Constant GERD no matter what I do..Suggestions?

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Maizy
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/28/2014 11:12 PM (GMT -6)   
I don't know what else to do or where else to turn and kind of feel like I am losing my mind. I never used to have problems with GERD. I could eat a dozen hot wings and drink a coke and be just fine. Then in my early 20's, things changed. I can't remember exactly when but things really started going down hill.

Since then, I have had 3 upper endoscopies (2 with Bravo pH studies), seen about 6 different GI specialists, an ENT, and tried over a dozen different medications. I have tried acupuncture and seen 2 different naturopaths. One treated me for a parasite and yeast overgrowth. I know that may not seem like a lot to some but it's been plenty for me. I have completely changed my diet and now am eating gluten/dairy/corn/mostly sugar free. Almost zero processed food. No tomatoes, onions, garlic, pepper, etc. The only spices I use are Himalayan salt, parsley, basil, oregano, and rosemary. I am currently working with a holistic nutritionist without much luck.

I periodically try to add things back in to test them and they never go well. I have been trying to wean off my PPI's and acid reducers because I feel perhaps they are doing more harm than good at this point. I have tried Acid Soothe (Enzymedica) a couple of times but tonights dose isn't doing much and I have heard conflicting things.

Any suggestions that you can think of that I haven't tried?

Prairie ranger
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 3/1/2014 12:17 PM (GMT -6)   
Dgl, and aloe juice, and slippery elm if your going natural route. For me these seem to help very little but for some they do help. Nexium for me was the best ppi I took, I am now on Prilosec due to insurance reasons this year and that just doesn't help. Just a few suggestions you probably have heard already.

Maizy
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 3/1/2014 12:45 PM (GMT -6)   
Thank you for the reply. I will look into those options for sure. I tried nexium briefly years ago but didn't get much relief from it. I've been trying for forever to find the root cause and have yet to really figure it out. I feel like I never will.

speden
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 3/1/2014 10:15 PM (GMT -6)   
For me it's not so much what I eat, but when I eat it. Anything that's slow to digest like red meat I can only eat early in the day so that it's mostly out of the stomach by bedtime. For dinner I need to eat fast to digest things like carbs that won't make a lot of acid during the super critical first few hours of sleep when I'm laying down and acid is most likely to leak up the esophagus.

If your esophagus/LES valve is bad, then you probably won't be able to wean off PPI's because some stomach fluid is going to leak up, and if those fluids are highly acid it's going to do damage. The PPI's make that acid weaker and your esophagus can then handle the inevitable exposures if you keep them short in duration.

Best PPI for me has been delayed release Lansoprazole, which you can get generic at Walgreens or brand name like Prevacid 24HR. The non-delayed release PPI's were always hell for me since I'd get too big a dose when I took the pill, and then it would seem to wear off four hours later and I'd get burned. I did that for a few years and then found delayed release and life was much better.

Other thing is just being super tuned to the status of your stomach. If it's busy digesting food, be upright and quiet so nothing sloshes out. Don't exercise or be in a car when your stomach is busy. If it's done digesting and pretty empty you can be more active, but always stay upright. By bedtime have a mostly empty stomach that is only working on easy to digest stuff that the stomach doesn't need to make a lot of acid to digest. When sleeping, have the head of your bed elevated as high as you can stand and don't wear pajamas with elastic waistbands. And never turn to sleep on your right side during the first few hours of sleep.

Don't lose your mind with worry since worry just makes extra acid without helping anything. When life gives you lemons, make lemonade. Usually when people get reflux it doesn't go away unless it's being caused by something obvious like smoking or obesity that you can fix so the whole game is figuring out how to manage it. I hope you find some things that work for you.

Maizy
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 3/2/2014 4:23 PM (GMT -6)   
speden- Thank you for your reply. I am currently taking Prevacid 24HR and have off/on for years. I have also tried several other medications with the pattern always being the same. The medication will work for the first couple of months and then my GERD will come back. Every single time. I have yet to find a medication that does the trick long term for me. Which is why I am curious as to whether or not I just don't have enough acid in my stomach due to all the medications. I try not to bend or be super active after eating as well. I have noticed that this can aggravate things for sure. I was a smoker for years and quit a couple of years ago. I thought that perhaps my GERD would improve after that. It actually seems like it has gotten worse. I have never been obese so that is not a factor in my case. I can understand how that would cause significant GERD.

My first two endoscopies showed esophagitis and a smalll hiatal hernia. The third endoscopy (after I quit smoking) showed nothing significant. The doctor though that perhaps my esophagus had healed itself. But I was still having significant GERD. Based on that and my normal Bravo pH results, they suggested that as far as they were concerned, I didn't have reflux and could go off all of my medications. So I did just to see what would happen and it all came back full force. So since then I have tried several nontraditional forms of treatment without much relief.

I sleep with two pillows, don't wear pajamas and don't eat anything that is remotely tasty or flavorful in anyway whatsoever. I usually have to have a tiny snack an hour or so before bedtime because I am moderately hypoglycemic. This usually consists of a small piece of fruit. I haven't always done this but in the last year or so my blood sugar has been increasingly problematic.

I feel like I have literally tried just about everything I can think of. What am I supposed to do when medication, diet change, modern medicine, holistic medicine, etc. has done nothing for me? Just live with it? I refuse to accept that answer yet don't know what else I could try that I haven't already.

Sorry for the long post and letting me vent.
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