The Path to Freedom!

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ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/2/2013 1:05 PM (GMT -6)   
Hello GERD Forum,
 
I am officially off the Gaviscon at night and I am off the PPI! Today is day one of OTC Pepcid and so far I am doing ok. I have gradually added a few things back into my diet (cheddar cheese which is low in lactose and I was desperately missing and some candy in moderation such as starbursts and dum dums) but I am still on my diet.  My weight has stabilized at a size 2 in women's which is fine with me. I have been able to increase going out to eat without having major anxiety or embarrassment at having to specify my diet limitations. I will keep you all updated on my progress. Almost a decade on PPI drugs and I was able to ween off of it without rebound. It took about 6 months but hopefully it will be worth it.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 12/2/2013 1:55 PM (GMT -6)   
How wonderful! I am really pleased for you.

Was anything causing your gerd apart from diet? Did you have any investigations that found a hernia or problem with your LES? I thought that there had to be an underlying anatomical issue for gerd to last so long .. but maybe I'm wrong. I have a small hernia which I believe may be causing my problems.

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/2/2013 2:01 PM (GMT -6)   
I had 2 endoscopies which showed mild irritation. I had a gastric empything test, a chest x ray, an ultra sound which all showed nothing. I have a few theories on my GERD. I have always had some digestive issues but they were minor. The major issues came about duing a very stressful time in my life where I was not watching my diet, smoking cigartettes, and partying. I was 22. I believe that when I was put on PPIs, it helped with the reflux but messed with my digestive system. I believe I developed some IBS symptoms because of the PPI use in addition, and my doctor believes this could be the case.  Once I figured out what to eat and decreased my PPI,  things got better.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

Post Edited (ericapeace2000) : 12/2/2013 1:05:43 PM (GMT-7)


DOGGBONES
Veteran Member


Date Joined Apr 2012
Total Posts : 707
   Posted 12/2/2013 2:58 PM (GMT -6)   
erica,
Thats awesome news.......good for you!

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/2/2013 3:05 PM (GMT -6)   
Doggbones:
Good to see you are on here still. It is only day one and as I said I am not fabulous, just ok. I still have some IBS pains going on but as far as reflux issues, I am doing ok. How are you doing?
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

Erinnchip
New Member


Date Joined Dec 2013
Total Posts : 6
   Posted 12/2/2013 3:39 PM (GMT -6)   
Erica,
Your story sounds very similar to mine. I am 22 and a recent college graduate. I started to experience mild symptoms about a year ago and they have been gradually getting worse. I smoked cigarettes in college, drank quite a bit and also ate lots of pizza and chinese food. Since graduating from school I have tried to live a healthier lifestyle, however I have been under a lot of stress recently. I believe this is what brought out my worsening symptoms. I have a preliminary Doctors appointment tomorrow to see what really going on.
I look forward to hearing your progress and I will continue to post mine as well.
All the best!
~Erinn

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/2/2013 5:05 PM (GMT -6)   
Erinn:
Good luck, hang in there. It may take some time but you are smarter than I was at your age. I slowed down but I did not look into the symptoms as I should have and as a result it got worse. I am now 31 and have been taking care of myself for the past 2 years and I have made progress. I am not sure I will ever be "normal" but this beats where I was.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

DOGGBONES
Veteran Member


Date Joined Apr 2012
Total Posts : 707
   Posted 12/3/2013 6:41 AM (GMT -6)   
erica,
Yep, I'm still lurking in the shadows and checking in from time to time, seeing if there's anything new or any advise I can offer. I don't say much these days, as the gerd site has turned more into a nissen/linx site more than anything. I must admit it concerns me to see so many "jump" straight to surgery......
 
I'm doing better these days (not perfect or cured). I try to still eat bland and drink alot of protien drinks (muscle milk sits well with me). However I just can't kick the ppi's but I don't eat a box of tums a day anymore.
 
