globus hystericus (feeling lump in throat)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 3:01 PM (GMT -6)   
globus hystericus is the feeling something is in the throat. many things can be linked to this problem. gerd is one of a few. followed by anxiety, depression, and pretty much mental disorders.
my husbands surgeon mention this in his first visit with him, because this feeling something is in his throat is the first thing he complains about. it controls his life.
my husband has been to an en&t specialist, having 6 unnecessary surgeries trying to fix this problem. recently we read that gerd produces this feeling because the acid rises from the stomach to the mouth. the valves at the top and bottom of the esophagus are becoming trapped. after the nissen fundoplication surgery, the acid has to stay between the esophagus and the mouth because it is trapped there. and what is between the two, the throat.
now esophageal dialation is an option for this globus hystericus, which stretches the esophagus with a balloon type apperatus.
since my husband is only 4 days post op, he has to do some healing before he can have this procedure done. he has always said that swallowing big pieces of food help soothe the discomfort that is so noticed by far more than the gerd itself. he also takes a medication called amitryptaline and ativan to help with the anxiety he suffers with this problem. but since he has had these issues for more than a decade untreated, the ativan does not work like it use to. the amitryptaline is newly introduced to him.
he suffers with insomnia as well and the ativan helps to aide this as well. hopefully this info will help someone to move forward and don't hesitate to talk to your doctors about these meds because they have no idea how you suffer with these issues. and if it can help you, why not?
i am just very concerned about this disease and everything it entales because I see first hand how scary and life changing it really is. everyone thinks they know heart burn, i thought i did, but i have seen the distruction it can do. gerd is scary stuff, and i truely feel bad for all of you that suffer with it.
good luck to all of you, hope i was a little helpful smilewinkgrin
journey72

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/2/2014 3:08 PM (GMT -6)   
This is what happened to me. I woke up with the globus sensation when i had a Bravo capsule implanted and it has ruined my life. They put me on ativan which has also caused major problems for me, including a dry throat which makes the globus feeling worse. What operations did your husband have and what are his current symptoms? How much ativan does he take if you dont mind me asking. I also trying the elavil, but only one day.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 4:09 PM (GMT -6)   
he had a deviated septum fixed because of post nasal drip, direct laryngoscopy, tonsils, adnoids, tubes put in his left ear, and tissu e removed from his throat for biopsy. he takes 2mgs of ativan twice a day.
sorry to hear your problems with that medication, and having a dry throat is frustrating. everything connected with gerd seems to be frustrating though.
he still has the full feeling in his throat accompanied by the burning sensation. everything (symptoms) are centered only on his left side. he has chronic chest pain, eye, ear, and even back pain. which he takes 50mg of ultram for his pain as needed for pain. but the ultram causes you to feel very sick once it starts to wear off. he has chronic nausea and regurgitation. back in 2000 he had a scalenectomy ( the muscle on the side of the neck next to the collar bone along with two ribs removed through the same incision).
we figured the doctor that did this surgery maybe interfered with the phrenic nerve, but through testing, that was ruled out. however, still 4 days post op, he wonders about the vegas nerve maybe having been damaged.
when he was 10 he fell off a grapevine and convulsed and seized almost swallowing his tongue. so he has had tramatic injuries that could have caused many of these symptoms, but gerd has been the only diagnosis so far.
hopefully this helped, feel free to ask anything. i will do my best to answer what i can.
good luck smilewinkgrin
journey72

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/2/2014 4:25 PM (GMT -6)   
Journey72, nobody should have to go through these things. I suspected all along that my vagus nerve was damaged by the Bravo probe. One thing i can say for sure is that the ativan causes xerostomia and even though it helps with the anxiety, it makes my throat so dry and even more painful. It is truly a horrible catch 22. The more ativan i take, the drier and more painful my throat gets. I am up all night long drinking water. I was taking 2mg per day and weaned down to .25mg per day. My throat dryness improved alot, but then i had gallbladder surgery and got sinus problems so i started taking the ativan again to deal with the pain. Now, the dry throat problems are back. I empathize with your husband. I really do. The globus sensation alone will drive you nuts and nobody understands how bad it is.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 4:44 PM (GMT -6)   
labstahguy
yeah I feel for your situation too. my husband had the bravo test done on 3 occasions and complained about the discomfort for days after the pill finally released. he hasn't really mentioned having dry throat, but definately hoarseness and burning sensation. he clears his throat a lot and he always has ricolas to help soothe his throat.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/2/2014 5:31 PM (GMT -6)   
Does it hurt when he talks?

