Kokonyc is Getting Wrapped 1/8/14

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dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/2/2014 4:46 PM (GMT -6)   
On 12/29/13 Kokonyc wrote:

Hi everyone!

I'm a 38 year old woman who was diagnoses with GERD and a hiatal hernia 7 years ago. PPI's failed over time.

In the last year, my allergic asthma has become worse and I began injectable Xolair for it.

Within the last 3 months, I have has shortness of breath, sleep in an adjustable bed at 30-40 degrees and live on Zantac.

My GI doctor does not believe I need this surgery. I saw on NYC top surgeons, Dr. George Fielding. I present him with old study of bravo PH, swallow study, EGD with biospy and update EGD.

My GI doctor said I had a 35-39 cm hernia and said it was large 7 years ago but , now call its small.

First, I think she meant mm. However, the criteria is anything of 3 cm is LARGE.

Dr. Fielding reviewed my recorded and booked me on the spot!!!

I'm annoyed I've suffered for 7 years with symptoms, but at least I've been directed to a top notch surgeon at NYU hospital.

I'm scheduled for January 8th.

He is keeping me overnight for observation.

I have questions

1) How long did most people stay on the a) clear liquid diet b) regular liquid diet

2) Did you take liquid vitamins of chewable vitamins?

3) How did most people feel by week 2? I return to work at that time.

Thanks!!!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/2/2014 4:49 PM (GMT -6)   
Hi kokonyc,
Welcome to Healing Well! It sounds as if you're in the right place. I found this forum nearly five years ago, just before my Nissen.

Good for you, seeking a second opinion, and finding someone who is willing to help. Your story sounds very much like mine. For about six years, my asthma became progressively worse. I had extremely sick lungs. However, my GI doc did not think my reflux was causing the problem, and was certain that surgery would not help. My DeMeester score (PH monitor) was never very high...and he just didn't think the reflux was bad enough to cause me lung problems.

On a side note...my asthma doc says that most GI docs don't know anything about how reflux affects lungs. They're focused on its effects on the esophagus. They don't understand that even a small amount of reflux can create havoc in the lungs.

My PCP worked hard to communicate with my GI doc about the seriousness of my condition. He said my lungs were life-threatening. I was on high doses of inhaled steroids, and boosts of oral steroids to try to keep me breathing. Even with peak PPI dosage twice a day and 300mg Zantac at night, my lungs were horrible. Whenever I got a cold, or my allergies kicked up, my lungs would get even worse. I had frequent lung infections.

Still my GI doc didn't believe surgery would help. My PCP had a different opinion, and finally sent me to a surgeon himself. The surgeon did more testing, and I took that testing to my GI doc. I had learned enough to know that it's important to select a skilled Nissen surgeon to ensure a good result.

I guess at that point, my GI doc decided to take my PCP's concerns seriously, and told me I could either continue treating my reflux with medications (which is a joke, since they weren't helping), or he'd arrange for me to be referred to a surgeon (and he told me it was no rush to see the surgeon)

I went to see the surgeon he recommended, and had surgery 3 weeks later. I didn't know if the surgery would work for me, but I was out of options. I had adrenal insufficiency as a result of steroid overuse, my skin is thin and tears and bruises easily. The damage was done. I had a lung infection at the time of my surgery, but they did it anyway, as it was a "Catch 22"--my lungs wouldn't improve until the surgery was done.

I had the surgery in February 2009. My lung infection persisted, so I was on Rocephin shots, as my PCP wanted to bypass my stomach, which doesn't like antibiotics. Since my stomach was compromised by the surgery, I think it was a wise decision.

It took about 3 months for my lungs to heal, but heal they did, and they've been healthy ever since. I still have allergies/asthma, but now it's totally controllable. Coincidentally, I started Xolair injections last February, as my pollen allergies are bad. Even with bad pollen effects, my lungs are still 100% better than they were pre-surgery.

BTW, here's a link to my post-op journal. You might find it informative as you prepare for your upcoming surgery.
www.healingwell.com/community/default.aspx?f=45&m=2183443

I understand your frustration. I just wish I'd pushed the issue during those six very sick years of constant coughing up junk. I'm a retired second grade teacher, and my bad lungs made every cold and bug I caught that much worse. My allergic asthma was much worse, too, since it was on top of already very sick lungs. Layer upon layer of inflammation.

I'll try to answer your questions:

1) How long did most people stay on the a) clear liquid diet b) regular liquid diet
My surgeon was very progressive in his diet recommendations. I was on liquids in the hospital, but he sent me home on a soft diet, and when I saw him at Day 6, he told me I could eat "anything that could be chewed to a liquid/creamy consistency." I took tiny bites, and chew, chew, chewed. I didn't swallow anything that didn't chew to a liquid. It was much more pleasant to use my mouth/teeth as my blender, as that's the best part of eating!

It's trial and error, but very doable, and makes life much more pleasant. He did say no untoasted bread (toasted is fine) or steak. The crock pot/slow cooker is a godsend. Things that are cooked for hours and hours become very soft and easy to chew.


2) Did you take liquid vitamins of chewable vitamins?
I stopped multivitamins for a while, but took liquid calcium. If you can get liquids, it would be the easiest. Some people don't have trouble swallowing large pills. I still can't, as they get stuck. A little quirk that doesn't bother me in the least! The results of the surgery are worth that little inconvenience!


