GERD long journey and slowly finding answers

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moodoch85
New Member


Date Joined Nov 2013
Total Posts : 1
   Posted 1/16/2014 8:02 AM (GMT -6)   
Hello,

I've only just found this site, and have read lots of interesting stories.

I've suffered with GERD for as long as I can remember firm memories to around age 7, and now at nearly 29 I've got a GP and GI that are taking me seriously.

I was referred for a Manometry and 24 PH testing in late December, which was a surprisingly okay experience with the staff at NHS Guys Hospital been brilliant - they had endless patience, and explained everything well so there where no surprises.

The phisiologist went through the Manometry results to make sure he had everything he needed before commencing with the PH and as an inquisitive engineer I found it fascinating to see what the small tube could tell him. Anyway he said that I had a very weak LES which explained my symptoms and seemed to think I had a weak swallow, but couldn't say much more then that as it wasn't his place. I actually appreciated this small insight, as it at least made me feel like the tests where worth while after numerous scopes that would either point to H.Poloyri or slight aggravations to the esophagus and sending away with more pills.

However I'm now waiting to see my GI to discuss my results and options. When I saw him last he told me to start thinking about LNF as I've been reacting to Lansoprazole (which controlled my symptoms well but gave other issues) and Nexium was my last PPI to try, he also said that at my age I need to consider the impact in my terms of been on PPI long term. I appreciate his honesty and giving me options that matter to me and paths I can choose to take with out been backed into a corner.

However as much as I'm swaying towards LNF - I've read up quite extensively the pros and con's and my biggest worries about potentially taking this procedure would be the recovery and its impact on my busy life as a father to 2 young boys (4 and 9 months old). Putting that aside as that offer isn't firmly on the cards yet, I cannot get out of my mind the thought that LNF is out because of my weak swallow. Now my GERD responds well to PPI but its the side affects getting to me, so that was a positive indicator for LNF, but does any one have any experience on the impact of the weak swallow? I know that if you have spasms etc it's out but I cannot find out much about the weak swallow. I know I should wait to see my GI, but it keeps going round in my mind and I cannot seem to put it too one side for now. Possibly because I really want a way out of relying on PPI's.

If anyone has any experiences with the weak swallow they can share it would mean a lot to me either way. In many ways I want to be as prepared as possible when I see my GI so I can ask the right questions.

Thank you for listening / reading.

moodoch85

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 1/16/2014 4:38 PM (GMT -6)   
Hi moodoch85, welcome to HWgerd. I can't comment on the specifics of weak swallow, but think that there are a number of posters that have symptoms in common, that will comment soon.

I was wondering, since you have got to this point of considering surgery, whether it would be worth exploring the possibility that Endostim might be of some help. This is a new device that is used to stimulate the LES. It is being trialled around the world, with UK trials supposedly starting this year. There are a few threads on HW, and other info around the web. Good luck.

Phil
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