Hi Everyone, Thank you for taking the time to read my post :.)
I wandered if anyone else had a similar experience and could give me any pointers of what maybe I could do next.
I am a 39yrs old female and am really struggling physically on a day to day basis.
Just over 2 years ago I fractured my coccyx and due to pain and inflammation was put on Naproxen until I started to get terrible pain in my stomach and was diagnosed with reflux/heartburn. I came off the Naproxen and was given Lansoprazole and other pain killers for my back problem.
I followed guidelines raised bed, small meals, rarely drink alcohol , don’t smoke, no tight clothing avoiding various foods that made the reflux/ heartburn worse. Doctor also referred me to a speech therapist as I kept on losing my voice and suffered a lot with sore throat and sinus problems, he also changed the medication to Omeprazole.
The speech therapist gave me exercises and told me to take gaviscon advanced as she thought it he hoarseness was linked to the reflux I was getting.
Due to ongoing problems, choking etc my doctor sent me for an endoscope in March last year (2013) where they found a small sliding hiatus hernia. I was then referred to see a Gastorentologist where she doubled up my medication and changed the drugs to help the sickness I was getting. She then referred me for a ph test and manometry in September 2013.
The nurse specialist who did the test said I had a weakened LES and mine was 3.5 where it should be 14-15. A few months later the specialist doctor wrote to me telling me I did not have any significant GORD (which is great news :>)) and to take yet another medication :>( to help with my symptoms and that i would be seen in six months. There was no mention of the LES.
I went back to my doctor who told me she was instructed it was functional heartburn, i then asked for a referral to see the specialist sooner as i was still in alot of discomfort and was struggling to understand why or if i need to take these medications if the discomfort is not acid then what is it? Will i get the disease if i stop taking these medications? So confused, have i got gerd or not? I now have an appointment to see the specialist next week.
I am currently taking the following:- Esomeprazole 40mg 1 x day Ranitidine 300mg 1 x day Metroclopramide 10mg 3 x day Baclofen x 10mg 2 x day and Gaviscon advanced as and when throughout the day.
I am still following the guidelines and trying to lose weight, struggling with hoarseness, choking, swallowing problems chest pain and get breathless. I feel older than my years, i can’t bend over without feeling like my stomach is in my chest and its all starting to really get me down. Please if any one can help me with any questions to ask the specialist would be most grateful. I live in the UK and we are very lucky to have the NHS but i will have limited time to ask questions and just want to make sure i use the time wisely, I really want to avoid taking medication for the rest of my life.