as prior PH test showed nothing. Then had another barium swallow, more prominent tertiary contractions and hernia now larger- 3cm. Manometry this time showed 54% intact, 38% weak and 8% failed. PH test showed 10.85 demeester with 91 episodes of reflux 60% in a gas form.
I did private pepsin test - it was off the charts!
July started developing swallowing problems - now diagnosed with mild upper dysphagia.
Went to see a surgeon, he said could do 180 wrap, but it might make it better or worse - asked me to go see a colleague to exhaust all medical routes first.
Went to colleague - he said I don't have much reflux, and that I may lose my swallow - how lovely. He said my problem is my motility, not the hernia or reflux, and that I probably got a bug when on holiday. I asked what about pepsin results, he said they don't use them, as they are not reliable. I asked if LPR could have caused my dysphagia he said no, and that I would probably need a feeding tube at some time. He said surgery was NOT an option for me, I would not be able to get food through. Well how did I get food through before the hernia and in the period between Feb & July? I asked if they could repair hiatus with no fundoplication - still he said no. he said I needed experimental motility drugs.
So feeling like the feet have been taken from under me, in the meantime I had been in contact with Endostim who are looking for suitable candidates to start performing in the UK this would be a private operation with the surgeons who performed the original helping. I was told they are only looking for "normal candidates to give a result." I sent all my information to the consultant dealing with Endostim in August, including all the information the "colleague" had. On Monday I was told I was a suitable candidate to receive the Endostim!!
I just do not get it. One person tells you, you don't have reflux it's a motility disorder, and another tells you that you are suitable for surgery.
If two experts can't make up their minds, how on earth am I supposed to know what to do?
Post Edited (GC1pink) : 10/20/2013 10:44:22 AM (GMT-6)