Surgeon said I don't need to wean off PPIs

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 2/18/2014 5:13 PM (GMT -6)   
I went to my appointment with a surgeon today. He said that my PH test shows that I am not refluxing acid and that I should come off my PPIs. I asked him if I should wean off and he said no that wasn't necessary as I'm not refluxing acid. He's a very experienced surgeon and seems to know his stuff. However this is contrary to everything I've read and I am wondering what to do?

Has anyone stopped cold turkey without getting rebound problems?

He said he would be writing to my GP and asking that she refer me to an ENT specialist. I have LPR type symptoms (sore burning throat, painful ears etc.) which he thinks is an esophagus sensitivity problem. I am keeping an open mind but really don't know what to think at this stage.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5011
   Posted 2/18/2014 6:45 PM (GMT -6)   
There's no reason to worry about withdrawal or rebound if no reflux is getting into the esophagus. Just because the stomach is again making acid is fine if it isn't in your throat.

There are such things as esophagus sensitivity. (Google it) The trick is to figure out what are your triggers.

I have sensitivity to sulfites, but there are many other possibilities, as you will see from googling. My allergist had me keep a good food journal: time, date, what I ate and drank, meds, and symptoms. It took a couple of months to get a short list I was sure of - gelatin, wine and beer, maple syrup, most kinds of bread from stores, and a whole lot more.

My reaction is usually within a half hour to two hours. My stomach starts heaving or refluxing (that is until I had the surgery after being in a wreck), and I often get tachycardia, sometimes needing a trip to the ER.

After I had the food list I had to break it down to ingredients. It wasn't the meat in the burger, it was the condiments. It wasn't a small waffle, it was the maple syrup. Gelatin, even unflavored, yuck and definitely a trigger. Plain bread with only wheat - hard to find a flatbread without additives was fine - it was the additives. See more, much more by searching with the search box at the top of the page.

To reiterate, keep a journal and find your triggers. See an allergist for help. Get a second opinion if the first allergist doesn't believe in these triggers. An ENT may not have any experience with sensitivity.

Noelle3
Regular Member


Date Joined Sep 2013
Total Posts : 193
   Posted 2/23/2014 9:45 AM (GMT -6)   
Hi Alcie,

Thank you for responding and sorry it's taken me so long to reply .. it's been a very busy week.

The surgeon said he thinks what's going on is that my esophagus was damaged after I took a bisphosphonate tablet in May of last year. He said according to my PH test (which was a very basic one and not even an impedence test) I do not have acid reflux and because I don't feel my food or drink regurgitating that I don't have reflux. I asked him why I get throat symptoms after I've eaten and he said that my esophagus is still sensitive. I asked why I am always awakened by nausea first thing in the early morning which sometimes lasts throughout the day and he didn't reply. I asked why I belch frequently and he didn't reply.

I am keeping my mind open, but am as yet unconvinced that this isn't a stomach problem.

I did however mention to him that I was reading up about sensitive esophagus and that Gabapentin (or other nerve related medicines like Amytriptyline) can help. He said that he would recommend that in his letter to my doctor.

I really don't thing it's an allergy thing and even if it was I wouldn't know where to begin as even the blandest food sets my throat off, it's just that the usual acid reflux foods ie onions, tomatoes, spices etc. make it 10 times worse so I avoid them.

I guess I'll have to wait and see what ENT have to say. I only hope that if they think it's actually a reflux issue that I will be referred back to an gastroenterologist. Round and round it goes ........

All the best.

Noelle

ps Oh yes, mean't to add that my symptoms are worse off the PPIs. I'll try and tough it out as I don't want to go back on them. I only hope this is rebound and that it won't last.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 16, 2018 5:01 AM (GMT -6)
There are a total of 2,981,920 posts in 326,950 threads.
View Active Threads


Who's Online
This forum has 161795 registered members. Please welcome our newest member, jagir03.
320 Guest(s), 1 Registered Member(s) are currently online.  Details
Soumidey