My story.. Help I'm at wits end

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Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/26/2014 8:22 PM (GMT -6)   
ent to bed oct 31 woke up Nov 1 st (fri) with the worst diarrhea I've ever had in my life. Went to the dr that Monday said it was a stomach bug and gave me pantoprozole which I thought was odd. Ended up in the ER that Saturday with severe low levels of potassium (1.8). Went to GI Dr on Monday they scheduled endoscopy and ct scan for that Thursday and Friday. Ct scan showed inflamed gallbladder but everything else was clear, endoscopy showed moderate inflammation on esophagus and mild of the stomach. They put me on omeprozale. Ended up in ER that weekend with again low potassium levels and chest pain. Over the next two weeks I lived off ensure and pb&j sandwiches. Finally after three weeks my appetite came back and my weight began to become normal again after losing 10 lbs. Was hospitalized January 11 for bacterial bronchitis and severe dehydration. Sunday they did a colonoscopy which came back normal. Monday they took out my gb. Returned home on Wednesday began eating normal almost immediately. Thought everything was going well until Saturday. My appetite took a major vacation. Have been to the er 4 times with this and all tests have came v back normal. They checked me for pe (which was scary) and dvt. I have no appetite at all. I have dropped to 122 lbs and I'm 6'4. Drs don't seem to worried because I'm able to drink liquids and soda but I'm terrified. Drs blame it on ibs but outside of loss of appetite I have NO ibs symptoms. My stool is perfectly normal. I am at my wits end and scared to death that they are missing something. It has put my anxiety and depression in massive overdrive which doesn't help any either. Any ideas? They have tested me for just abouteverything and I'm literally debilitated from this whole thing. I'm now 13 days post op from my lapo gb surgery. Thanks. Oh and prior to Nov1 st I have been completely healthy with no health issues prior. Matter of fact, only thing I've had in 10 years is a sinus infection during the peanut harvest.

Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/26/2014 10:54 PM (GMT -6)   
Guess no one has any idea either....

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 692
   Posted 1/27/2014 7:34 AM (GMT -6)   
I'm sorry to hear that you are having such a bad time. Did they take biopsies during your colonoscopy and endoscopy to check for things like Celiac or Crohns? What about a capsule endoscopy? I have Crohns and can tell you that the CT scans and MRIs never show it on me. How has your blood tests and stool tests been?
Jodi

Crohns, Psoriatic arthritis, Psoriasis in my nails, Hashimotos. Meds- Synthroid, Remicade, Methotrexate, Vitamin D, Biotin

Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/27/2014 9:07 AM (GMT -6)   
They took biopsies in both outside of moderate inflammation in my esophagus and mild in my stomach everything was clean. Stool and blood samples have all been spot on perfect. Hence why they quickly blame ibs. Though my stools are normal bm outside of some "floaters" sometimes but not diarrhea. The ER has instructed them since my surgery to redo the endoscopy and colonoscopy to see what has changed since I had an appetite prior to the surgery. And I'm at my wits end with this. Go from perfectly healthy one night to all these problems for three months.

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 1/27/2014 9:47 AM (GMT -6)   
You have been through some major surgery with removal of gb and your body probably just realised it. Give it sometime. Also because of stomach problems, I suggest you lay off soda and fried foods. Try to eat blandly and more healthily and give yourself a few weeks . Stress only exacerbates stomach problems .

Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/27/2014 9:59 AM (GMT -6)   
The problem is I'm 6'4 and now down to 125 lbs. The only calories I can even get is from soda. I don't have much if any pain at all, stools are pretty much normal. The thing that has me worried is my potassium keeps dropping very low usually around 1.8-2.2 it should be 3.5 and my appetite is completely gone. What little food I can put in I have to force myself and it's usually late at night before I have any appetite at all. I'm very weak, dizzy, light headed from not getting enough nutrients and I'm beginning to think my gi drs think I'm crazy but from reading these forums it seems I'm not the only one with these issues. I was hoping there might be some insight as to what it is. I can't live on 500 calories a day. I already have a high metabolism as it is. I'm just so frustrated and scared they are missing something and they don't seem to be worried but I am!

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 692
   Posted 1/27/2014 1:18 PM (GMT -6)   
I would push for a capsule endoscopy. It will show what is going on in the are that endoscopy and colonoscopy don't reach. I agree with jamosca, lay of the soda and fried foods. Try a meal replacement shake. I make them using a non-dairy milk, almond butter and frozen fruit. My meal replacement powder of choice is Raw Meal because it's vegan and sugar free. You can also try soups and juicing. The liquids are easier on you system but can still get you the calories you need. Perhaps the doctor can give you an appetite stimulator. Maybe try another GI. I went through more than I can count over the course of 20 years until I was finally diagnosed with Crohns.
Jodi

Crohns, Psoriatic arthritis, Psoriasis in my nails, Hashimotos. Meds- Synthroid, Remicade, Methotrexate, Vitamin D, Biotin

Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/27/2014 1:31 PM (GMT -6)   
They've scheduled my endoscopy tomorrow at 10 am. They aren't going to repeat the colonoscopy as I just had one 2 weeks ago. They put me on amitriptyline to try to stimulate my appetite but I've heard really bad horror stories of side effects with it. Currently I'm sitting in the ER because after my gi appt my bp was 98/60 they could barely get blood work to come out and I passed out having chest pains. Feels like I've fallen apart in the last three months after being perfectly healthy my whole life.

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 1/28/2014 5:56 AM (GMT -6)   
Eat more nuts, avocados, these are high in energy and fats. Peanut butter on bread. Purée the avocado into guacamole and spread or use as dip with health items . Sodas are empty calories and are really bad for you .

Chadj
Regular Member


Date Joined Jan 2014
Total Posts : 113
   Posted 1/28/2014 7:05 AM (GMT -6)   
Well they admitted me to the hospital to try and figure out why no appetite and the dr wants to check my heart due to the consistent drop in my potassium and lack of nutrients. Though I doubt anything is wrong with my heart as I'm only 40 no heart history, amazing blood pressure all my life, and pretty physically fit and never been even close to over weight, but they want to check any way so I'm OK with that. Actually got as little bit of an appetite last night and ate two Turkey sandwiches that felt REALLY good LOL. I'll keep it posted here updates maybe what's going on with me might help someone in a similar situation.
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