Hopefully you continue to make progress enough so you and your hubby and get going on that addition to your family....... smilewinkgrin
 
Take care!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/3/2013 11:10 AM (GMT -6)   
Erica,
 
Wonderful news and just in time for the holidays you can have a bit of cheese to go with the other treat you allow yourself.
 
You are a great inspiration to all of us and a size 2 - my dream..............
 
Blessings to you,
 
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/3/2013 1:02 PM (GMT -6)   
Doggbones: Glad to hear you are doing "ok". I do see your point with the Linx/Nissen procedures coming up a lot. GERD is a tough condition to live with and it requires a lot of effort, patience and research. For some I suppose the procedures make life easier, but I do think that they should be a last resort. But to each their own.

Kitt: Thanks! You are also an inspiration. I am short so a size 2 is appropriate. I was a 0, but I finally stabilized. I can't gain any weight beacuse I just got new clothes!
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 12/3/2013 3:54 PM (GMT -6)   
Hi Everyone,

I struggle on similar to you Dogbones. Currently 9 weeks on Zantac and Iberogast, and acupuncture. Most days I'm the same as I was on Lansoprazole, but without the side effects. Zantac leaves me much more exposed as each tablet only lasts 12 hours, with absolutely no run over, so I'm always watching the clock. Took a while to get the timing right too. Currently not enough bad days to make me want to go back on a ppi. Waiting to see a new GI who has a special interest in functional heartburn and in allergies, but my appointment has been pushed back twice. I was going to do a month on Zantac and feedback to him on it, but it'll be more like 3 months by the time I see him!

I still struggle to reconcile my normal pH monitoring results with my symptoms - obviously some part of me is faking the GERD, but I don't know if it's my brain or my stomach!!

One thing I would say is how much you can still learn ( usually the hard way), even after several years. I only figured out this year that Gaviscon gives me nausea, and yet the sicker I felt the more I used to take it because I didn't know!!

MMM

javery
Regular Member


Date Joined Sep 2013
Total Posts : 262
   Posted 12/3/2013 4:09 PM (GMT -6)   
Erica,
I am glad to hear about your success. I ended up getting off the PPI's cold turkey about 2.5 months ago and things have been going pretty well for me for the most part. I am also 31 and wish I would have taken better care or at least been more educated on my health and everything when I was younger. For the most part I was doing ok until I got deployed and the Army fed me a carb heavy diet which resulted in me having really bad reflux. Because of that they stuck me on PPI's and I didn't know anything at the time so I just kept taking them until recently when they weren't helping much anymore. Instead of going back to the dr. to increase it though, I did a lot of research. I'm basically on the Paleo diet now. I've had some bad days but currently I'm down to 2-4 tums a day and it seems to be getting better. Today I have not taken any tums yet and probably won't until right before bed. My LPR symptoms are nearly gone. I think drinking alkaline water is helping with that. I hope you continue to do good. There are some days that I just want to start taking medication again so I can eat some things, but I keep reminding myself that I don't want to go down that path again. It is difficult at times but I think it will be worth it.

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/4/2013 12:46 PM (GMT -6)   
It is difficult to manage your diet. I have found substitutes for many things but there are things I miss. Even on medicaton I still can't eat the things I miss. Oh well, I am now healthier and look better. I am used to it now.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 12/5/2013 10:33 PM (GMT -6)   
So, I am back on gaviscon at night as I am experiencing a little rebound. This is the first time in 9 years that I'm not taking a ppi and even though I weened down, I suppose I should expect some rebound. It seems I am getting heartburn around 4 pm and at night until I take gaviscon. It isn't terrible heartburn and the alkaline water and chewing gum help. I am also taking the Pepcid twice a day since it is OTC. Interestingly most of my IBS pains are barely noticeable which is confirming my dr and my theory that the ppi messed with my system. I just hope I don't exchange one set of symptoms for another. I am hoping it is just rebound. Fingers crossed!
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough) ; Gluten free since 2012; low lactose since 2012
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