8/9 Peptest samples negative...

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Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 2/17/2014 7:05 AM (GMT -6)   
So... I've been having horrible burning-throat symptoms since reducing my Mirtazapine/Remeron again. Some foods that don't usually make me burn... well, make me burn. I was so certain it was reflux that I went and ordered another 3 Peptest sample pots. Luckily for me my symptoms were just as bad by the time the pots arrived, and I made myself stop taking all meds for 72 hours, including Gaviscon. I even forced some biscuits, manuka honey and a Gingerbread Man down my gullet to try and make the reflux happen, since they all have made me burn at least once! These are the situations I took my samples in:

4 x With a seriously burning throat/belching/heartburn-like symptoms
3 x With a lot of burping, throat clearing and mucus
2 x First thing in the morning (just in case)

Only 1 sample has ever come back positive, and that was last year when I WASN'T getting a burning throat, just the burping and mucus. This time around, even though the burning was the worst it has been in a long time, NONE of the samples showed reflux at all. Sooooooo... now I have a clear barium, clear endoscopy, clear ENT check 8/9 clear spit tests, and I've got a manometry/24 hour Restech probe coming up in April. Should I just assume that 1 positive spit test sample was due to chance? I'd like to think this proves the possibility that I don't have reflux, but what do you all make of these unexpected results?

Post Edited (Daxter) : 2/17/2014 8:40:32 AM (GMT-7)


liang7079
Regular Member


Date Joined Dec 2013
Total Posts : 34
   Posted 2/17/2014 10:01 AM (GMT -6)   
Hi don't know if you have mentioned it but have you talked to your GI/ENT/GP about the possibility of LRN (overly sensitive larynx)?
Some patients with LPR-like symptoms turned out to have nerve problems and got a lot better with neuro-medicines like Evavil, Neurotin etc. Let us know !

Vickyandcraig
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/17/2014 5:43 PM (GMT -6)   
Is this not a good think? Seen as you dreaded having this x

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 2/17/2014 6:15 PM (GMT -6)   
Daxter -- I feel so sad about your symptoms.

I'm trying to recall some information on this forum about the negative Peptest results during the worst of your symptoms when you think they would surely be positive.

Just Passing Through had posted information about this very same thing after he had personal contact with the president/doctor of that company. I can't recall the details but feel it would be helpful to you to email JPT about this for some understanding. I may have faulty memory but we found it helpful in our 'negative' situation.

Also you can email the company and ask them about negative results while having bad symptoms.

I miss JPT and hope I didn't goof on my recall of his information. What a big help he was and is.

EDIT:
I've removed JPT's email address, as posting it here in an open forum can lead to him being spammed by random lurkers/non-members. If anyone wants to contact JPT, they can email me (dencha) by clicking on the little email icon below my name on any post I've written. If a person emails me, I will forward that email to JPT, and he can respond directly to the person via email as well.

Post Edited By Moderator (dencha) : 2/17/2014 5:46:20 PM (GMT-7)


Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 2/18/2014 4:21 AM (GMT -6)   
liang7079 said...
Hi don't know if you have mentioned it but have you talked to your GI/ENT/GP about the possibility of LRN (overly sensitive larynx)?
Some patients with LPR-like symptoms turned out to have nerve problems and got a lot better with neuro-medicines like Evavil, Neurotin etc. Let us know !


Truth be told, my Mirtazapine did reduce some symptoms, but it didn't eliminate them. Mirtazapine has some anti-acid properties though, according to my pharmacist, so I made sure to stop it before taking the Peptest samples.

Pat Fill said...
Daxter -- I feel so sad about your symptoms.

I'm trying to recall some information on this forum about the negative Peptest results during the worst of your symptoms when you think they would surely be positive.

Just Passing Through had posted information about this very same thing after he had personal contact with the president/doctor of that company. I can't recall the details but feel it would be helpful to you to email JPT about this for some understanding. I may have faulty memory but we found it helpful in our 'negative' situation.

Also you can email the company and ask them about negative results while having bad symptoms.

I miss JPT and hope I didn't goof on my recall of his information. What a big help he was and is.

EDIT:
I've removed JPT's email address, as posting it here in an open forum can lead to him being spammed by random lurkers/non-members. If anyone wants to contact JPT, they can email me (dencha) by clicking on the little email icon below my name on any post I've written. If a person emails me, I will forward that email to JPT, and he can respond directly to the person via email as well.



I just contacted the company behind Peptest; apparently it is possible to have symptoms similar to LPR, but not to have reflux. I know I have no allergies, so it could be the pain is a result of me clearing my throat all the time, or a side effect of my Mirtazapine. The person said stress could be causing my reflux, and he also said that my one, low-positive result last year could have been entirely due to chance, especially given that I've had worse symptoms with no detectable pepsin. What disturbs me is that my symptoms continue to worsen, even after drinking water.

I keep trying to access the old "LINX club" posts to read up on JPTs experience, but they're gone. I guess all I can do is hope my 24 hour pH probe is clear too. If it is, I'll be living proof of anxiety being behind my symptoms. If not, I'll be living proof that Peptest isn't as reliable as the world thinks.

Post Edited (Daxter) : 2/18/2014 7:58:40 AM (GMT-7)


Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 2/25/2014 11:56 AM (GMT -6)   
Got to bump this I'm afraid; I've just heard crushing news that I may have done ALL my samples wrong by spitting multiple times into individual pots, potentially diluting pepsin. Now it seems the only sample with any validity is the positive one, and even then it may be higher than recorded after all! What do I do now?!

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 2/25/2014 3:20 PM (GMT -6)   
http://www.healingwell.com/community/default.aspx?f=45&m=2982075&p=2

Daxter, looks like the missing thread was being investigated and a new one started?

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 2/25/2014 3:23 PM (GMT -6)   
www.healingwell.com/community/default.aspx?f=45&m=2992799

Daxter - here's the new thread with some recovered text, thanks to Phil's hard work!

MMM

jaren
Regular Member


Date Joined Feb 2014
Total Posts : 24
   Posted 2/25/2014 11:09 PM (GMT -6)   
how is one supposed to use each of the containers for a peptest anyways, daxter?

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 2/26/2014 1:04 PM (GMT -6)   
mudmagnetmum said...
www.healingwell.com/community/default.aspx?f=45&m=2992799

Daxter - here's the new thread with some recovered text, thanks to Phil's hard work!

MMM


Thank you very much :D

jaren said...
how is one supposed to use each of the containers for a peptest anyways, daxter?


Basically, you drop one or two samples into the tube(s) after getting as much mucus out of your throat as possible. Try not to put too much spit in there; it dilutes the pepsin, as I've just learned. Then the tube gets a shake, and placed in a semi-cool fridge until you send it back. :)

jaren
Regular Member


Date Joined Feb 2014
Total Posts : 24
   Posted 2/26/2014 1:30 PM (GMT -6)   
If someone thinks they havd LPR, but dont have much mucus in their throat, does that mean the test isnt going to be very useful to them?

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 2/26/2014 1:32 PM (GMT -6)   
jaren said...
If someone thinks they havd LPR, but dont have much mucus in their throat, does that mean the test isnt going to be very useful to them?


Even a little bit of mucus will go far; only 1ml is needed to create a sample. If you clear your throat a few times, the body will produce more mucus as a natural response for your throat's protection, so even if you don't have enough mucus at a given time, you will do eventually. :)
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