sinusitis from hell

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/27/2014 4:05 PM (GMT -6)   
two and half months. nothing is helping. this is worse than the throat problems. anybody else have this?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/27/2014 6:20 PM (GMT -6)   
lobstahguy

While I don't a lot of people in my area are dealing with it. I did have it for about 3 months back in the Fall though. thought it would never go away.

I finally got a nasal spray, used a netty pot, and got the humidifier going. That helped me a lot.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/27/2014 7:17 PM (GMT -6)   
Bill ive never had sinus problems in my life. Woke up with it and my ENT thinks its a neurological problem related to my throat. Its like my nasal passages no longer work right. Ive tried everything including paying out of pocket for 175 dollar bottle of nasonex. This has put me down badly. Cool air hurts to breathe and warm air stuffs my nose up. The headaches are unbearable and both ears are plugged.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 2/27/2014 10:12 PM (GMT -6)   
Bill has some good ideas. Do you have a humidifier? I don't understand why the ENT had you get Nasonex.

I get headaches from dry or plugged up sinuses since nose got broken. My best relief is twice a day saline wash with NeilMed squeeze bottle. I warm the water in the microwave 30 seconds. Never use tap water unless it's boiled! Brain-eating ameba has been found in public water as far north as Wisconsin.

Another remedy I like is 12 hour Mucinex. It helps keep mucus thin so the cilia in lungs and sinuses can expel it. There's a generic 12 hour now too.

I had the sinus surgery, but I don't recommend it. It made my sinusitis worse.

Your ENT can take a sample for culture to see if there is an infection. Not much works on sinus infections since there is little blood supply. Mostly what works is sulfa drugs, which I don't tolerate.

The ear problem could be from the sinusitis or the throat.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/28/2014 9:43 AM (GMT -6)   
Alcie, i already tried all of the things you mentioned and they did not help. The reason my ENT gave me nasonex is because he said i have alot of congestion (inflammation). I dont know whats happening. I still dont even know if i have vagal neuropathy or silent reflux and its been a year since this started. LIving in daily hell

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/28/2014 11:50 AM (GMT -6)   
A thought for you - Fungal sinusitis is an uncommon infection that was traditionally associated with immunocompromise but which is increasingly seen among the immunocompetent patient population. It is also associated with diabetes. Recently, there have been suggestions that it is actually very prevalent, occurring in most cases of chronic sinusitis - this assertion remains highly debated. The most common culprits are the Aspergillus and Mucor species.
 
You mentioned possible neurological issues - have you seen a neurologist for a medical screening exam?
 
I am sorry to read of your difficulties and hope you find an answer and treatment soon.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/28/2014 3:36 PM (GMT -6)   
Kitt- There you are!

I am glad you brought this up. I had completely forgot about this. I have a chronic issue with fungal growths in both lungs and when I start to get a cold or something it flares up.

I can see this being an issue in the sinuses as well.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 2/28/2014 6:13 PM (GMT -6)   
Kitt, yes, i had a neurological exam and MRI of my brain and all was "essentially normal", whatever that means. My sinus issues seem to be a new and extreme non-allergic type response to triggers. Especially temperature change. And now my nose runs when i eat which has never happened in my life. My nervous system seems to be wrecked. I am on ativan also, so who knows how much of a roll this is playing in my symptoms. However, the voice loss and lump in the throat happened before the ativan. In the past few weeks the pain in my throat has spread to my chest. When i attempt to talk, within 10 minutes i feel tightness in my chest and even shortness of breath. Just getting worse and worse. I read about the fungal issues with the sinuses, but didnt come to any conclusions. p.s. i sneeze now when i am at the computer screen. This is neurological in my opinion. I have always sneezed in direct sunlight but never from artificial light.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/28/2014 11:02 PM (GMT -6)   
lobstahguy

You wouldn't happen to live in a big river bottom area would you? I ask because these areas, especially the Mississippi river, are known for having some serious fungal spores. Also it can be contracted from farms. I grew up on a farm and in the Mississippi river area and that's how they think I got my fungal issue.

I dealt with some serious sinus issues for a long time and finally had sinus surgery. The surgery was horrible, but it has help me a lot. What does your ENT say?

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 3/1/2014 3:00 PM (GMT -6)   
Bill, no, i never had any sinus problems in my life and it all started on dec 4th out of the blue. My ENT thinks it is a neuropathy. There is no question that there has been a neurological change in the way my nasal passage works. I have alot of burning pain in the nose and then it will get congested. Cool air opens it up and warm air plugs it up. Both ears are plugged also. There is alot of inflammation in there. THe headaches and ear problems are making my life unbearable. The nasonex helps a little but i think its making me nauseaus. I dont see any answers for this

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 3/1/2014 3:01 PM (GMT -6)   
Bill i read through this and still cant understand whats happening. Im afraid the damage to my nervous system is permanent. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2866558/
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 8:01 PM (GMT -6)
There are a total of 3,004,460 posts in 329,148 threads.
View Active Threads


Who's Online
This forum has 161739 registered members. Please welcome our newest member, pinky;spoorback.
223 Guest(s), 12 Registered Member(s) are currently online.  Details
Tim G, OzLyme, logoslidat, xpeetzax, Ss800, Michael_T, Admin, wednesday77, mordant, FamilyGuy, CatskillsMelanie, straydog