Motility issues- does it get better without surgery?

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GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 10/31/2013 8:44 PM (GMT -6)   
Hi everyone,

Anyone out there with low esophageal motility issues that resolved themselves with or without surgery? Did you stick to liquid/easy to swallow foods?


I'm having a moment, and it would be comforting to me to hear some personal stories.


GC

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 11/1/2013 4:30 AM (GMT -6)   
Hi Grover,
 
Sorry that you are having a rough time, and do hope that you feel better soon. I too have terrible motility issues which have now progressed to upper dysphagia (through LPR I think) and am having horrible painful oesophageal spasms all the time now. I am due to see a new consultant next Friday who is going to try me on new medication to calm the oesophagus, so fingers crossed.
 
I'm not sure that you can actually cure your motility, but there are a lot of drugs that can help ease the symptoms and there is always surgery as a final result.
 
I find that domperidone helps my motility and lanoprazole really helps my LPR. I am also using progressive muscle relaxation, and that does wonders!
 
I would suggest finding a good consultant who deals in motility issues and see if you can come up with a solution to help you cope.
 
Yes, sauces certainly make my life easier as food gets caught in the back of my throat now as my UES won't open properly. Also watch textures, keep away from hard tough meats, and stick to soft foods - chicken, baked potatoes, pastas etc. Also A SLT may also help. :-)

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 11/1/2013 2:45 PM (GMT -6)   
I'm sorry to hear you've got it bad. I hope your new medication works wonders! I'm not to the point of terrible pain now, but I'm just worried that what I have might be progressive, and if there's anything I can do to head it off, I want to.

What is progressive muscle relaxation? Is that the thing where you tense everything and then release one muscle at a time for relaxation purposes? Ironically, I'm actually studying to be an SLT right now... I guess I'll have some empathy with my future clients!

Thank you for your suggestions,

GC

JenLL
New Member


Date Joined Sep 2013
Total Posts : 9
   Posted 11/1/2013 3:05 PM (GMT -6)   
GC, sorry to hear you aren't doing well right now. I just replied to you on another thread before reading this posting... I started a calcium channel blocker, which did help for a few days; I am having a rough time the past few days though, but am still hopeful that maybe the ccb will help. It really did make a difference at first; I think I prob just pushed it too much, things got backed up, now the medicine isn't make it to my stomach, so its not working. Trying soft foods to clear everything in hopes of my next pill being able to make it down/hopefully start working again!

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 11/1/2013 4:16 PM (GMT -6)   
HI Grover,
Yes that is what progressive muscle relaxation is - and when the pain kicks in, I do find that this helps. Not all motility orders are progressive, plenty of people have motility disorders and do just fine.

You most certainly will have empathy with your clients!

There is new technology coming out all the time, there is a clinical trial in the UK where they are testing a pharyngeal stimulator on stroke and Parkinson patients, I am on the waiting list for the next trials after these.

So don't worry too much about it, just monitor the situation, and if things change go and see your GP.
LPR, Hypothyroidism, Glaucoma, Dry Eye Syndrome, Positional Vertigo

"I am simply stunned...that is this age of technology not one company or individual has managed to make a valve that could be placed BELOW the LES to STOP reflux!"

OHSOBAD
Regular Member


Date Joined Apr 2013
Total Posts : 87
   Posted 11/1/2013 4:19 PM (GMT -6)   
GROVERCAT - Hi.  I had surgery for my esophageal issues and I can't tell you how much better I am.  I had the opposite of achalasia, which is "jackhammer esophagus".  However the surgey used was actually originally performed to treat achalasia.  The only options for esophageal issues, that I tried, used, etc. are calcium channel blockers, nitrates, and anti spasmodics.  The other approved treatment is botox but, they can't guarantee how long it will work for and you could end up having to do it every 4 to six months.  I opted for the surgery because I was looking to end the pain and hopefully not have to deal with it again.  It has been a little over 5 months and while I still have reflux I definitely don't have the severe pain I used to.  Hope this helps.

JenLL
New Member


Date Joined Sep 2013
Total Posts : 9
   Posted 11/1/2013 9:14 PM (GMT -6)   
OHSOBAD- what was your experience w calcium channel blockers? Did you find them helpful? I just started taking one last week for poor motility/early achalasia...

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 11/1/2013 11:14 PM (GMT -6)   
OHSOBAD, thank you for your story. I'm glad you are doing so much better! The phrase "jackhammer esophagus" sounds pretty terrible.

GC1pink- good to hear about the trials. I have great hopes that technology will keep offering new solutions!

OHSOBAD
Regular Member


Date Joined Apr 2013
Total Posts : 87
   Posted 11/3/2013 12:05 AM (GMT -6)   
JENLL- Calcium channel blocker kinda worked for approximately 5 weeks in conjuction with Dexilant; insurance wanted pre authorization to continue with Dexilant;  doc switched me to prevacid instead.  The Diltiazem stopped working and symptoms worsened.  Next tried nitrates which worked longer but, then stopped working.  Hope it works for you and you don't experience the same issues. Although achalasia is a lack of motility and what I had was hyperactive motility and a tight LES.  Good Luck.

JenLL
New Member


Date Joined Sep 2013
Total Posts : 9
   Posted 11/3/2013 10:47 AM (GMT -6)   
Thanks for sharing your experience! Its interesting how similar our treatment options seem to be, even though our esophagus seem to be malfunctioning in opposite ways. Your condition sounds like it would be so painful. I hope you continue to do well!
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