3) How did most people feel by week 2? I return to work at that time.
As I said, I was a teacher. I planned to return half days at 2 weeks, but because of the condition of my lungs, and the many sicknesses in my classroom, my TA, principal, and PCP said "No way!" I ended up staying out for 6 weeks, which is ideal, as when I went back I felt great, and was able to go full speed ahead. Two weeks will be challenging, as you'll be recovering from major surgery. You'll be tired and sore. There are others who've done it, and hopefully they'll be around soon to provide their thoughts on the subject.

I suggest you copy and paste your introductory post in a new thread on the main page, so you can ask questions and get support more readily. Here's the link. www.healingwell.com/community/default.aspx?f=45
Just click on the "Post New Topic" button in the upper left-hand corner of the page. Once you do that, I'll copy and paste this response there as well, since it might be helpful to someone else searching out information regarding a Nissen for lung issues.

Again, glad you've joined us! We'll be here to support you through your surgery and recovery, as well as answer whatever questions we can!

Best wishes,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 1/3/2014 8:29:01 AM (GMT-7)


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/2/2014 10:17 PM (GMT -6)   
Kokonyc

Good luck with your surgery.

Returning back to work really depends on what you do at work and how fast your body heals.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

gunner4565
Regular Member


Date Joined Aug 2013
Total Posts : 97
   Posted 1/2/2014 10:32 PM (GMT -6)   
Good luck with your surgery. I went back to work after two weeks, but worked only half days and did not go every day. If I had to do it again, I would take three weeks off before going back part time, then full time after 5 weeks.

I was on clear liquids for two weeks, then soft foods and chew, chew....., Now at six weeks I can eat almost anything. I drank a lot of Adkins Advantage for protein, vitamins, minerals and calories those first three weeks.

Gunner
Fifty years with GERD

DontStealMyBacon
Regular Member


Date Joined Jan 2013
Total Posts : 186
   Posted 1/3/2014 1:18 AM (GMT -6)   
I put up with 5 years of seeing doctors that never understood how severe GERD can be and finally had my surgery 16 days ago. I am about 2 weeks out now and I have been starting to get my energy back and would definitely be able to get back to work if I weren't on college break. I also managed to get back to ice skating today, which may be pushing it a little but my surgeon encouraged me to be active and I feel fine hours later. Everyone heals at different rates though and I am 19 years old so I expect my body is a little better at healing up than most.

The packet I got from my hospital said to go on clear liquids only for the first week, any liquids for the second week, and then begin a soft diet on the third week. I thought I would have no problem being patient, but after 5 days of nothing but jello and sherbert, I had to hurry up and add more foods like scrambled eggs and mashed potatoes. When I met with my surgeon at my follow up appointment, he said the provided diet was only a general guide since everyone has different recovery rates anyway.
Right Temporal Lobectomy 4/5/12
Laparoscopic Nissen Fundoplication 12/17/13

Diagnosed with GERD, Eosinophilic Esophagitis, and Epilepsy.
Studying biomedical engineering to research a better fix to at least one of them.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/5/2014 10:44 AM (GMT -6)   
Hi Kokonyc,
Your surgery date is coming up quickly. Any questions for the great wrapped members here?
Best of luck,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/12/2014 11:09 PM (GMT -6)   
bump turn
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

kokonyc
New Member


Date Joined Dec 2013
Total Posts : 8
   Posted 1/12/2014 11:31 PM (GMT -6)   
Hi everyone!!!!

Thanks for all of great info!!!

Im a podiatrist in a private practice and I do surgery...im going back to work 1/21. I have associates working.....but i need to get back to do surgery.

2) Im trying to be ultra compliant with the diet...I tried cream of wheat yesterday and it was to gritty.

3).I have already lost some weight. I needed to as I was pre diabetic and my cholesterol was elevated due to poor diet. Im really trying to stick to fish and eggs as much as I can. Im iron deficient anemic with thalassemia a minor so during my menstrual cycle I must eat red meat. Im allergic to nuts and soy.

kokonyc
New Member


Date Joined Dec 2013
Total Posts : 8
   Posted 1/13/2014 4:24 PM (GMT -6)   
How much weight did you all loose and manage to keep off???
GERD, Allergic Asthma, Thalessemia a minor/iron deficient, pre-diabetes
Nissen fundoplication 1/8/14

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/13/2014 4:31 PM (GMT -6)   
Hi Kokony,
I lost 15 pounds, but gained it back within the first year or two. It can be kept off, but diet and exercise need to be adjusted after recovery, to make that happen.

Here's an example. jedi_Jenn another member here, did better than me...Here's a quote from her post:

I didn’t lose a pound in the first 6 months after the surgery, but I did finally lose my extra weight (thought I was ~ 20lbs over, but ended up losing ~40lbs and surprised even myself by that, I’m now a size 4) and I attribute this accomplishment to being free of the disabling condition I tolerated prior to getting my reflux (LES) surgically corrected. I’m literally a new person and I’m truly proud of myself for having the courage to take the leap of faith and move forward with the Nissen operation one year ago.

So it can happen. It's not automatic. The Nissen isn't a weight loss surgery, but if you lose it, you can keep it off if motivated.

Happy healing!
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
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