Reflux Reflux everywhere

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GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 1/17/2014 9:53 AM (GMT -6)   
I am sick to death of this! I never used to feel reflux now I have it all the time. I have it when I lie down constantly I have tried raising the bed, tried the chair, the recliner and the sofa and there is no relief, I am now hardly getting 1-2 hours of sleep at night.
If I sit on the couch I get reflux, stand up I get reflux, and as for trying to eat anything I now have to stand up and still get some reflux!
I had a manometry and ph done before Xmas whilst on all meds, it showed pathetic motility (although I did take a large quantity of diazepam before the test as prescribed by GP for spasms) and was still on domperidone - so sphincter pressure went from an 8 previously to a 15 on meds and motility only 1 in 4 normal!
I am having a dilitation on upper sphincter next weds so going to try for another manometry and ph test after that off meds to see what is really happening.
Anyone else had reflux this bad?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 1/18/2014 9:24 PM (GMT -6)   
Hi pink,

Sorry to hear you're struggling with so much reflux. Did you tell your doctor that the results of your motility test might be skewed by the medication you took? As hard as it is, you might just want to retake that test diazepam-free, to see what it REALLY looks like.

With the type of reflux you're describing, a Nissen sounds as if it would help you greatly. If you can get that manometry again, and get that swallowing reflex improved, you might just be a great candidate.

They might want to do a loose wrap/partial wrap either way, but it could really improve your quality of life. It's critical to find a highly experienced Nissen surgeon, but done properly, the surgery could help you tremendously.

Hang in there!
Take care,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Lois123
New Member


Date Joined Aug 2013
Total Posts : 13
   Posted 1/19/2014 11:26 PM (GMT -6)   
Hi Pink, I had reflux pretty much all day. I had had it and the GI sent me to the surgeon. (20++++ yrs ppis used to work, then minimal help)
The surgeon ordered UGI, gastric emptying films, and manometry, then said nothing was conclusive, he couldn't do surgery at that point, Huh! What's wrong with these tests. I thought they think I'm exaggerating how miserable I felt, or I'm loo loo... Quality of life was suffering.... ANYWAY TWO IMPORTANT things .. I was then sent to an Ex MAYO clinic professor , for the impedence test which "woke everybody up" as it was HIGHLY positive confirming the constant acid reflux. This doc re-ordered the manometry, which sowd less dysfunction, but still some...then THE NEXT IMPORTANT thing I found out from this GI doc was that one of THE MAJOR CAUSES , if not the major cause of swallowing motility dysfunction is REFLUX... Go figure. We put two and two together and I had my wrap Aug 2013 and I'm soo soo glad I did. I rarely have anything that feels like reflux, or even heartburn... Sleep fine, can eat many things I couldn't before, like bananas and oatmeal which used to give me worse reflux.. Now I enjoy them... Of course I went through the many of the same recovery issues as you have probably read, but I'm here to say I'm glad I did it and wish I had done it earlier. My likes and dislikes have changed, I eat smaller meals, but have stayed the same weight up or down 5 lbs since surgery. Lots of smoothies while progressing to solids. My GI said also the stomach has it's own set of hormones (specifically GI type hormones) which add to what we like and don't like, how hungry we are, etc. I was in hospital about 24 hr post op, went home, off work 2 weeks, then returned to my part time job. Doctor would have let me go back after one week. No thank you , I needed two weeks. Not too much belly pain at all, but swallowing was painful at first. My eyes were bigger than my ability to swallow, so I had my moments, but just backed off if I tried some food too fast, or thought it was okay, and found out otherwise.... So about 5 months now , and I eat most anything except dry, tuff, or too sticky stuff...enjoy my food. Look at this as a journey and trust you will get the correct answer from wise docs.... Make sure they're experienced and have the practical experience too. My doc had done about 2000 Nissen Fundo's ( I had a hiatal hernia fixed too) . He was experienced with laparoscopic and robotic surgery ( I had laparoscopic) 5 small healing and fading lines. Amazing what they can do. Please keep us informed. GB. Lois

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 1/20/2014 8:48 AM (GMT -6)   
Denise & Lois,
 
Thank you so mush for your stories and advice, very much appreciated. I am awaiting new dates for a PH & Impedance Test.
 
Many thanks! :-)

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 1/23/2014 1:47 AM (GMT -6)   
Lois,

Could you tell me the name of the professor that you saw please, I am interested to know more about the motility issues caused by reflux. I'm regurgitating constantly now, and am due to have repeat ph study this weekend, so fingers crossed for that!
LPR, Hypothyroidism, Glaucoma, Dry Eye Syndrome, Positional Vertigo

"I am simply stunned...that is this age of technology not one company or individual has managed to make a valve that could be placed BELOW the LES to STOP reflux!"

Lois123
New Member


Date Joined Aug 2013
Total Posts : 13
   Posted 2/4/2014 6:05 PM (GMT -6)   
Sorry for delay.
The physician is Ray Keate , Richmond Va
Did you have the 24hr ph test. That was the clenched for my diagnosis. Good yor doing your homework to make sure you are a good candidate, and have a good doctor. Good Luck

Nursebetty
New Member


Date Joined Feb 2014
Total Posts : 1
   Posted 2/6/2014 8:36 AM (GMT -6)   
Good morning, I have a burning feeling in my throat almost every day, it feels like it's on fire. The worst is in the middle of the night when I wake up with a fluid that feels and taste like vomit and I choke so bad and can't catch my breath untill I drink something. I didn't see a doctor yet cause I'm scared too, I know that sounds dumb but I don't want to do a endoscopy. Has any of you felt like this??

Lois123
New Member


Date Joined Aug 2013
Total Posts : 13
   Posted 2/9/2014 6:00 AM (GMT -6)   
I had 6 EGDs in the 25 yrs I had GERD.
I had fears too, but long story made short
Walking through them made me stronger
For the next time. My spiritual life with
therapy and support of friends and mentors
Helped me grow and continues to
help me. I think being human is our
first issue. You're here for a reason.
What u go through now will help others
one day. Don't go through your fears
alone. Your feelings are real , their
not facts. Trust the gut level voice to
tell you your next step. I used to have
anxiety and fear about any procedures
because I was afraid to lose control,
but going through the fear and doing it
anyway made me stronger for the next
time. I think it's wise to go forth. You
Are suffering. You may not need surgery
Or u may, but I believe we are supposed
To take care of our temple, our bodies which
I believe God gave us. U might save yourself
from a worse issue like damaging your esophagus
and if your like me your quality of life
Is suffering

Lois123
New Member


Date Joined Aug 2013
Total Posts : 13
   Posted 2/9/2014 6:09 AM (GMT -6)   
... Go for it , it's no big deal , try and relax
And go through the discomfort of your
fears, and you'll be stronger for any
future fears. That's my experience.
I'm not minimizing your fear. I'm very
Glad I finally surrendered and my quality
of life is so much better I'm sorry I
Waited so long , and I had sim alar issues
to you. Sour stomach and burning and
the meds weren't working anymore.
I will pray for your courage, and that you
trust your little voice that tells you what
your next step should be. GB. Take care,
Your important. :)
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