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/2/2014 5:56 PM (GMT -6)   
Thats a very good thing. My throat hurts so bad i cant talk and it has devastated my life

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 8:45 PM (GMT -6)   
have you ever been diagnosed with anything. the vegas nerve mimics gerd. the phrenic nerve does as well because it runs from the brain down to your diaphram. you should maybe ask your doctor to send you to have a test for that. i don't remember what the test is called, but it is specific for phrenic nerve damage, tests your diaphram.
i'm gonna do some research and find out exactly what this test is called, even possible conditions you could be having. do you take any diuretics, because they cause dryness? i personally don't think that would be the cause.
i know acid can really do extensive damamge if left untreated. do you take any antacids? otc's are a joke, dexilant really made a difference for my husband. he was so miserable, he actually contemplated suicide.
he has partial hearing loss in his left ear, nerve damage to his left eye, tingling on top and the back of his head, and scaring on his lungs from the acid.
have you tried aloe vera juice? you can find it at any organic medicine shop, even walmart has it. it helped soothe his throat, and it can heal damage done by the acid.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/2/2014 8:57 PM (GMT -6)   
The doctors dont know if i have LPR or nerve damage or both. I suspect both at this point even though i never feel any heartburn. I had a Restech test, but it malfunctioned and didnt work right. Also had the Peptest which showed alot of pepsin in my throat. My quality of life is unmanageable. I had trouble with my left hear when the Bravo probe was implanted. Up until this time, i never had any ear, nose or throat symptoms. Now i have every miserable symptom in each one of those areas. I have on ENT who thinks it is nerve damage and he wants me to try Neurontin, Amitriptyline, or Lyrica, but i have terrible reactions to medicine. Ive tried every natural thing i can think of including the aloe vera juice. My kitchen counter is overflowing with dozens of natural remedies that have not worked. And i cant take any acid blockers because they make me very sick. I dont take any diuretics, but i am certain the ativan is causing the xerostomia. Any help is so greatly appreciated. Thank you.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 9:03 PM (GMT -6)   
do you smoke or have any unknown allergies? copd and sleep apnea cause dry throat also. for the sleep apnea you could get a mouthguard to sleep with. gerd also causes dry throat and cough as does emphazema. have you noticed any decay of your teeth? or wake up tasting blood or something metallic? or even a white coating over your tongue? all of these things are gerd related. just think of what acid does to your skin if you come in contact with it, it eats away at the specific area. the acid attacks the soft tissue in your throat when it refluxes. i don't know if any of this helps, but get some aloe vera juice, it doesn't taste so bad, and some losenges until you can see your doctor.
hope i was helpful, let me know if you have any more questions, i will try my best to offer some info.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/2/2014 10:26 PM (GMT -6)   
my husband never had heart burn either. he had a typical chest pain, he said yes he had a hard time talking also, especially at the peak of his reflux. he had acid all over his voice box. when he went for his motility test to see if he qualified for the nissen surgery, it malfunctioned, they wanted him to come back another day and do it again. he refused, drove to his doctors office and begged for the procedure.
the bravo test is not very accurate either, i don't know why they even do it.
we tried all those remedies too without any relief. amitryptaline is used for anxiety, but also is suppose to help with the lump in the throat feeling. since my husband suffers from insomnia, he takes the ativan to help him relax so he can try to sleep. i would stay away from lyrica and neurontin. like i said dexilant is the only medication that gave my husband any relief. he still has the feeling in his throat, chest pain, and even a little reflux still after the surgery. i miss him, he just exists. unable to do anything he wants to because this throat pain controls his mood, his happiness, his entire life. before he started dexilant he just sat in his recliner, not saying a word, going through a whirlwind of emotions, he hadn't slept literally for 11 days. the only thing that would relieve the pain in his throat was beer (it numbed the area), sitting in the sun, halucinating. it was scary! finally when i took him for the test on his phrenic nerve, he ended up being admitted to the hospital because during the test he became unresponsive. they took him into the er and they ran test after test. they gave him the million dollar work up. they discovered his lactic acid levels were unbelievably high and habituates in his blood. the habituates were the ativan. they were going to release him on the thought that he was just crazy and depressed. of course he was depressed, he is very sick and nobody would listen to him. the surgeries he didn't need. and yes anyone that hasn't slept for 11 days are going to go crazy. so i spoke up and told them he was suicidal. they got security to sit outside his room to monitor him until a phsico therapist could evaluate him. she came asking a multitude of questions and when she saw it wasn't his mind, but his sickness she ordered he be put in the sleep study of the hospital and be given a cocktail of sleeping pills. she wanted him to sleep for at least 72 hours. as soon as he started to fall asleep, the acid would torture him, they thought he was having a heart attack too. the next morning they took him for a barium swallow and dicovered the culprit. spontanious gastroesophageal reflux disease. spontanious because the reflux would happenfor no rhyme or reason. he could eat spicy foods and drink anything and never get heart burn.
it's been a scary 6 months now since these attacks started to really show its ugly face. hopefully all of this info was helpful, and stay in touch. i am always trying to help you guys out

