Medications query

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whattodonow
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/8/2014 8:06 AM (GMT -6)   
Hi Everyone, Thank you for taking the time to read my post :.)
I wandered if anyone else had a similar experience and could give me any pointers of what maybe I could do next.
I am a 39yrs old female and am really struggling physically on a day to day basis.
Just over 2 years ago I fractured my coccyx and due to pain and inflammation was put on Naproxen until I started to get terrible pain in my stomach and was diagnosed with reflux/heartburn. I came off the Naproxen and was given Lansoprazole and other pain killers for my back problem.
I followed guidelines raised bed, small meals, rarely drink alcohol , don’t smoke, no tight clothing avoiding various foods that made the reflux/ heartburn worse. Doctor also referred me to a speech therapist as I kept on losing my voice and suffered a lot with sore throat and sinus problems, he also changed the medication to Omeprazole.
The speech therapist gave me exercises and told me to take gaviscon advanced as she thought it he hoarseness was linked to the reflux I was getting.
Due to ongoing problems, choking etc my doctor sent me for an endoscope in March last year (2013) where they found a small sliding hiatus hernia. I was then referred to see a Gastorentologist where she doubled up my medication and changed the drugs to help the sickness I was getting. She then referred me for a ph test and manometry in September 2013.
The nurse specialist who did the test said I had a weakened LES and mine was 3.5 where it should be 14-15. A few months later the specialist doctor wrote to me telling me I did not have any significant GORD (which is great news :>)) and to take yet another medication :>( to help with my symptoms and that i would be seen in six months. There was no mention of the LES.
I went back to my doctor who told me she was instructed it was functional heartburn, i then asked for a referral to see the specialist sooner as i was still in alot of discomfort and was struggling to understand why or if i need to take these medications if the discomfort is not acid then what is it? Will i get the disease if i stop taking these medications? So confused, have i got gerd or not? I now have an appointment to see the specialist next week.
I am currently taking the following:- Esomeprazole 40mg 1 x day Ranitidine 300mg 1 x day Metroclopramide 10mg 3 x day Baclofen x 10mg 2 x day and Gaviscon advanced as and when throughout the day.
I am still following the guidelines and trying to lose weight, struggling with hoarseness, choking, swallowing problems chest pain and get breathless. I feel older than my years, i can’t bend over without feeling like my stomach is in my chest and its all starting to really get me down. Please if any one can help me with any questions to ask the specialist would be most grateful. I live in the UK and we are very lucky to have the NHS but i will have limited time to ask questions and just want to make sure i use the time wisely, I really want to avoid taking medication for the rest of my life.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/8/2014 10:17 AM (GMT -6)   
I sympathize with your struggles. I have many of the same symptoms you have. I have lost my voice completely and am having terrible sinus problems now. Ive tried all the meds and failed them. If you had the manometry, they should not be ignoring the findings from that test.

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 2/8/2014 1:13 PM (GMT -6)   
Hi

You haven't said which specialist you are seeing but I assume it's a gastro consultants . Basically you have the symptoms of gerd, gastro reflux disease but obviously it's being controlled by the meds you are on. Probably this is caused by your hiatal hernia and probably if you are overweight it may also affect your current condition. Basically, there is only one way they will fix this problem on the nhs depending in the severity of it with the nissan fundoplication . This operation has it's benefits but may also have it own set of problems . Your problems have come about because of your fractured back and they problem of taking painkillers. Gord has a range of symptoms so at the end of the day it's up to you to see whether losing weight will lessen your symptoms or whether you want to speak with a surgeon about an operation. Do the meds not help with you condition at all? Also have you changed your diet ? Eat a bland diet with more fresh and no processed foods. These are usually the triggers as processed foods heavy in fat and sugars are hard to digest .

jamosca
Regular Member


Date Joined Aug 2013
Total Posts : 162
   Posted 2/8/2014 1:18 PM (GMT -6)   
I just saw the gastro consultant the other day on the nhs as I have had a range of symptoms for 2 years now and basically he is giving me the tests which you have had and also making me an appointment to see a surgeon in order to have the surgery . He says at the end of the day if your symptoms are making your life a misery then surgery is an option but they won't force you to have the op if you don't want it. If you have exhausted all other options available to you then surgery could be the final option but please read the threads of people who have had the operation done to see the pros and cons.

whattodonow
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/9/2014 5:39 PM (GMT -6)   
Thanks Jamosca and lobstahguy I have been looking at the various thoughts on surgery and understand it is a last resort. The medications have helped me stop feeling so sick and I can now get a reasonable nights sleep.
There are side effects which I will discuss with the Gastarentologist (itching, tiredness and headaches) next week and I am not happy with taking all of these tablets every day so will have to see. I hope you get on okay with the tests Jomosca:>) keep us posted.
I am currently on a low fat diet and eating small portions, some of the food is processed so i will look at changing that, i bloat up when i eat anything just below my rib cage (people think i am pregnant ), i cannot wear any tight clothing as it feels as though my stomach is in my chest. I have suffered with IBS since i was a teenager but this feels a lot different.
Trying to stay positive, its good to hear your not alone.:>)
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