My oestophagus motility problems, but wrap is intact ,help please

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reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 2/1/2014 4:55 AM (GMT -6)   
Hi everyone after having endoscopy manometry and ph acid tests the results are -: my 12year old full wrap is intact but has moved down slightly, my oestophagus has very slow motility. Conclusion going to have dilation before discussing changing the tight full wrap for a partial one to allow the food thats sitting around down and stopping reflux coming back. I urgently need advice and help, what shall I eat? So all this what I thought was acid is actually pain!! Thanks please help from Rita

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/1/2014 8:55 PM (GMT -6)   
Rita-

sounds like you are having issues similar to when the wrap is swollen and foods sits at the wrap. One thing I found was to eat foods that have enough "body", for lack of a better word, so the muscles can push it through. I found that food such as thick mashed taters and other sticky soft foods would hang up and gradually wash through. This is a huge cause for people feeling reflux in the first months following a Nissen.

Since they see it has slipped a bit that may be causing some dysphagia as well, if it's far enough out of place. It could be below the LES and choking of the top of your stomach so to speak. I had some what this problem when my 1st nissen wasn't done correctly.

I do have some good news.... I've been through the ringer with 2 redoes and a torn esophagus and I found the recovery on my redoes were much easier than the 1st time. I had severe scarring after the tear repair and had to have the last redo done as an open surgery and found that to be my easiest recovery.

If you do have to have it redone be sure to find a surgeon who is very good at redoes.
Oh, I also found it helpful to takes a few drinks between bites and really focus on my swallowing if food was sitting at the wrap.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 2/2/2014 3:43 AM (GMT -6)   
Hi Bill thank you so much for your reply, I feel better knowing what my condition is now and hopefully a few hints and tips are most appreciative can I just ask do you mean mash potatoes are a good thing? So really I need to eat thicker consistency which as I have poor motility seems odd. Can you clarify that for me please. Best wishes Rita

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 2/2/2014 3:29 PM (GMT -6)   
Rita,

I have poor motility and was offered a dilation which I refused. I sincerely believe motility will not be helped by dilation or surgery. I suggest the cause of the motility issue has to be discovered.

I know my motility issue is from having had polio as a child. It's always been slow. It's a muscle problem. Dilation will only open my nice wrap, which is working, and loosen my useless LES (lower esophageal sphincter). Then I'll have reflux again from incompletely closing valve.

I suggest more testing, barium swallow maybe, to see what exactly is happening to food when you swallow. If it goes down the throat fine and sits at the top of the wrap, then maybe dilation is actually needed. It there is a muscle problem (actually a nerve problem) like I have, just slow going down but going through the wrap when it finally gets there, then dilation won't help.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/2/2014 3:45 PM (GMT -6)   
Rita-

I had problems with mashed taters piling up at the wrap site and just sitting there and being slowly washed through.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 2/2/2014 4:16 PM (GMT -6)   
Hi alcie thank you for teling me your story.I have had a barium meal, the radiographer told me the reflux was back 'big time'. Infact I have no reflux what she was seeing according to my Consultant was the barium collecting by the wrap as it has moved down slightly, and turning me during the procedure she could see the barium going back the wrong way. I had to have a dilation after my wrap 12years ago which worked great hoping it does this time.
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