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Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/22/2013 4:24 AM (GMT -6)   
Hi, Noelle

Just to let you know I'm thinking of you today. I hope all goes well - which I'm sure it will. I didn't find the tests difficult at all. You just have to keep thinking that it's worth going through them to get the answers that you need.

I'm seeing a surgeon today and then I'm having a barium swallow to see if they can find a hernia.


Good luck and let me know how you get on.

Maria

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/22/2013 6:58 AM (GMT -6)   
Hi Maria,

Thank you so much for your kind thoughts. I'm thinking of you too today and also wish you the best of luck.

I will certainly let you know how I get on and I'll be very interested to know how you get on with the barium and what the surgeon has to say.

Take care.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/22/2013 1:49 PM (GMT -6)   
Hi Noelle

How are you ? Did you get on ok with the Manometry test ? I guess your wearing the 24 hour impedance at the moment.

I went to see the surgeon and I've got my operation booked for 12th November. Decided against the linx and I'm having the fundoplication.

I had my barium swallow and the doctor performing it said he couldn't see a hernia so I'm yet again perplexed as to what caused all of this out of the blue. I've heard that the hernia can be missed or not seen on the endoscopy and the barium swallow so I'm still hoping that it's a hernia and they find it during the operation.

Did the hospital give you any idea how long that you'd have to wait for the operation if you decide on it ? If the waiting list is too long in your area can you be referred to another hospital ?

I guess that you'll know more once you've got the results from your tests and then you can start to plan your next step.

Take care

Maria

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/22/2013 4:55 PM (GMT -6)   
Hi Maria,

That's wonderful! I'm so pleased that things are moving forward for you. You must feel relieved. As we've said before no-one wants to have surgery unless absolutely necessary, but at least when you are post-surgery there will be a point to any pain and discomfort you will have and you will gradually be recovering and getting better and stronger. It will have more meaning that this endless pointless misery of horrible reflux symptoms.

May I ask if you are being treated privately?

Yes, I am wearing the monitor. The procedure was uncomfortable, but bearable. The doctor told me that I will be waiting 3 to 4 weeks for the results though! It's crazy. He also remarked that there was no follow up appointment with the consultant and was mystified by that. According to the letter from the registrar I have to see my own GP about the results and if she is concerned she can refer me back to the consultant. He said it is usually the other way round .. you go back to the consultant or one of his registrars about the results. At this rate it will take months before anything progressive will be done.

Hope you sleep more soundly tonight. Take care.

Diaas2
Regular Member


Date Joined Oct 2013
Total Posts : 256
   Posted 10/22/2013 5:36 PM (GMT -6)   
Maria,

I had the same tests done that you've recently had. I had the same thing happen with my barium swallow test.

When the guy told me he did not see a hernia, I got upset and posted about the experience on here. This is the link to my post.

http://www.healingwell.com/community/default.aspx?f=45&m=2870442

Denise suggested I have what is called a "sliding hernia," and it turns out she was right. When I saw the surgeon a second time I talked to him about my concerns. He explained that in the barium swallow test, your hernia may be too small and actually slide up and down at times to where the test cannot see it.

Post Edited (Diaas2) : 10/22/2013 4:47:47 PM (GMT-6)


Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/23/2013 3:37 AM (GMT -6)   
Maria,
I've temporarily put my email on my profile just for this morning. I don't want to leave it up permanently, so if you happen to see this post you could make a note of it and email me anytime if you so wish. I'd love to hear from you.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/23/2013 4:31 AM (GMT -6)   
Hi Noelle,

I'm pleased that you got on ok with your tests. Have you got to go back to the hospital to have the impedance removed or are you taking it out yourself and posting it?

If I were you and you don't have a follow up with a consultant then go and see your GP and demand a follow up. Don't wait until you have the results as that's more time wasting. Also I don't think GPs are qualified enough to decide on your treatment. My GP actually said he was no expert and passed my care over to the consultant at the local hospital although she was useless and that's why I ended up going private. My local consultant arranged my endoscopy and ct scan but when nothing was found she said come back and see me in December. My husband and myself were disgusted with this so I went to get my Manometry and impedance tests done privately. My impedance test showed a very high demeester score.

Yes the surgeon I saw yesterday was private although he does work for the NHS too. I really feel I've been let down by the NHS system as it's so long winded I was truly in agony when this all started and couldn't wait. In the beginning I would eat something and believe me it was food that really shouldn't have given me heartburn such as cereal with skimmed milk or poached chicken and steamed vegetables I really got it into my head that I'd become intolerant to all foods- it was that bad. I would get heartburn my throat and mouth would burn and even my nostrils. The burning lasted for about 24 hours then I'd try to eat again and it would start all over again. I lost so much weight in those first few weeks not that I was that large to start with but it was truly frightening. The local consultant sent me to see a dietician because of my weight loss. Don't think that they believed that everything that I ate could give me the burning but it did.

Sorry I'm going on again but I do believe that you need to be a bit pushy with some of these doctors. They really don't know what agony all of this is. I've been in pain most days since this all started on Good Friday. My medication seems to stop the heartburn but I get tightness in the chest like it's being squeezed or a dull ache like there's an elephant sitting on it. In the morning I can tell that acid as seeped up during the night so for me the medication isn't working. I follow a very strict diet and don't eat or drink all the things they tell you to avoid but I still get symptoms. My diet previous to all of this was pretty good as I'm diabetic and I controlled it with diet not medication.

