Supragastric Belching Help/Suggestions/Ideas Please??

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Bzmomto2
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 1/23/2014 6:09 PM (GMT -6)   
I am hoping someone can help me. My 15 year old son woke up one morning in August 2013 (after being sick for a week) burping. From the time he wakes up until he goes to sleep. Never during sleep. Doesn't happen at regular intervals either. I came across the article "management of belching, hiccups and aerophagia". This is the first time I have found a description that completely sounds like my child!! I would like to get some help for him or find other people like this who have been through it in order to help reduce his burping. We have not been able to find anyone that can help us or that has worked with this condition.


He has been to his pediatrician, to a pediatric GI doctor, has been prescribed Gaviscon, Previcid and Omnaprozole all with minimal results. He has been through an endoscopy, which showed no tears, infection etc. He has been to a neurologist, who thought it was a motor tic (we disproved that), he has had blood tests done for PANDAS (came back negative), he had speech therapy for three sessions, with minimal results. The speech therapist tried to teach him breathing exercises and he can focus and go for about 7 minutes without burping, however he describes it as a pressure in his chest where he needs to burp. Since this began, he has gained 10 pounds because he cannot run swim or bike consistently because of the belching.

We would love to find someone who has experience working with children with supragastric belching and getting it to reduce or stop. Although we have been led to believe it needs to be a pediatric person because of his age, we are also comfortable with someone who works with adults (my son is 5' 7" and weighs 235 lbs.).

7Stringer
Regular Member


Date Joined Aug 2013
Total Posts : 88
   Posted 1/24/2014 1:16 AM (GMT -6)   
Hello. I also have this awful disease that nobody knows what it even is. If I do physical activity - well, I can't, because gas comes up on me and chest pain releasing the gas. And makes it hard to breathe. It was ever since I stressed out big one night. Now things like chipotle sauce don't really digest for a good 6-7 hours and irritate that lining. Not good.

But I did sart acupuncturew but it was just a couple needles. Yesterday it did help but today after eating subway and adding certain things, and then coffee triggers something to be eating at the lining of my stomach. But blood/breath tests all came back negative. Barium only showed reflux. Nothing significant. But I have been ill on and off for almost two years. Perhaps its time to get that scope. But if barium never found much then scope might not.

If you find out please do let me know and I will do the same if I find out the cure.

Bzmomto2
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 1/24/2014 12:36 PM (GMT -6)   
I went on the internet and while I didn't find anything more than the article that gave me the name of this condition (apparently its not a real common thing) the word "motility" kept coming up. so I contacted a dr in ohio who mentioned that this could be part of motility. there are 5 motility centers in the US, so today I will contact one of them and see what they know and if they think they can help.

Bzmomto2
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 1/25/2014 2:49 PM (GMT -6)   
We contacted the one in Los Angeles and their first appointment is about 6 weeks out. So if I find out more before then i'll let you know.

BurningHeart
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 2/12/2014 12:18 AM (GMT -6)   
After you get used to regular acupuncture, you could ease yourself into Electro Acupuncture. The latter has been documented to be more effective. Hit me up if you need more details.

brazilianhelp
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/4/2014 8:19 PM (GMT -6)   
Hi! How are you today?
Have you ever tried Baclofen 10mg? That`s a kind of muscle relaxant and it has helped my wife a lot. If you want to talk more about it, my e-mail follows: frennks@yahoo.com.br. (sorry my broken english rs)

Best regards.

Bzmomto2
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 4/18/2014 11:22 AM (GMT -6)   
I found an article online recommending Baclofen. However after his pediatrician looked over the side effects etc we decided against it. Now I'm up to finding someone that has dealt with this condition before. Got any doctors or recommendations for me? He is 15 (so I am told it has to be with pediatrics). My son is much better, but still can't exercise

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/19/2014 4:23 AM (GMT -6)   
The only thing that helps with my belching is Tramadol. I don't know why and I don't want to take it for that because of its addictive nature. Maybe amitryptiline is a good alternative?

lilac7
Regular Member


Date Joined Nov 2013
Total Posts : 230
   Posted 4/19/2014 6:48 PM (GMT -6)   
might be because of gerd or anxiety. I also have it and sometimes really freaks me out

Bzmomto2
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 4/21/2014 2:52 PM (GMT -6)   
what is gerd? we are pretty sure this is connected with his breathing and not anything stomach/intestine related.....

brazilianhelp
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 5/22/2014 3:22 PM (GMT -6)   
I'm also sure that it's not connected with gastric problems. In fact, I have realized (and done some tests) that when she is focused on something her belch stops. And then (i don't know exactly why) they start again after she loosing focus. I know the swallowed air goes to esophagus rather than trachea (lungs) and because of that she needs relief, and to get relief she burps AND more air comes to esophagus and it becomes a cycle. When she understood it, she improved a lot.

Post Edited (brazilianhelp) : 6/3/2014 6:09:16 AM (GMT-6)


jkramer
New Member


Date Joined May 2016
Total Posts : 2
   Posted 1/26/2018 10:21 AM (GMT -6)   
Hi Bzmomto2,

My burping started three years ago. One day out of the blue. It is crippling. After a while it makes me feel sick in my stomach. After seeing all of the specialists, etc. with no results, I tried to figure out what was causing it. Sometimes I would think it might be physical, other times maybe physiological related to anxiety or stress. I still do not know.

I thought I would share some of the things that have worked for me. First, I noticed that it wasn't happening when I was eating, so when I would start to burp a lot I would eat sunflower seeds. This works, but there are other issues with eating a ton of sunflower seeds :-(. I also tried just lightly snacking on other foods, but again, not a great solution.

One of my doctors suggested chewing gum. Amazingly this helps most of the time.

Sometimes, it doesn't, but overall it really helps. Lastly, on one of my many internet searches, I found an article on a case study of using hypnosis to treat uncontrollable belching. https://www.researchgate.net/publication/14404330_Uses_of_Hypnosis_in_the_Treatment_of_Uncontrollable_Belching_A_Case_Report

I am a skeptic of hypnosis, but based on how dismal the belching makes me I thought I would try it. I contacted her and had a session with her. The next day was my first burp free day after nearly a year and a half of burping. I was still burping, but there was hope. I was unable to continue sessions because of cost. Now another year and a half went by and I decided I need to get back to trying to stop the burping instead of dealing with it. The therapist/hypnotist sent me a recording of the session and I have been using it for 2 days now and have noticed a big decrease in my burping, which prompted me to logon and respond to these forums I came across in my research, hoping I could help some others. I will post again in a week or so to let you know how it is coming.

Please post if any of these things helps with you and what other methods have helped. I am sure this can benefit many others.
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