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/3/2014 8:41 AM (GMT -6)   
Your husbands story is very similar to mine. Ive been to the ER a dozen times and they just keep sending me home. I almost died because my gallbladder was ready to burst yet they kept sending me home. My throat pain and voice pain has taken everything from me. I dont know what to do. And now my stomach is strarting to feel sick again. I dont think there is anyway i could handle the nissen surgery. Im already 30 pounds underweight. What is the quality of your husbands life now? Can i ask you if you live in the U.S.? I would do anything to be put in the hospital but they just wont do it.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/3/2014 8:42 AM (GMT -6)   
And i get so angry when anybody suggests that its depression causing the problems. The problems cause the depression.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/3/2014 1:31 PM (GMT -6)   
exactly, they would rather treat symptoms with drugs rather than take the time to help the patient and their illness. it seems they work more for the people selling them the drugs, than the ones they are pushing them on. i made sure to tell my husbands primary doctor that he has had psychiatric evaluations, and it's not a mental illness, but an actual physical illness.
i tell my husband all the time, i wish we lived in canada- at least they get free health care. i think if we have to have "health insurance", the doctors should "insure" our health.
just try to stay positive and don't allow these doctors bully you into thinking you're the crazy one, you pay their salary, make them earn it.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/3/2014 2:00 PM (GMT -6)   
I often wished i lived in another country where they would put me in the hospital and do the tests that need done to figure out what is going on. I need help

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/3/2014 2:09 PM (GMT -6)   
yes i agree. hopefully you can find someone to take you seriously, it is not normal for our bodies to be in pain and our throats dry without something being really wrong.
i swear we are our best doctor, we know when there is something wrong, our body tells us so.
the only way my husband was ever going to get answers and help, unfortunately, was by telling them he wanted to kill himself. we should not have to do that in order to be taken seriously.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/3/2014 9:02 PM (GMT -6)   
lobstahguy

sorry i missed one of your posts. instead of the nissen, have you heard of tif? this is the procedure my husband really wanted, but we live in west virginia and there are no surgeons that do this surgery here. the closest to us that do do the tif are virginia and ohio, but my husband is always nausiated and couldn't handle a 5 minute drive let alone a 4 to 8 hour drive. he has motion and non-motion sickness.

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/3/2014 9:05 PM (GMT -6)   
lobstahguy

the test they do to check the function of the phrenic nerve is called a fluoroscopy

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/4/2014 10:22 AM (GMT -6)   
Journey72, i will look that up. I had a video fluoroscopy i think but im not sure its the same thing?

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/4/2014 10:22 AM (GMT -6)   
Does your husband have any sinus problems or asthma?

DOGGBONES
Veteran Member


Date Joined Apr 2012
Total Posts : 707
   Posted 2/4/2014 11:51 AM (GMT -6)   
Here are some things I've done to help with globus.......
 
1.chew gum (no mint)
2.throat lozenges
3.liquid mag/cal with vit. D
4.aloe vera (soothes & heals damage)
5.manuka honey (mix with warm water drink as honey tea)(very good healer)
6.garggle baking soda
7.amitryptaline (helps with hypersenstivity)
 
I assume your husband has made major diet changes, if not you must do this. The vergas nerve can be easly be upset by reflux and yes it causes all kinds of hell. Chest and back pain is common.
 
IMO, do not let him get the tiff surgery. I have yet to come accross anyone with good results. As a matter of fact a member here (sixness) had it done and it made problems alot worse for him.
 
Motility is very important for the success of any gerd surgery. Without good motility if you have surgery you may have even more problems.
 
I hope this helps......
 

Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/4/2014 12:20 PM (GMT -6)   
lobstahguy

yes he still does, but they are consistently improving. the deviated septum caused him to sneeze uncontrollably, especially after taking a shower. but since the en&t doc fixed his septum he has not done that. however, he wakes up every morning having to blow his nose and cough up thick brown mucus (the acid). he always had bloody tissues. since the nissen, day 6 now, he has not had blood on the tissue, nor the brown mucus, it is clear and thin. he is slowly improving, but the globus hystericus is still very much there. today he said that he did not notice it as much. yesterday he felt pretty good for the most part, but he says he notices it the most when his mood changes. whether it be excitement, sadness, or laughter, whatever he is feeling it does not matter. the feeling in his throat changes fast and becomes tight and extremely painful.
he doesn't have any known allergies though.
hope this info helps

Post Edited (Journey72) : 2/4/2014 12:59:52 PM (GMT-7)


Journey72
Regular Member


Date Joined Feb 2014
Total Posts : 45
   Posted 2/4/2014 12:29 PM (GMT -6)   
Dogbones

Yes he has tried all of that. He always has a pocket full of ricolas, and drinks peppermint tea w/honey. Yes that helped tremendously before he had the nissen 6 days ago.
Chewing gum he did also, but can't now because it allows air into the body, so it's a big no no. Also, no his diet never really changed, because he is totally about eating healthy, always has. He won't go to McDonalds, that kind of food goes right through him.
Really the only thing he did before the surgery that was doing harm, was drinking beer. The only reason he drank beer, was because it helped to numb the globus hystericus, and was an aide in helping him relax.
Thank you for your info, this disease can obviously use all the help from those who experience it.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 2:27 AM (GMT -6)
There are a total of 2,974,445 posts in 326,176 threads.
View Active Threads


Who's Online
This forum has 161280 registered members. Please welcome our newest member, Mark Aden.
254 Guest(s), 1 Registered Member(s) are currently online.  Details
TSGlassman