I am having the operation done privately at a hospital in Cambridge. I don't have a price yet. My husband asked the consultant but he didn't know - I guess he doesn't deal with the money. My husband told him that we were expecting to pay about £10,000 pounds for the linx but he did say it wouldn't be that much. The consultant said that his secretary would be in touch with the cost and it would be a complete package.

When I have more details about things I'll let you know. Please go to your GP and ask for an appointment to see a consultant and don't let them palm you off with medication if it's the operation that you want. I know that you have a hernia and the hernia isn't going to go away on its own or with tablets.

Please let me know how you get on with everything.

Take care

Maria

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/23/2013 4:38 AM (GMT -6)   
Hi Noelle,

I've made a note of your email so you can take it off now if you don't want to leave it on.

MariA

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/23/2013 9:31 AM (GMT -6)   
Hi Maria,

You're not going on and I agree with all you have said. I will be going to my GP to see if she can request a referral back to the consultant rather than wait for the test results and then refer me.

I have to take the monitor back to the hospital tomorrow and will also check if they have a PALS service and perhaps ask if they can liaise with the consultant because two physicians (both my own GP and the doctor yesterday) have thought it strange that the registrar didn't organise a follow up appointment after the tests.

I will keep you updated.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 10/23/2013 4:30 PM (GMT -6)   
Maria, the op really shouldn't cost you more than 6500.00 otherwise you have been taken for a ride.. There are many skilled surgeons and it's very competitive, my cousin had a laparoscopic op in London although not a hernia it was still internal organs cost 5 k including 3 nights stay. My sister also had a similar op about 6.5 k and I have been quoted 6100 for the fundoplication. Barter it down if it's more than 6500.00.

I know what you mean about gps when my condition first started I hadn't got a clue what was happening, I had gastritis as well and non acidic reflux burning I just thought I was going to die. They said I had ibs so I went private and then I transferred back to the Nhs under the same consultant and now care is reasonable but it helps when your consultant is fabulous at diagnosing your condition. I didn't have heartburn, I just had weird symptoms of bloating and upper abdominal pain, he listened and did a quick body check and then said I had a hiatal hernia and I wasn't going to die lol ...I did ask him am I dying? Every time he sees me he assures me I am not going to die lol ... Even my regular gp thinks I should have the op but I have met up with a surgeon from Telford who has excellent results but he's still on the borderline but he hasn't said no. I hope your op goes well,

Jamosca

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 10/23/2013 4:32 PM (GMT -6)   
Hi Maria , which part of Newcastle did you live in, I have lived here since 1985, it is a small world sometimes, maybe we know each other lol ...

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/24/2013 2:06 PM (GMT -6)   
Hi jamosca,

I lived in Chesterton. I left Newcastle when I got married in 1984 but go back regularly to visit family and friends. Newcastle holds fond memories for me.

Which part of Newcastle do you live in ?

Maria

Mcedge
Regular Member


Date Joined Aug 2013
Total Posts : 292
   Posted 10/24/2013 2:07 PM (GMT -6)   
Hi jamosca,

I lived in Chesterton. I left Newcastle when I got married in 1984 but go back regularly to visit family and friends. Newcastle holds fond memories for me.

Which part of Newcastle do you live in ?

Maria

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/30/2013 9:50 AM (GMT -6)   
jamosca said...
Maria, the op really shouldn't cost you more than 6500.00 otherwise you have been taken for a ride.. There are many skilled surgeons and it's very competitive, my cousin had a laparoscopic op in London although not a hernia it was still internal organs cost 5 k including 3 nights stay. My sister also had a similar op about 6.5 k and I have been quoted 6100 for the fundoplication. Barter it down if it's more than 6500.00.

Jamosca


Hi Jamosca,

I am still awaiting the results of my impedence and manometry test and a lot depends on what they show. If I do need surgery, I am hoping that I will not have a very long wait on the NHS. But if it is a long wait then I may need to look for a private surgeon. The thing is I just wouldn't know where to begin. I'm in London.

You said that your cousin had a laparoscopic op in London and if you don't mind too much I was wondering if you could tell me who did it and where. Also is she happy with the surgery?

I was also wondering if my GP could point me in the right direction or wouldn't she know?

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 10/30/2013 4:03 PM (GMT -6)   
Hi noelle , your Nhs consultant usually has a private practice on the side. Most of them do. Try to find out who is the lead clinical consultant in charge at your Nhs hospital , find the bariatrics consultant as they have the most experience in messing with stomach areas and usually they fix a lot of hernias. My cousin's surgeon specialises in gynaecology. You can also look on dr fosters consultant list. Look at the ones who specialise in laparoscopic hernia repairs then check them out on the internet. There are a few who get write up in national papers that's how I chose mine. Even though he's not in my area, I am willing to travel... Hope this helps you Noelle

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 10/31/2013 10:10 AM (GMT -6)   
Hi Jamosca,
Thank you so much for that really helpful information.
Symptoms of reflux started on 8th May after taking one Bisphosphonate tablet. I had never suffered reflux in my life before this date.
Osteoporosis
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