post op complications after Nissan Fundoplication surgery and hiatal hernia repair

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jocog
New Member


Date Joined Oct 2013
Total Posts : 16
   Posted 1/7/2014 12:37 PM (GMT -6)   
hi there been advised to set up a new post. My name is joanne here is a bit of history about my predicament of last few years. In 2011 had gallbladder emergency removed since that op started suffering severe reflux and found that had hiatus hernia, oesophagitus glandular mucosa (which I still have since op) was put on ppi meds didn't work. wasn't just acid coming up but whole food and lost weight First consultant I had basically fobbed me off when to set private consultant who said I needed op. He didn't do anything about it changed hospital in January 2013. Had barium swallow endoscopy and new consultant decided to operate. 16/9/2013 I had Nissan fundoplication surgery and hiatus hernia repair. I was supposed to be on liquid diet for six weeks but I am still on liquid diet..
on 16th Jan 2014 it will be four months post op. I can still only manage very small amount of porridge, I am losing a lot weight and under the care of a dietician. I constantly have the runs and pain in chest op site and stomach spasms.Went for barium swallow on 20th dec just got results and going to see consultant on 29th January. In addition to this surgery which I thought would rectify or help my situation. However the results show that I now have oesophageal dismotility with intraoesphageal reflux and it has been found that there was delayed transit time of the prone marshmallow bolus.. This dismotility has not been mentioned leading up to op and seems to have appeared after op????. Last night I tried to eat something simple like half a cheese slice it stacked up in my throat nearly choked and had severe chest pain and tightening of the chest which lasted for 4 hours before easing. Please Please can someone relate to this or give me any advice as I feel really lost. I feel that I have just been left by consultant to get on with it with no answer and my local doctors are not knowledgeable about how to deal with this

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 1/7/2014 6:34 PM (GMT -6)   
Hi Joanne,
Welcome to the yeah yeah yeah Wrapped Club! yeah yeah yeah I'm so sorry to hear that you're having so many serious problems post op.

What testing did you have prior to your surgery? Did you have a manometry?
If you did, and it didn't show swallowing dismotility (problems moving food down the esophagus), that it seems to me the issue is a way too tight wrap. Foods are getting held back at the wrap site.

The wrap could also have been created incorrectly. Bill, a moderator here, had a wrap that was not created properly...I believe it was twisted and attached in the wrong way. He had a terrible time getting foods through the wrap.

Have you had a second opinion? I think it is overdue. Do some research. If you are in a big city, or near one, look into where you can find a surgeon who specializes in redo surgery. It is more difficult than the initial surgery, so you need someone who has many, many under his/her belt. I doesn't mean they'll recommend a redo, but you'll get a better idea of what needs to be done to fix your problem. It can be fixed.

Bill, the monitor I mentioned, had trouble getting a diagnosis on his first wrap, and they ended up going in to fix it simply because the symptoms were significant enough they figured there must have been a problem. Indeed, there was.

Hopefully, your testing will be more definitive. Please start looking for someone to help you with this. You've waited long enough. It is a long, and hard recovery--harder for some than others. Still, you should be able to swallow normal foods that are chewed thoroughly...you always need to chew, chew, chew until whatever you're eating is a liquid.

Also, be sure that what you've eaten has made it through the wrap before taking another bite. Bill found dipping whatever you swallow in a sauce first, can help. That was his mode of getting food past his first wrap.

Do NOT stick with your original surgeon's office. Get a completely different, skilled redo surgeon, to do your evaluation.
Hang in there! There is an answer to this. You just have to persevere.

Best wishes, and good luck,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 1/7/2014 8:23 PM (GMT -6)   
The Sixness wrote:
I'm having problems with food getting stuck also. I thought just giving it time and avoiding meats and breads would make the reflux lessen.
--------------------------------------------------------------------------------
-TheSickness-

This topic by jocog was inadvertently posted twice. I am consolidating posts on this one thread.
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

jocog
New Member


Date Joined Oct 2013
Total Posts : 16
   Posted 1/8/2014 4:11 PM (GMT -6)   
thanks so much for the reply dencha very much appreciated i will let u know how i get on x

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 1/8/2014 9:35 PM (GMT -6)   
Good luck, jocog! I'll look forward to hearing from you again.
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

jocog
New Member


Date Joined Oct 2013
Total Posts : 16
   Posted 2/3/2014 1:50 PM (GMT -6)   
hi dencha just thought i would update you been to see consultant he says that he thinks that the dismotility has been there for a long time, my barium swallow i had prior to operation dismotility test couldnt be done be cause i was vomiting the liquid up shouldnt that have raised concerns before op. He said he thinks the dismotility could be permanent, questions that i have asked him have had no valid response ie: if it is permanent will i have constant trouble swallowing, he feels the operation was a success he was supposed to go in and do a partial wrap but ended up doing a full wrap but couldnt explain to me why. He thinks i have some gas pain but i know the difference he is not taking it seriously about the fact of food getting stuck at wrap. I am now going to have an endoscopy to see whats happening im scared to go for this one as before the wrap they were discomforting enough but what will it be like now wrap has been done also it seems every test i am having they are finding more things which i feel show that there is definite problems but no conclusion. He is going down to see if what wrap is like and see if it needs widening or dilating. Has he done operation wrong confused is not the word. He is now referring me to a dietician that he would only normally use for people who are seriously ill but he will make an exception with me. These are all given me warning signs as to whether things have been done correctly. Need some support and advice at my wits end. I go and see an independent surgeon end of feb what do i ask him???

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 2/3/2014 2:13 PM (GMT -6)   
Hi jocog,your story sounds similar to mine.I had a full wrap done with no manometry and I had a terrible time.I ended up going to another surgeon because my original one didn't want to know.I had my wrap undone and redone to a partial wrap and now im great.
Don't let your surgeon mess you around like mine did,it took me over a year to start looking for help.Please get a second opinion. Barry
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